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Finally, A Doc Who Is Willing To Test!

pikkulintu

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pikkulintu Rookie
pikkulintu
Posted

Had an appointment with my doc this morning for an unrelated issue. Mentioned to her that the rash that I've had for approx 2 months and had shown her a week prior (which I believe is DH) has spread and gotten worse. I wanted to ask for a celiac blood panel test and was fully prepared to fight for it as from what I've read, doctors can be somewhat reluctant to test.

 

To my suprise, after asking me a few questions, she recommended I be screened for celiac without me even asking! Finally! This was the third doctor I had showed this rash to and the first who asked if I had ever been diagnosed with a wheat allergy after looking at it. She's given me a referral for a dermatologist who she said would take a biopsy and hopefully provide some answers. Find out the blood test results in a few days or so and dermo appointment is in a week.

 

First hurdle in getting a blood test is done! Now to tackle the biopsy and hope it's done correctly.

 

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cyclinglady Grand Master
cyclinglady
Posted

Yippee!   :D

mamaw Community Regular
mamaw
Posted

GREAT......  just make  sure  they understand  how  to do  the  correct   biopsy.....clean  skin next to a  fresh lesion.....Glad  things  are  brighter  with  finding  a  doc....

dancingmama Newbie
dancingmama
Posted

Glad you are getting tested and they are taking you seriously! 

pikkulintu Rookie
pikkulintu
Posted
  • Author

Thanks for the support guys - much appreciated! :D

squirmingitch Veteran
squirmingitch
Posted

Do NOT stop eating gluten until ALL testing is done & you have the results in your hot little hands okay? That includes the dh biopsy. Find out if the GI will want to do an endoscopy -- if they will want to do that then you have to STAY ON gluten until that's done.

Just FYI, 60% of those with dh test negative on the blood panel & have fewer positives on the endoscopy. Make SURE the GI takes 6 biopsies on an endoscopy not just 2 or 3 or 4.

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      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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