Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suspect Thyroid Problems & Still Feel Miserable

sillyker0nian

By sillyker0nian
in Related Issues & Disorders

Recommended Posts

sillyker0nian Rookie
sillyker0nian
Posted

(Here is my Celiac Blood Panel results to see them - it might help shed some light on things.)

 

Hey, everyone! I'm back. And, I have new things to ask. I think I have Thyroid problems. And, I'm also still eating gluten regularly to make sure I keep up on it just in case my G.I doctor which I'm still waiting to get refereed to  does decide to do the endoscopy and biopsy. But, right now within the past few days I feel horrible - miserable even. I feel like lava (really warm) which isn't fun....

 

Anyways, my suspected non-Celiac symptoms are

 

  • Increased sensitivity to cold
  • Dry skin
  • Puffy face
  • Muscle weakness
  • Muscle aches, tenderness and stiffness
  • Thinning hair

My grandmother also had thyroid problems which makes me suspect that I have them since they were passed down. And, I have low hormones and my overall IgA is low. My neck feels a little painful&puffy recently plus a little lump possibly, too. 

 

Can anyone help?? Thank you!  :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


icelandgirl Proficient
icelandgirl
Posted

Hi there...those could certainly be thyroid symptoms. Have you had any blood work done for your thyroid? If not, please do that. Ask for TSH, free T3, free T4, TPOAB and TgAb. The last 2 are antibody tests for Hashimotos, an autoimmune thyroid disease. A number of people on this board, including me, have that as well.

Testing is a simple blood test that your GP should be able to order for you. Low thyroid symptoms are no fun. I hope you get this figured out quickly!

cyclinglady Grand Master
cyclinglady
Posted

Only testing can determine a thyroid issue. See if your doctor can order the complete panel as ice has suggested. Take care!

sillyker0nian Rookie
sillyker0nian
Posted
  • Author

Hi there...those could certainly be thyroid symptoms. Have you had any blood work done for your thyroid? If not, please do that. Ask for TSH, free T3, free T4, TPOAB and TgAb. The last 2 are antibody tests for Hashimotos, an autoimmune thyroid disease. A number of people on this board, including me, have that as well.

Testing is a simple blood test that your GP should be able to order for you. Low thyroid symptoms are no fun. I hope you get this figured out quickly!

 

Thank you!! I wrote down all of those tests you said. I'm going to my first ever endocrinologist visit on the 22nd. I'm sure she is going to be a more educated doctor on this particular issue than my "general" doctors at the nearby clinic. Do you know what she is going to need? What tests she's going to want to do? Or, can I just visit her once and see what she says and go to my general doctors? 

 

 

Only testing can determine a thyroid issue. See if your doctor can order the complete panel as ice has suggested. Take care!

 

I understand - it's just everyone on this board seems so knowledgeable so I wanted to ask anyways. Thank you, too, as well :)  

cyclinglady Grand Master
cyclinglady
Posted

The tests IcelandGirl listed are specifically for the thyroid. Your endo may order other tests to rule out anything else. I have never seen an endo. My GP doctors have been good about managing my Hashi's, though it is important that you are educated as well.

Here are my suggestions for your visit. Make sure your endo feels your thyroid. Ask him to order the thyroid panel. Take in a family chart of illnesses. I find it invaluable and doctors love it. It has helped everyone in my family. Bring copies of past lab tests (you should always maintain health records).

Good luck!

icelandgirl Proficient
icelandgirl
Posted

Take in a list of your symptoms and a list of the tests you want done.  The endo should examine you, including your thyroid.  She should order blood work.  When she does that, make sure that it includes what you want tested.  You may also want to ask for tests for B12 and D...lots of celiacs are deficient in those and in my reading I've found that lots of Hypothyroid people are as well.  Good luck to you!  Let us know how it goes!

sillyker0nian Rookie
sillyker0nian
Posted
  • Author

UPDATE

 

Sorry - just too much to put into this post  :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    2. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    4. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
    5. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,439
    • Most Online (within 30 mins)
      7,748
    Lillian Steele
    Newest Member
    Lillian Steele
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.