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Gluten Withdrawal Symptoms

ceceliac

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ceceliac Apprentice
ceceliac
Posted

Hello, i wrote this thread some days ago: https://www.celiac.com/forums/topic/109649-glutening-food-poisoning-or-both/ 

 

I started a gluten free diet about a year ago before being tested, tried to reintroduce gluten several times and failed, got so sick, etc so i decided i will follow a strict gluten free diet forever as if i have celiac

 

So i went gluten free again about 1 1/2 months, it was kind of progressive so i think ive only been strictly gluten free for 1 month.

 

I started having symptoms in the first days of october, then i wrote that thread of the lemon pie (10/7/14) and the ice cream (10/12/14) and ive been having diarrhea for a week or so now, i may have got glutened with some jam, my sister touched it but i thought i was being a little obsessive so i ate it (10/15- 16/14) went to mc donalds (10/17/14) and ive had diarrhea since october 16th.

 

its not as bad as it was before, only a 3 or 4 times a day, i used to go to the bathroom 12+ times but it doesnt seem to get better. i started taking charcoal today, i dont see any difference but i'll keep taking those pills for some days.

 

I also have some other symptoms along with the D, some days ago i was very tired, yesterday i had a headache, and today i feel nauseated but im only in real pain after eating, im not bloated all the time! this is really weird..

 

Does this seem to be gluten withdrawal? i thought it was a glutening, but i should feel better now, 5 days after, right? :/ im kind of lost.

 

I followed a non strict gluten-free diet for some months and never got D unless i ate really big amounts like a piece of pizza and now i get sick for nothing..

 

Has anything like this ever happened to you ?

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cyclinglady Grand Master
cyclinglady
Posted

Glutenings can last for days or weeks for celiacs. It can take years for complete healing and once off gluten, accidental glutenings can be severe. I think you need more time (lots of it). There is a steep learning curve so you are going to have mishaps (like taking a risk eating out and paying the price).

It might not be related to gluten at all. Perhaps a virus or a food intolerance?

Hang in there!

ceceliac Apprentice
ceceliac
Posted
  • Author

Ive been thinking on food intolerances, i dont eat bananas because i get bloated within some minutes, the same with coffee, im  now lactose free to se if it helps! it may be a virus, ive already set an appointment with a new gastro, maybe i should have a new colonoscopy done, i dont know.

 

How long is it normal to have diarrhea after a glutening? do you  take any meds to stop the diarrhea? im going to buy imodium, i read it helps a lot! charcoal doesnt seem to be doing anything

GF Lover Rising Star
GF Lover
Posted

I'm not quite sure why you are taking charcoal pills as they are typically used for poisoning and such.  I would stop those.  Look into a good probiotic.  Glutenings can last up to a month or so.  Immodium should help with the D.  Give your body time to heal...lots of time.  Try to stay with whole foods and limit anything processed.  Try not to eat out for awhile as you learn more about living gluten-free.  I would not worry about other intolerances at this time as it is most likely to hard to tell at this point.  Be patient!

 

Colleen

ceceliac Apprentice
ceceliac
Posted
  • Author

Thank you for the advice, i just thought charcoal could help, as i heard some relatives used to take those pills when they had D, but it didnt work for me so i'll take imodium, i hope it helps!

 

Tthe problem is that im not even sure if i got glutened or what. Today my brother prepared juice with those powdered juice mixes, he used one which contained gluten (ohhhh!!), he was too rough and the powdered thing spreaded, i breathed a lot of it, i could even guess it was an apple juice mix.

 

I know it may sound obsessive, weird but i feel worse now!! i even got worse D, it seems i have very bad luck. I'm afraid i may have some other disease like ulcerative colitis, i had a colonoscopy last year and it was all ok!! i'll set an appt with a gastro tomorrow, i just want to know whats wrong with me!! im sure gluten is part of a problem because i cant even have a piece of cake without having symptoms, ive made many attempts to go back to eating "normal" and it was impossible.

 

I just cant understad why i get D on a strict gluten-free diet and i felt good on a non strict diet, and if i really got glutened, then i cant understand why the D doesnt stop!! 

 

Im just scared that all of my symptoms will return and the gluten-free diet wont help me anymore, thats why im so worried!! 

SMRI Collaborator
SMRI
Posted

It's natural to go to glutening as a source of your problems, but there are a lot of stomach viruses going around and you might just be sick.  Don't borrow trouble.  Give it a few days and see what happens.  Also, 1 month just isn't long enough to heal.  Several people, me included, noticed after a few weeks of being gluten-free that our symptoms seemed to come back for a while without being exposed to gluten.  It took a couple weeks for mine to settle down again and that might just be what is going on with you.

Fenrir Community Regular
Fenrir
Posted

I have found that since I've been gluten free for 6 months that I'm actually more sensative to gluten than I was while eating bread like crazy. I used to be a two sandwich a day type of guy+ the other gluten containing things. Now if I get glutened I get worse diarrhea and other symptoms than I had while fully glutened.

 

Sort of the body saying, "WHY!? Why are you doing this to me again! I like gluten-free and now I'm going to make you miserable if you give me any of that crap!"....... :lol:

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      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
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