Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Printable For Daycare

Brit1612

Recommended Posts

Brit1612 Apprentice
Brit1612
Posted

I have been looking for something to print for my daycare.  Something that was not too wordy but that explained what celiac was and a little about cross contamination.  Everything I keep pulling up is too long, and not really what I am looking for.  Does anyone have a recourse that is good to give to schools (that is short enough for them to actually take the time to read).  It is really important that they understand considering my son is only two and cannot talk.  Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BlessedMommy Rising Star
BlessedMommy
Posted

Oh wow, I must've missed something, did your son end up getting DX'ed with celiac?

Brit1612 Apprentice
Brit1612
Posted
  • Author

Oh wow, I must've missed something, did your son end up getting DX'ed with celiac?

 

 

Yes and No.....I don't know :)!  We are still just as confused as ever, but we recently went to see an immunologist, to learn more about his low iGA.  I had no clue I would leave there being told "he is celiac with or without the test saying so; you need to go gluten free".  The immunologist seems great, and she happens to be celiac herself (as well as two of her kids).  She seems to believe that he is celiac and doesn't seem to mind the fact that none of the test are showing this to be true.

 

In fact, I started a thread as soon as we got back asking if I should trust the immunologist or the gastro????  The gastro says no celiac, the immun says yes!  I was so suprised by her reaction that when i got back to work the next day I plotted all of his heights and weights on a growth chart.  What I saw was pretty revealing.....  His height flat-lined each time gluten was introduced.  First at 13 months with table foods, and then once again when gluten was re-introduced during his gluten challenge.  Somehow I missed this because the second time he continued to gain weight.

 

We recently changed daycares and I am concerned about them being able to handle him going gluten free.  I am sending all of his food, but I am still worried.  It would be nice if there was some brief but informative hand-out that you could give to the daycare....

BlessedMommy Rising Star
BlessedMommy
Posted

If he has a DX, then you can get a 504 plan.

Brit1612 Apprentice
Brit1612
Posted
  • Author

Is there such a thing in daycare?  I know to do that once he is elementary school, but I was really just worried about the daycare setting.  I have been reading "letters to teachers" but they all seem like they are for a "big kid".  I was just looking for something short and informative to let them know about how serious they should take cross-contamination and about play-do etc. but I can't seem to find anything.  I may just write it myself!

cyclinglady Grand Master
cyclinglady
Posted

I guess you found this letter?

Open Original Shared Link

Brit1612 Apprentice
Brit1612
Posted
  • Author

I guess you found this letter?

Open Original Shared Link

I did, thanks.  It is good, just geared to school-agers who can speak up for themselves.  They will have to handle the food I send him, keep him from accidentally grabbing someone else's food, etc.  I guess I will just write one myself today.  I have already talked to his main teacher, but I know at daycare there are plenty of times that other people are in and out of the room....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I wear a "Road ID" bracelet/Velcro band when I run or bike. Has all the family phone numbers, name, etc. Could he wear one of those in addition to written notes and meetings?

Brit1612 Apprentice
Brit1612
Posted
  • Author

I wear a "Road ID" bracelet/Velcro band when I run or bike. Has all the family phone numbers, name, etc. Could he wear one of those in addition to written notes and meetings?

That's a great idea!  The only thing is he is a picky two year old and I'm not sure if he would keep it on or not?

cyclinglady Grand Master
cyclinglady
Posted

If I can get my Labrador dog to keep a bootie on her paw every single day, all day long, then you can do it with your son. It will take some training, but he will get used to it.

My lab is old and injured her pad on her front left paw last Fall. She was too old for surgery, so I kept it clean and wrapped with flannel and a dog boot. The pad healed but now it is growing weird (what is with these autoimmune disorders in our family?). So, she will wear this get-up for the rest of her life. She walks well in it and if it falls off she stops to tell us. She is as good as gold when we re wrap her paw. I get the lovely job of hand washing her flannel strips, ace bandages, and boots patched lovingly with duct tape.

My daughter has to wear her Road ID when she goes camping with Girl Scouts. It gives us peace-of-mind knowing that if she were unconscious, someone could call us fast.

A metal ID bracelet too might stay on better and can right into the tub or pool. Diabetics use them.

africanqueen99 Contributor
africanqueen99
Posted

My youngest goes to a Kids Morning Out program through our school district (public school) - so she has a 504.  It started when she was 2.5 so they had to think about the needs for a young child.  Maybe you could start that route - write up what you'd put in a 504 for his age and then meet with the staff.

