Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

16 Month Old-Doesn't Eat Enough


courtnihays

Recommended Posts

courtnihays Newbie

Let me start off by backtracking to when my son was around 9 months old and you are suppose to start introducing solid table foods. My son showed absolutely no interest in table foods, which surprised me since he has two older brothers around. We didn't push it because we just assumed he would eat when he was ready to, and our doctors were saying the same thing. By the time his first birthday came around I came to the realization I wasn't going to get any cute cake smashing pictures of my little man because there was no way he would eat any cake on his birthday. By this time I was starting to ask more questions to the doctors, "Why isn't my son eating solids?" "Why is it that when he does eat solid foods he can only keep a couple bites down and then will not eat anymore without throwing up?" "Why does my son have a descended belly when he eats so little?" By the time he was 13 months old we started realizing that he was have huge mood swings. He would go from laughing and playing to screaming as if he was in a lot of pain. He would contort his body and get really stiff then switch to a limp noodle. He looked like he was trying to crawl out of his skin from the discomfort. After having some xrays done that should a lot of air they sent us to a Pediatric GI specialist. Once we got there right off the bat they did blood work to test for celiacs which then came back normal. We have now done a upper gi and barium follow through which both came back normal. We are scheduled to do an upper endoscopy in a couple weeks as well as MAG 3 Renal Scan and a VCUG. (The last 2 tests are with his urologist. He has a dilated kidney and they want to check on it's functionality) My little boy doesn't eat enough and I'm getting so frustrated with not knowing how to fix this. I was hoping that someone may have some similar symptoms or suggestions on what may be wrong with my little guy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

The blood tests are not always reliable on one so young.  It can take a while for a baby to produce enough antibodies to show up in a blood test.  The endoscopy is a good place to look.  Hopefully, they will take at least 6 samples from the small intestine.

 

After the Celiac tests are done - and if they are all negative - you might want to look at the low FODMAP diet.  

 

Let me see if I can find an easy explanation for it and I will post it here.

 

 

Open Original Shared Link

 

(still looking for a better one)  :)

kareng Grand Master

Here is a good explanation.  FODMAPS are hard to digest foods.  In some people, they are even harder to digest.  I bet they are really hard for little ones that don't have much "pratice" at digesting food.  Wheat is a high FODMAP food - so many people feel better on a gluten free diet and think they have a gluten problem.  

 

Open Original Shared Link

StephanieL Enthusiast

Are your Dr's worried about your kiddos weight gain? Have they diagnosed him with FTT?  If they are not concerned then I would continue to offer whatever it is he will eat more often.  There are also formulas that are high calorie if you are worried about weight.   Also I have learned that as much as we say "it's not like the other kids" that every kid is so very different.  My oldest eats just enough (and he is on a special formula at 8 because of his weight).   His younger sister can eat him under the table all day, every day.  So if they are not worried he's FTT, I would continue doing what you are till you get all the testing done!

Good luck!!

courtnihays Newbie

They haven't seemed overly worried until recently when his food intake dropped so much. He hasn't really lost any weight so that's why they haven't been too aggressive to figure anything out. I feel like with him he seems to be full after only 2 bites of anything, but 2 bites isn't enough. 

StephanieL Enthusiast

It sounds like they are trying to rule out a lot and once they have figured that out, perhaps you can work on a feeding plan or something.  I know when my kiddos were little I would leave out a grazing station. I would fill a muffin tin with several things (carrots, grapes, granola nuggets, power balls) for them to pick up as they run past.  I'm sure you can find a lot of ideas online if that sounds like something that may be helpful.  They are SO busy at that age that asking them to stop to eat is crazy making for them and us (at least here in my house!)   Again, hugs. It's so hard to see our littles not doing as well as we wish they would be.

bartfull Rising Star

Definitely get all the testing done. But if they can't find anything you might try a gluten-free diet anyway. And this:

 

When I was a little kid I didn't eat much either. I was EXTREMELY thin. Not only was I full after a couple of bites, but it took me forever to eat them. My doctor had me on an iron supplement and I'm not sure if it was his idea or Mom's, but Mom told me it was "medicine to make me hungry". As a suggestible child who believed everything my mother told me, I suddenly found myself eating more. It still took me forever to eat though, so give him time. I remember taking over a half hour to eat half a sandwich, but I got it down.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brit1612 Apprentice

Sorry you are going through this.  It is so hard to not know what is going on with a little one, especially when they can't talk to you!

 

We are in the process of trying to figure out what is going on with my just turned two year old.  He had loose stools for almost a year before suddenly having constipation.  He tested postive for one of the celiac test, but has now suddenly came back negative.  So we still have no answers......

 

I can totally relate to the cake at the first b-day party.  At 4-6 months when they typically start eating baby jar food, he refused.....  The daycare kept saying "all the other ones are eating....."  like I was trying to keep him from eating!  At about 7 1/2 months he finally started eating jar food.  Then around 11 months or so I started to offer table food (things you think a little one would like), but he wanted NO part of it.  At his one year old birthday party I remember putting a cake in front of him to take a picture, but knowing that there was no way he would eat any of it!

 

After he finally did start eating solid foods the diarrhea began within maybe a month.  That's when the appetite shot through the roof, but he stopped growing.  For over 6 months he did not gain anything at all but was eating like crazy.  He could eat 5 or 6 chicken nuggets in one sitting (which I understand you probably wish yours was doing), but you could tell he was malnourished, the food was going right through him, and no matter how much he was eating he was still not gaining weight.

 

Sorry for the long response.....I know this doesn't help answer your questions, just wanted you to know that I can relate to what you are going through!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.