Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello New Here

SillyYakMom

By SillyYakMom
in Coping with Celiac Disease

Recommended Posts

SillyYakMom Rookie
SillyYakMom
Posted

Hello, I will introduce myself. My name is Jessica and I am married with a 20 month old daughter Emily. I have been diagnosed with celiac since I was 11. There are 10 kids in my family, all who have celiac disease. My mom's dad died of Chrone's disease when he was 33 and my mom was 6. We have all had to deal with it and learn how to cook gluten-free so that we could when we were older. The youngest child has it worse than all of us. She can't have eggs, nuts or even a spec of gluten or she is covered in DH. We waited until Emily was a year old to give her any gluten. She has not shown any symptoms until recently. She gets hives on her face right after eating something high in gluten. It doesn't last long, but concerns me. We are thinking we should get her tested just in case.

The University of Maryland has mine and all my families blood for celiac testing and sends us all sorts of interesting stuff on it. Anyway, I look forward to getting to know all of you and supporting each other with dealing with celiac disease.

SillyYakMom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board :)

I am sure you will find the people here to be supportive and knowledgable. Feel free to contact me if you ever need anything.

Do you see Dr. Fassano at the University of MD? I live in MD...from your post I assume you do but I am not sure because so many people travel just to go there.

SillyYakMom Rookie
SillyYakMom
Posted
  • Author
Welcome to the board :)

I am sure you will find the people here to be supportive and knowledgable. Feel free to contact me if you ever need anything.

Do you see Dr. Fassano at the University of MD? I live in MD...from your post I assume you do but I am not sure because so many people travel just to go there.

<{POST_SNAPBACK}>

Actually I don't live in MD I live in UT, but they came to our house and took all of our blood and sent it there. Since this was many years ago and a newly known about disease they were willing to bend backwards for us, even swallow any cost.

Rusla Enthusiast
Rusla
Posted
Hello, I will introduce myself. My name is Jessica and I am married with a 20 month old daughter Emily. I have been diagnosed with celiac since I was 11. There are 10 kids in my family, all who have celiac disease. My mom's dad died of Chrone's disease when he was 33 and my mom was 6. We have all had to deal with it and learn how to cook gluten-free so that we could when we were older. The youngest child has it worse than all of us. She can't have eggs, nuts or even a spec of gluten or she is covered in DH. We waited until Emily was a year old to give her any gluten. She has not shown any symptoms until recently. She gets hives on her face right after eating something high in gluten. It doesn't last long, but concerns me. We are thinking we should get her tested just in case.

The University of Maryland has mine and all my families blood for celiac testing and sends us all sorts of interesting stuff on it. Anyway, I look forward to getting to know all of you and supporting each other with dealing with celiac disease.

SillyYakMom

<{POST_SNAPBACK}>

Welcome to the board, I have found it being helpful here. I hope you enjoy being here.

kevsmom Contributor
kevsmom
Posted

Welcome to the board, Jessica -

I hope that you will find everyone as helpful and supportive as I have.

Having dealt with this yourself for so many years, you probably have a lot that you can share with us.

It's amazing how far medical research has come. My father was diagnosed with Ulcerative Colitis 30 years ago, and became so sick he had to have an iliostomy. My brother and I were both diagnosed with Celiac Disease as adults. It really makes you think what the results would have been if my my father had been tested.

I have only been diagnosed for 6 months, and have learned so much from this board. I feel like everyone here are my friends, and they understand. :)

jenvan Collaborator
jenvan
Posted

hey there! welcome! this is a great place you've joined...

jerseyangel Proficient
jerseyangel
Posted

Hi and welcome! You will find that this is a caring and supportive place to come with questions or just to be around others who know what you're going through. I know it was a Godsend for me when I stumbled on it right after my diagnosis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,630
    • Most Online (within 30 mins)
      7,748
    Emma Gallagher
    Newest Member
    Emma Gallagher
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Frequent nausea after gluten-free diet

      By Wheatwacked · Posted

      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
    • Inkie
      Thee

      By Inkie · Posted

      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you, really.  I took a test for DGP-IgA and DGP-IgG. Effectively, it is not enough to discard Celiac Disease. I was consuming gluten until then, I only started gluten-free some days ago, when the symptoms became horrible and now I feel considerably better, which is a second confirmation that gluten is the main problem. It's been more than 4 years I have the same suspect, when I first thought gluten was causing me problems, I made a gluten-free diet for a year, I felt really good as never before. However, neither I or my parents were well informed about Celiac disease, so none of us tried to make further exams. My father suffer digestive problems and other members of my family as well. Unfortunately, no one have ever been tested for Celiac disease. I'll have to restart eating gluten in the next weeks, so I can make a serious blood test in laboratory, hopefully between two or three months.
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      As Scott said, in order for celiac disease testing to be valid, you need to be eating generous amounts of gluten on a regular basis for weeks or months before the blood draw. The blood tests are designed to detect antibodies that the immune system produces in response to the ingestion of gluten. It takes time for them to build up in the blood to detectable levels.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.