 

* Same staff member always deals with his food.  Always served first.

* Seated at head of the table to put more space between him and others.

* All kids use place mats and they all learn boundaries to not touch other place mats.

* Food stays at the food tables ONLY and tables/floors are cleaned immediately after eating.

 

Then think about play-doh, sensory boxes, etc.

StephanieL Enthusiast
StephanieL
Posted

We have used Medic Alert since DS started preschool.  There is a special number to identify your kid in case of emergency they can make a call and get pertinent medical information.  It's also a pretty well known symbol so people know "Hey there is some kind of medical issue here" which is what you want them to know/get.  DS has had it removed from his wrist twice (he is now 8, got it when he was  3.5) both times for medical procedures only. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      36

      Blood results

      @Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies? A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers. What sort of food does she eat on the GFD? Many gluten free processed foods?
    2. knitty kitty
      - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Confused about HLA-DQ Celiac gene test result

      Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease. Just having one copy is sufficient to develop Celiac. Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line...
    3. Scott Adams
      - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      Pain in the right side of abdomen

      I can see why she’s worried, especially with a history of ovarian cysts, but it’s also very common for healing after a celiac diagnosis to take time. Even when someone is doing their best gluten-free, it can take months for inflammation to calm down, and bloating, abdominal pressure, and even back discomfort can flare during the adjustment period. The upc...
    4. Scott Adams
      - Scott Adams replied to science enthusiast Christi's topic in Coping with Celiac Disease
      2

      Sugar intolerance 10 years into gluten-free diet

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

      PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood. I think what I am trying to say is you are going through a lot all at once, it is not surprising that...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,465
    • Most Online (within 30 mins)
      7,748
    Dferares
    Newest Member
    Dferares
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Blood results

      By knitty kitty · Posted

      @Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies?   A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers.  What sort of food does she eat on the GFD?  Many gluten free processed foods?
    • knitty kitty
      Confused about HLA-DQ Celiac gene test result

      By knitty kitty · Posted

      Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease.  Just having one copy is sufficient to develop Celiac.   Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening "...importantly, a comparable risk of celiac disease development was present in individuals carrying a double dose of HLA-DQB1*02 alleles, no matter the paired HLA-DQA1 alleles." And... "If we could consider a mass screening looking for the carrier status of HLA-DQB1*02 only, we may identify 95% of celiac disease predisposed patients and, concomitantly, rule out (with no more than a 5% error) the lifetime risk of disease in 60%-70% of the general population: These non-predisposed individuals should never receive the serological screening, unless any consistent clinical symptoms appear at some point of the existence without any other explanation." https://pmc.ncbi.nlm.nih.gov/articles/PMC7109277/ Classical celiac disease is more frequent with a double dose of HLA-DQB1*02: A systematic review with meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6375622/ Also, the Malabsorption of Celiac can cause low B vitamins (and minerals) that are related to poor oral health. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/ Best wishes for your Celiac journey!
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      I can see why she’s worried, especially with a history of ovarian cysts, but it’s also very common for healing after a celiac diagnosis to take time. Even when someone is doing their best gluten-free, it can take months for inflammation to calm down, and bloating, abdominal pressure, and even back discomfort can flare during the adjustment period. The upcoming dietitian visit is a great step, since hidden gluten exposure or nutritional gaps can sometimes contribute to ongoing symptoms. That said, if the pain is persistent, worsening, or feels similar to her prior cyst symptoms, it’s reasonable to mention that to her doctor for peace of mind. It’s not uncommon for multiple things to overlap, so checking both GI and gynecologic angles can help rule things out and reduce anxiety while her body continues healing. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.    
    • Scott Adams
      Sugar intolerance 10 years into gluten-free diet

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • cristiana
      Insomnia help

      By cristiana · Posted

      PS... I help care for someone in their 90s, albeit part time, but have just been in hospital for a while with him and it has reminded me, even for someone in better physical shape, which I am now, thankfully, it can be very tough on one's health/sleep/mood.  I think what I am trying to say is you are going through a lot all at once, it is not surprising that you are not feeling 100 per cent. Even if we love our relative to bits, and they love us, they often can't understand that we too have lives, and need to keep our houses, families and jobs in running order. Something has to give, but it's often the carer!  When an elderly loved one is resistant to change, it makes things even more exhausting.  Often it has taken a crisis for me to be able to introduce the help that has actually been needed for so long.  It sounds as if you are doing an amazing job but can you get any support from any carers associations or other groups where you live, which might help?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.