Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Inflammation And Bronchitis

girlulu

Recommended Posts

girlulu Newbie
girlulu
Posted

I have been gluten-free since July of last year. Unfortunately in January during business travel I was glutened 3 times and got very sick. (you can't trust restaurants). I recently had a colonoscopy and still have severe inflammation in my ileum. I am hoping in a couple of years that goes away but I understand - because I am almost 51 and I didn't get diagnosed until recently so I have to undo decades of damage.

 

Last year just as I gave up Gluten I got bronchitis/asthma and it lasted 5 months. I was on steroids for 5 weeks. I have been very healthy since that ended, November 14, 2014. I have not had my fatigue and I've been exercising and I thought my only problem was to fix my ileum by continuing to eat clean (Paleo). I even cut out nightshades. I take curcumin and anti-inflammatory teas.

 

Until Friday night when all of a sudden I lost my voice, then I woke up with extreme fatigue and it was hard to breathe. It was bronchitis again. I have not been glutened since January. I did do a VERY intense workout Friday. Bronchitis got worse and worse and I am now on a 6 day steroid pack and it's working thankfully but I cannot figure out WHY this happened. There was no fever. This was just an inflammatory break out of some sort.

 

Does inflammation travel from the gut even though there's no gluten? I do know my ileum is severly inflamed but I do NOT have any digestive issues whatsoever (unless I eat gluten which was in January). If I didn't have that colonoscopy last month I would never have known I had inflammation in my ileum. I just think there's a link somehow between the ileum inflammation and the sudden inflammation in my upper respiratory. I wonder if I need to not workout so hard?

 

Anyone have any feedback for me? Much appreciated!!!!

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

I doubt that your bronchitis is related to celiac at all.

 

I had a long history of bronchitis as a child and young adult. I would get it several times a year. As I grew older it stopped - long before I developed celiac and went gluten-free. I believe bronchitis is much like pneumonia in that if you get it, for the next few years you are more likely to get it again.

girlulu Newbie
girlulu
Posted
  • Author

Thanks so much.

 

That makes sense actually.

GF Lover Rising Star
GF Lover
Posted

I agree with Barty.  Once you get it you are prone to more episodes.  Try not to let yourself get run down and stressed out as that can lower your immune system and bring on another episode.

 

Colleen

  • 3 weeks later...
BoJonJovi Newbie
BoJonJovi
Posted

I have pretty bad COPD and have never smoked. I was also diagnosed at 51 after I went in and told the gastro guy I wanted an endoscope with my colonoscopy and that I would pay since I had no referral. He knew I had Celiac immediately following the endo then tests and biopsy confirmed it.I had never even heard of Celiac until then. I had been go to a immunology doctor for three decades. Anyway, long way around I think Celiac caused my unexplained COPD. If you have not already, might want to make sure it is bronchitis as emphysema is similar in symptoms. 

girlulu Newbie
girlulu
Posted
  • Author

Thanks BJJ....I will certainly keep that in mind. Since I wrote that post I've had two more asthma or bronchitis episodes after a tough workout. My dr. said it's exercise induced and will now use an inhaler before exercise. I don't have the other symptoms of COPD (cough, etc) but I will pay close attention. Thanks for the reply and I wish you the best.

 

Karen

cyclinglady Grand Master
cyclinglady
Posted

Thanks BJJ....I will certainly keep that in mind. Since I wrote that post I've had two more asthma or bronchitis episodes after a tough workout. My dr. said it's exercise induced and will now use an inhaler before exercise. I don't have the other symptoms of COPD (cough, etc) but I will pay close attention. Thanks for the reply and I wish you the best.

 

Karen

I will chime in and offer my opinion.....

I love to exercise. You can tell by my name that I love bike riding. I swim, hike, and run too! Plus, I teach exercise and swim classes. But, I really slowed down after my diagnosis. A couple of vertebrae fractures (doing nothing) and severe anemia brought me to my knees. I was forced to do gentle exercises while my fractures healed. At the same time, I was helping my gut to heal as well. Now, I am back to normal (or pretty darn close!)

I encourage you to slow down and allow for full healing. That is just my opinion, but it worked for me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


girlulu Newbie
girlulu
Posted
  • Author

I know, CyclingLady...you are probably right. But just know that I have been working out for 3.5 months and feeling fantastic. Then a few weeks ago this started happening. I need to rest and take walks when I feel good and I'll ease back in over time. Grrrrrrr...thanks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748
    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.