Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Printable For Daycare


Brit1612

Recommended Posts

Brit1612 Apprentice

I have been looking for something to print for my daycare.  Something that was not too wordy but that explained what celiac was and a little about cross contamination.  Everything I keep pulling up is too long, and not really what I am looking for.  Does anyone have a recourse that is good to give to schools (that is short enough for them to actually take the time to read).  It is really important that they understand considering my son is only two and cannot talk.  Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

Oh wow, I must've missed something, did your son end up getting DX'ed with celiac?

Brit1612 Apprentice

Oh wow, I must've missed something, did your son end up getting DX'ed with celiac?

 

 

Yes and No.....I don't know :)!  We are still just as confused as ever, but we recently went to see an immunologist, to learn more about his low iGA.  I had no clue I would leave there being told "he is celiac with or without the test saying so; you need to go gluten free".  The immunologist seems great, and she happens to be celiac herself (as well as two of her kids).  She seems to believe that he is celiac and doesn't seem to mind the fact that none of the test are showing this to be true.

 

In fact, I started a thread as soon as we got back asking if I should trust the immunologist or the gastro????  The gastro says no celiac, the immun says yes!  I was so suprised by her reaction that when i got back to work the next day I plotted all of his heights and weights on a growth chart.  What I saw was pretty revealing.....  His height flat-lined each time gluten was introduced.  First at 13 months with table foods, and then once again when gluten was re-introduced during his gluten challenge.  Somehow I missed this because the second time he continued to gain weight.

 

We recently changed daycares and I am concerned about them being able to handle him going gluten free.  I am sending all of his food, but I am still worried.  It would be nice if there was some brief but informative hand-out that you could give to the daycare....

BlessedMommy Rising Star

If he has a DX, then you can get a 504 plan.

Brit1612 Apprentice

Is there such a thing in daycare?  I know to do that once he is elementary school, but I was really just worried about the daycare setting.  I have been reading "letters to teachers" but they all seem like they are for a "big kid".  I was just looking for something short and informative to let them know about how serious they should take cross-contamination and about play-do etc. but I can't seem to find anything.  I may just write it myself!

cyclinglady Grand Master

I guess you found this letter?

Open Original Shared Link

Brit1612 Apprentice

I guess you found this letter?

Open Original Shared Link

I did, thanks.  It is good, just geared to school-agers who can speak up for themselves.  They will have to handle the food I send him, keep him from accidentally grabbing someone else's food, etc.  I guess I will just write one myself today.  I have already talked to his main teacher, but I know at daycare there are plenty of times that other people are in and out of the room....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I wear a "Road ID" bracelet/Velcro band when I run or bike. Has all the family phone numbers, name, etc. Could he wear one of those in addition to written notes and meetings?

Brit1612 Apprentice

I wear a "Road ID" bracelet/Velcro band when I run or bike. Has all the family phone numbers, name, etc. Could he wear one of those in addition to written notes and meetings?

That's a great idea!  The only thing is he is a picky two year old and I'm not sure if he would keep it on or not?

cyclinglady Grand Master

If I can get my Labrador dog to keep a bootie on her paw every single day, all day long, then you can do it with your son. It will take some training, but he will get used to it.

My lab is old and injured her pad on her front left paw last Fall. She was too old for surgery, so I kept it clean and wrapped with flannel and a dog boot. The pad healed but now it is growing weird (what is with these autoimmune disorders in our family?). So, she will wear this get-up for the rest of her life. She walks well in it and if it falls off she stops to tell us. She is as good as gold when we re wrap her paw. I get the lovely job of hand washing her flannel strips, ace bandages, and boots patched lovingly with duct tape.

My daughter has to wear her Road ID when she goes camping with Girl Scouts. It gives us peace-of-mind knowing that if she were unconscious, someone could call us fast.

A metal ID bracelet too might stay on better and can right into the tub or pool. Diabetics use them.

africanqueen99 Contributor

My youngest goes to a Kids Morning Out program through our school district (public school) - so she has a 504.  It started when she was 2.5 so they had to think about the needs for a young child.  Maybe you could start that route - write up what you'd put in a 504 for his age and then meet with the staff.

 

* Same staff member always deals with his food.  Always served first.

* Seated at head of the table to put more space between him and others.

* All kids use place mats and they all learn boundaries to not touch other place mats.

* Food stays at the food tables ONLY and tables/floors are cleaned immediately after eating.

 

Then think about play-doh, sensory boxes, etc.

StephanieL Enthusiast

We have used Medic Alert since DS started preschool.  There is a special number to identify your kid in case of emergency they can make a call and get pertinent medical information.  It's also a pretty well known symbol so people know "Hey there is some kind of medical issue here" which is what you want them to know/get.  DS has had it removed from his wrist twice (he is now 8, got it when he was  3.5) both times for medical procedures only. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,246
    • Most Online (within 30 mins)
      7,748

    Jbamf8791
    Newest Member
    Jbamf8791
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
    • Scott Adams
      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
×
×
  • Create New...