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Do The Challenge Symptoms Ever Ease Up? Just Need Support :(

littleburgy

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littleburgy Rookie
littleburgy
Posted

So I'm now on day 3 of my challenge and if I ever doubted I had a problem with gluten, I am not now.

 

I was only off the gluten for about 2 weeks and I'm a little surprised at how uncomfortable and crummy I feel. As I understand it, the longer you are off the gluten, the worse it is to go back on. 

 

I am having a hard time with this today. Do the symptoms ease up at all? Is this just body shock from getting the gluten back?  :(

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nvsmom Community Regular
nvsmom
Posted

:( unfortunately the symptoms don't ease up in most celiacs, we just get used to them. Feeling poorly becomes the new normal.

Hang in there ad don't over do it. One or two slices of bread, or the equivalent, is all you need. Try eating in the evening so your days aren't as bad.

Good luck!

ravenwoodglass Mentor
ravenwoodglass
Posted

Sorry you are having to go through this. If your symptoms get extremely bad do contact your doctor as they may cut the challenge short (especially if you had positive blood work) or the doctor may be able to give you some meds to get the symptoms bearable enough to do the full challenge. 

 

I was also only off gluten for about 2 weeks when I did my first challenge. My symptoms were severe enough that the doctor stopped the challenge, told me never to touch gluten again and referred me back to my GI doctor. The second challenge demanded by my GI caused an even more severe reaction than the first one did. That one had to be cut short also so I don't know if things would have leveled out if the challenge had been continued. 

littleburgy Rookie
littleburgy
Posted
  • Author

Is there a possibility I could cut this challenge shorter? I had been off gluten about 2 weeks. Prior to this I was eating it all the time. For example maybe just get the levels back up for a couple of weeks and then get a test?

nvsmom Community Regular
nvsmom
Posted

Some seem to think a challenge can be shortened if one eats more gluten (up to 4 slices of bread per day for 2 weeks for the biopsy or 6 weeks for the blood test) 

ravenwoodglass Mentor
ravenwoodglass
Posted

Is there a possibility I could cut this challenge shorter? I had been off gluten about 2 weeks. Prior to this I was eating it all the time. For example maybe just get the levels back up for a couple of weeks and then get a test?

If you were only off gluten for two weeks you should talk to your GI, or ask to speak to a nurse on the phone who will relay the info to the doctor, and ask this question of them.

I don't think you would be fully healed in just two weeks so the doctor may shorten the challenge...if they can fit you in for an endo quickly. Stress the severity of your symptoms and ask to be put on a cancelation list if you are able to get to the endo with little notice if your sceduled biopsy is a few weeks away. 

littleburgy Rookie
littleburgy
Posted
  • Author

I'm doing better today. It may be just getting used to the way I was before. I felt so wonderful the 2 weeks I was off gluten it was like: WOW! And suddenly.... UGH! NO!!!

 

Unfortunately I'm on the NHS in England and the GP may still want the blood test first before requesting any other testing. It wouldn't hurt me to ask, but they're a bit bureaucratic and step by step about diagnosis and spending money on it.

 

A lot of my symptoms are eczema related and last night I was flaring up very badly and was so uncomfortable. And I also was so bloated I looked like I was pregnant, and my face was bloating as well. My husband used the term "horror movie" to describe how fast I changed once I went on the gluten and I got kind of mad. :ph34r: He didn't mean to upset me but I guess it reminded him of people that change from normal to abnormal quickly. Ha ha. He suggested I contact the doctor if I still have trouble coping. Some abdominal TMI issues as well but I'm coping.

 

Mostly right now (after having boundless energy before) I just want to sleep. :)

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GFinDC Veteran
GFinDC
Posted

You could ask your doctor to suggest something to soothe your GI system.  Over here in the states I'd say try some Pepto Bismol but I don't know if they have Pepto or something like it in your neck of the woods.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
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      celiac, chocolate and alcohol

      By barb simkin · Posted

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    • trents
      celiac, chocolate and alcohol

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    • barb simkin
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      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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