Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Neuropathy Caused By Celiacs Disease, Or Gluten Sensitivity?


casson

Recommended Posts

casson Newbie

about a month ago, i took diphenhydramine,dxm,phenyleprine, acetomeniphen in a mixture for a first time, and experience drowsiness, and then i noticed i loss my taste and my smell, over the weeks i noticed pins and needles on left side of body, but frequently on my right side as well. The loss of sensations is also apparent, it includes loss of sensations of bowel movement(not knowing poop until its about to exit), full or empty bladder, full or empty stomach(dont know when im hungry or not, just the fact that i still can eat. Other loss of sensation is, unable to feel breath in the lungs, and in the nose as well. I did experienced dry. mouth initially, but it was from the diphenhydramine, i have no idea what this is, could this sogrens? I also have tachycardia. vision issue, the eyes keep trying to refocus on images, gets blurry often (i do have some near sightness, but this was so sudden), as well as sparks, floaters on peripheral vision, increased in floaters.
the pins and needles also are on my left side, but have move all around my face, and now is on the right side. It seems to wax and wane as well. 1 week i have the pins and needles, the next its gone or diminished, but then it comes back with a vengeance and with new areas. mY SENSE of smell and taste never returns to a 100%, 90-95 loss, to 50% loss some weeks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

This sounds like something you should speak to a doctor about immediately.  It does not sound like Celiac to me.  The sudden onset of these symptoms makes this seem like a very serious issue.

casson Newbie

This sounds like something you should speak to a doctor about immediately.  It does not sound like Celiac to me.  The sudden onset of these symptoms makes this seem like a very serious issue.

I already went to the doc twice, the day after i noted the loss of smell and taste i went to the ER, they couldnt find anything. a month later, 2 weeks ago i went to my MEDI-CAL PCP, she found i was vit d deficient, i requested to check for more vit deficiencies, but only will do b12, and CBC. I have heard celiacs neuropathy. and a specialist 2 months from now. Is the neuropathy in celiacs because it can cause diabetes. They are going to automatically dismiss an MRI, because i had one 2 years ago, for the cause of tinnitus, but it showed up normal, they will base it off of that. I did have a basic celiacs tests 2 years ago as well, gliadin, endomyosin, were normal. I also have IBS and AA which has been associated with celiacs, How long does nueropathy for celiacs take to happen. I dont know if this is a international forum, but on government health care, welfare plan, so i dont get to chose when and what doctors to see.

cyclinglady Grand Master

Have you researched the drug for side effects?

cyclinglady Grand Master

Are you confused with the fact that an artery near the heart is called the celiac artery? Do you have an aneurysm located there? I have not heard about a celiac disease and aneurysm link. There is a link between celiac disease and type 1 diabetes and not type 2.

Both celiac disease and uncontrolled diabetes can cause neuropathies but yours presented so quickly. We are not doctors on this forum. Just a group of folks trying to help those who must adhere to a gluten free diet.

I wish you well.

casson Newbie

My apoligies, i went to the PRE-DIAGNOSIS, forum, under assumption someone might have insight if this is possible of celiacs disease, i have heard neuropathy caused by it, i just want to know if its possible. I have have researched the side effects of the Diphenhydramine ,dextromorphan,aceto, phenyl, and it can cause tachycardia,jerking, but its not suppose to last this long. The only way people can get longer lasting side effect is, if they took massive amounts of it which i dint. When i said AA, i meant alopecia areata an autoimmune condition.

cyclinglady Grand Master

There are over 300 symptoms of celiac disease. Many overlap with other disorders. The best thing is to get a celiac blood panel and, if positive, then a biopsy of the intestinal tract via endoscopy.

Here is a link to the University of Chicago's celiac website that might be helpful.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

While this does not sound like the typical onset of Celiac disease-associated neuropathy, given your history of vitamin deficiencies and IBS, it would not hurt to get tested for Celiac disease.  However, in reference to the numbness and changing sides- that sounds like it is something different.  Have you had your neck examined and have the nerves checked or an MRI of that area?  Problems with the neck, nerves, or musculoskeletal system can cause those kinds of symptoms, and can be very dangerous if left untreated, so I would ask to have someone look at your neck and associated areas as well.

 

We are not doctors or experts in this area, so please get back to a doctor ASAP to have them look further into this.  If you do get tested for Celiac disease, do know that you have to be consuming gluten for the tests to be accurate, so don't start a gluten-free diet without talking to your doctor first.

casson Newbie

i also have alopecia areata. i dont think its coming from my neck region as my pins and needles, and my loss of internal stimuli(inability to feel hungry full, full or empty bladder, eye movement, bowel movement. I think it has something to do with the parietal lobe, the only thing i could thing of is soemthing systemic, like an injury, autoimmunedisease,drug induced(dph+dxm+aceto+phenyl) is another possibility. The neck region doesnt explain pins and needles and loss of smell and taste sensations on the facial region

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.