Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Why Did I Do It>>?

MycasMommy

By MycasMommy
in Food Intolerance & Leaky Gut

Recommended Posts

MycasMommy Enthusiast
MycasMommy
Posted

 I know why I did it but I regret it anyway. :unsure:  I was reading all the postives about how after some healing time, one might be able to re introduce corn or dairy or soy etc...

 

So I got an Udi's hamburger roll...knowing full well it is full of corn solids... and.. UGH!!!  :( :( :( :( :( :(   My tummy hurts SO BADLY, and I threw it all up in a gelatinous mess of mucous.

 

Well, at least I now know.  I am just really sad about it. I got a bit excited in the back part of my head about the possibility. I guess you all do not really need to know and I am just writing this as some form of relief.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

It takes time. But you didn't really do anything wrong (except maybe jump the gun.) I tried the things I used to be intolerant to several times before I met with success.

 

The good news is that your symptoms most likely won't last as long as a glutening would. I hope you're feeling better soon. :)

nvsmom Community Regular
nvsmom
Posted

You may be able to try again one day; just give it a year or so first.

 

Feel better.  :)

MycasMommy Enthusiast
MycasMommy
Posted
  • Author

Ah , I am not so sure.  It has already been over a year now. Maybe I will give it another go NEXT year HAH~!  That was really painful and I am glad it is over. All I was able to eat yesterday after that pain was a bowl of mashed potatoes. Its so strange to know that food can hurt a person so much. I am starting to think that I AM one of those super sensitive people. A glutening puts me down for 4-5 days. Corn and soy...or what I like to refer to as food poisoning, only puts me down for a day. It just puts me down so hard! I end up squirming around in pain on the sofa pleading for death. LOL *sighs*

bartfull Rising Star
bartfull
Posted

About eight months before I got corn back I was exposed to corn and literally thought I was going to die. My core body temp dropped, I was having a cross between muscle spasms and what felt like seizures. I wanted to call an ambulance but couldn't even make it to the phone. I was sure at that point that I would never be able to eat corn.

 

But now I can. As I said, it took three and a half years and in the meantime I ate whole foods. It was hard to accept but I chose to look at food as a necessary bodily function rather than as a pleasure. I had one treat that I could look forward to at the end of the day - an all natural ice cream sweetened with sugar instead of corn syrup. It got me through.

 

If you can find one thing that you really enjoy eating to reward yourself at the end of the day I'm sure it will help. And given enough time, you WILL get these other things back.

MycasMommy Enthusiast
MycasMommy
Posted
  • Author

Ah, You guys really make me feel much more positive about it all. Thank you so much. I needed that. I generally eat whole foods. My family is so used to it that if I try and feed the boyfriend a pre-made store meal because Ive no time to cook and he devours 3000+ calories a day.... haha he makes a scrunched up face, sticks his tongue out and says "EWWW what IS this?". He is the only one that can eat that way in this house though. He tried to go grain free with us a few months ago but he lost so much weight it was scary so there is now a special cabinet of rice, bread, and pasta and their own pots and knives etc, just for him.

 

I do not really need a reward. Sometimes I swing back a Naked Juice for dessert but ..really, it is not a thing.  I was just thinking of how much easier and cheaper life would be. If I could keep down Udi's OH WOW, no more bread making, no more paying $8 for Against the Grain baguettes, it would have just been easier. Ah well.  Corn though?  Corn is in EVERYTHING. GAH! I am so glad I have no candy addictions! Whole foods is almost the ONLY way to avoid corn. Same for soy. just.. GAH!

nvsmom Community Regular
nvsmom
Posted

LOL  GAH is the word!  ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


fran641 Contributor
fran641
Posted

Just began eliminating corn and dairy and it is challenging. I just read that at my age, 67 it will take longer to heal than a young person. I was undiagnosed for 30 years so my gut was a mess and it makes sense that healing will take a while. I was gluten-free for a few years then got off track and now have 6 months clear.

BlessedMommy Rising Star
BlessedMommy
Posted

OP, do you have access to Canyon Bakehouse bread? I think that brand is corn free.

MycasMommy Enthusiast
MycasMommy
Posted
  • Author

Just began eliminating corn and dairy and it is challenging. I just read that at my age, 67 it will take longer to heal than a young person. I was undiagnosed for 30 years so my gut was a mess and it makes sense that healing will take a while. I was gluten-free for a few years then got off track and now have 6 months clear.

 

I do not know that I exactly qualify as young. I will be turning 39 here very soon. I am going to give it another go next year though. I have my daughter going for a panel soon. I am 99% sure she has it too and I do not ever want her to end up in these shoes someday!

 

 

OP, do you have access to Canyon Bakehouse bread? I think that brand is corn free.

 

Ohhh Never heard of them.  I will check for it the next time I go to whole foods. I am guessing it will cost roughly the same as the against the grain gourmet though. Who knows!  I will look it up on google too as I cant do sorghum either. The only grain I seem to be alright with is rice.

BlessedMommy Rising Star
BlessedMommy
Posted

It depends on your area. When our grocery store had it, it was around $5 per loaf if I remember right.

MycasMommy Enthusiast
MycasMommy
Posted
  • Author

It depends on your area. When our grocery store had it, it was around $5 per loaf if I remember right.

 I just looked at their ingredients. lots of sorghum :( My body sucks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,330
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.