Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shins?


oni

Recommended Posts

oni Newbie

Hi! I have a super itchy rash on my shin. Is this a normal place for DH flares? I have always gotten rashes, my derm calls it papular eczema (he also said with my history of celiac and seasonal allergies that I just have 'rashy tendencies' whatever that means) He's never tested any spots for DH, just prescribes a steroid cream. I'm celiac and my blood anti ttg titers were in normal ramge last time it was checked. I've had simiar feeling and looking rashes above my ear on my head, laterally on my hips, around my ankles, on my forearms, and frequently on my elbows. I have a steroid cream that I use sometimes when I get a flare but it seems like regardless as to steroid use they last a few weeks before they start going away. Lately the flares have been on my shin and when they kind of go away they leave a patch of skin that's a bit darker than the rest. This time, when it came back, it's still on my shin but moved a bit from the last spot.

Does this seem normal? Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

It typically affects the elbows, knees, buttocks, and upper back, but can appear on other areas as well. Here is more info:

www.celiac.com/articles/22891/1/Dermatitis-Herpetiformis-Diagnosing-and-Treating-the-Gluten-Rash/Page1.html

 

The biggest concern I would have is that your diet may include small amounts of gluten, which can trigger this. 

squirmingitch Veteran

I agree with Scott depending on how long and how strict you have been gluten free. Hallmarks are that dh appears on both sides of the body echoing each other. Celiacs have a tendency to rashes or skin issues regardless. Your derm would not be able to do a dh biopsy if you're gluten free --- it would turn up negative. Just like with the celiac blood panel, you must be eating a full gluten diet for 6 weeks to 2 months to have a dh biopsy. Here's the bottom line ~~~ you are celiac so there is no point in getting a dx of dh. A dx of dh is a dx of celiac. Either way, you must eat totally gluten free.

oni Newbie

I have been totally gluten-free for almost 3 years (it'll be 3 in Jan). I'm very diligent, so I don't think that's it.

They don't usually show up on both sides of my body, except for on my elbows.

Really, I'm just sick of using steroid creams. Maybe my dermatologist is right and I just get rashes more often than regular folks..

I just wish I knew how to prevent it.

  • 3 weeks later...
irish11 Apprentice

I have often wondered.....if my dad was celiac without knowing?  He had this unexplained rash on his shins...both sides...ever since I could remember as a child...i would ask my mom about it (it would come and go in intensity, not always the same) and the picture i can give you is this....it looked JUST like the ones i have seen here and elsewhere of people's stomachs....

to me it looked kinda orangy red-y in nature....tons of little ones close together.....like a concentrated type rash...but looks like the photos ive seen at these blogs....and NOW i wonder about what dad didnt know...my mom said she didnt know...it just kinda started 10 years or so after they were married (so maybe 30s, 40s)...and he ultimately died of heart disease..CHF.....but who knows?  his mom died , basically, from rheumatoid arthritis stuff....interesting....NOW i wonder about it....we all just thought it was ...whatever...something...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    2. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    3. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,476
    • Most Online (within 30 mins)
      7,748

    bwhntr1953
    Newest Member
    bwhntr1953
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.