Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Puts Things Into Perspective

Bonnie

By Bonnie
in Coping with Celiac Disease

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted

Yvonne,

I am so sorry to hear about your brother. I can't imagine the pain your family must be feeling. I am sending you lots of hugs, prayers and support to help you through this.

Your brother is up there now looking down on you watching over you. As long as he remains in your heart and memories, he will not really be gone.....

Hugs.

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hi guys,

Probably shouldn't be posting this but I'm in need of a bit of support right now and I've had so much from this forum re my gluten problem.

I lost my 26 year old brother 3 and a half weeks ago.  He had a motorbike accident, hit a tree, had brain surgery and passed away the next day.

I'm devastated. Trying to carry on and be strong for my 2 sisters, parents and my children. 

I have been so self-obsessed and feeling sorry for myself because of Celiac Disease.  So I can't eat gluten - so what?

This just puts everything into perspective.

Thanks for reading guys, just feeling really sad.

Yvonne

<{POST_SNAPBACK}>

Yvonne,

I am so sorry. I lost my twin to a crash years ago. It seems doubly hard when things happen so suddenly. It is very overwhelming. Nothing anyone can say will really help. It's so hard to have to be strong for others when your melting inside. Make sure to allow yourself time to grieve while you take care of everyone else. The pain will dull but missing someone is so hard. I wish I there was something I could do other than just say, I'm so sorry.

Kris

jenvan Collaborator
jenvan
Posted

Yvonne-

I also wanted to share a scripture that has given me comfort in times when some one close to me has passed...

Psalm 116:15: Precious in the sight of the LORD is the death of his saints.

I don't take the word saints here to mean literal saints, as in catholic idea... but the reminder that God has his eye on each person, and to see them fall causes him pain we can't comprehend. It brings me comfort to know God sees each individual's suffering...

mart Contributor
mart
Posted

Yvonne - my heart goes out to you. What you are faced with now is the hardest thing there is. We are your friends and will grieve with you. I pray for strength for you and your family and join the others who've offered to help in any way they can.

Matilda Enthusiast
Matilda
Posted

Yvonne, I'm so sorry.

Matilda

cmom Contributor
cmom
Posted

I am also so very sorry. A few days ago, I also lost a friend and co-worker. She was 55 yrs old and had beaten breast cancer and her first round of leukemia. The leukemia had returned and complications from it took her life. It is difficult to walk past her room every day. My thoughts and prayers are with you.

SillyYakMom Rookie
SillyYakMom
Posted

So sorry for your loss. That would be hard. I have never had anything so painful, my dad has died once from a heart attack. Survived and then had another one ten years later, he is around, but it did put things into perspective. I hope you and your family will feel peace during this difficult time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Yvonne, my thoughts and prayers are with you. I have six brothers and a sister in Germany, and it would be very hard to lose even one of them.

Take care of yourself, and allow yourself to grieve, too. Trying to be strong for everybody else will backfire in the end otherwise and can lead to depression.

Ursula

Bonnie Explorer
Bonnie
Posted
  • Author

Thank you everyone for your kind words and prayers.

At the moment I'm just taking one day at a time. I haven't actually let go yet. The pain is almost physical right now. I want to scream but I am scared I won't stop. So I just keep pushing all the thoughts to the back of the mind.

I talk to my brother - well I try - but I start crying and can't stop. I can't actually believe I will never see him again in the flesh. Its incomprehendible. I wish I had been taken instead but that's obviously not in God's plan.

I'm taking sleeping pills which is not ideal but as I am sure you all know, the nights are the worst.

I wish it was 6 months down the line already as I know time will help.

I know nothing anyone says will really help, I have to go through the processes. My family will all be together for Christmas which will be a tough one this year.

Thanks again everybody for your support. I can't tell you how much it means and helps.

Thank you.

Yvonne

debmidge Rising Star
debmidge
Posted

Yvonne,

I have a baby brother who is 27 and I sincerely understand the hole losing a baby brother would bring in your life. My condolences to you and your family. It hurts to lose a piece of your heart.

Deb

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,772
    • Most Online (within 30 mins)
      7,748
    Brandi J
    Newest Member
    Brandi J
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
      Ibuprofen

      By trents · Posted

      Paracetamol, aka, acetaminophen (Tylenol) just does not do anything for me as far as pain relief. It does help with fevers, though.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.