Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prep For Endoscopy And Colonoscopy For 5 Yr Old


Jackyvh

Recommended Posts

Jackyvh Newbie

Hello everyone!

 

So my daughter has her appointment for her endoscope next week, glad to finally be able to get a definitive answer on wether or not she has Celiacs. Though from all your the info I got from you guys here her blood test results makes it pretty clear she does.

 

Turns out she also has to have a colonoscopy for a suspected polyp:(  I've been told it is safe and not too bad, but that the prep is the hardest part. I've read gummy bears are okay, but have't got the prep instructions to see if they are on there. :) We will be in a hotel and my girls are hoping to be able to swim the day of the prep, I'm hoping she will have the chance between bathroom breaks... Any one have any advice and/or experience with their child having a colonoscopy? 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Read the prep directions. Usually there is a day of only liquids and the laxative part starts about 5 pm. You don't want someone with diarrhea swimming. That's a real health issue for all the other people who might use the pool.

murphy203 Rookie

It doesn't start until the afternoon, at least in my case, which started with MoM BEFORE the rest.  Poor kid... best wishes to you both.

ravenwoodglass Mentor

There will be little to no 'bathroom breaks' in most cases.  Do bring some books or a handheld game of some sort that she can take to the bathroom with her as she will be in there for most of the evening after the clean out begins. If your room has a TV that she can see from the bathroom that might help. 

As someone who works at a hotel do ask staff for old towels that can just be thrown away to cover any chair she might sit in and to place under her on the bed if she needs to lay down or even on the bathroom floor.  At her age if she moves out of the bathroom between bouts an accident may happen.  I made myself a pallet on the bathroom floor to use during my preps that made it easier to rest between sits.

 Ask the pharmacist if you can mix something with the prep to make it more palatable for her if she is getting one of the ones you drink. 

I hope everything goes smoothly for her.

cyclinglady Grand Master

Make sure that she remains hydrated and that the prep drugs are geared for her weight. A soft toilet seat is something that I recall wishing for......

Oh, I do not know about Gummies, but jello must be green or yellow. No red colors. I lived on that and gluten-free chicken broth! Not sure how much energy she will have to swim in the morning. She is going to be hungry. Karen is right that once the laxatives are given -- no pool (per state health laws).

Jackyvh Newbie

Bummer, I was hoping the poop situation wouldn't be an all day thing:( I will definitely plan on keeping her out of the water. I will also be bringing my own towels and blankets just in case of an accident... 

 

Just got her prep instructions in the mail and it looks like liquids will begin at 5:00 pm two days before the procedure with 4 dozes of miralax and ex-lax square, then the same the next morning, sounds crappy if you ask me! I'v heard the adult version is way worse though, with some sort of gross tasting drink..

 

Thanks for the great advice you guys! I can see this forum is a wealth of knowledge of for all of us and am super grateful.

ravenwoodglass Mentor

Bummer, I was hoping the poop situation wouldn't be an all day thing:( I will definitely plan on keeping her out of the water. I will also be bringing my own towels and blankets just in case of an accident... 

 

Just got her prep instructions in the mail and it looks like liquids will begin at 5:00 pm two days before the procedure with 4 dozes of miralax and ex-lax square, then the same the next morning, sounds crappy if you ask me! I'v heard the adult version is way worse though, with some sort of gross tasting drink..

 

Thanks for the great advice you guys! I can see this forum is a wealth of knowledge of for all of us and am super grateful.

So glad she doesn't have to drink that awful drink. Sounds like the hardest part of her prep may be the liquid diet for 2 days before. That would have been a tough one for my kids at that age.  Hope all goes well. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.