Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Labs Coming In,rbc Etc Off...have Questions

tammyinwv

Recommended Posts

tammyinwv Rookie
tammyinwv
Posted

Just did labs.yesterday morning. The doc is also supposed to check celiac as well but they arent in yet. I have some curious labs that have me concerned. I am reading there may be some coorelation with celiac, but I am not sure I understand. I figure the doc will call when everything is back. I have been vegan and trying to eliminate glutin since February, but I have found a few  mistakes after the fact

LAB-------------------------------------------NORMS---------------------------------------My results

RBC.................................................3.63 -  4.92 ........................................... 5.05       high

HGB ................................................11.2 -15.2 ..............................................15.5       high

hct.....................................................33.5 -  45.2............................................45.3       high

mono abs .....................................       .300  -  1,000 ..................................    0.202    low

vit B 12 ..............................................  200 - 1000  .....................................    804    normal but have read this test may not be accurate if                     shows normal

tsh ......................................................  0.350 - 5,000  ...............................       2.031   normal

thyroxine free T4 ...............................    0.70 - 1.25  ..................................         1.01   normal

 

Any ideas on these? I have read that the low monocytes could go along with low folic aid and b12 absorption, and possibly celiac, or polycythemia vera with the elevated labs. 

tammy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

are you a menstruating female? post menopausal?   any family hx of hemochromatosis ?

tammyinwv Rookie
tammyinwv
Posted
  • Author

are you a menstruating female? post menopausal?   any family hx of hemochromatosis ?

i am 54 yo female, no history , partial hysterectomy about 20 yrs ago. So no periods. They had just about stopped at the time. I have had hot flashes for yrs possibly indicating menopause. I have never been anemic. I have fibromyalgia, insulin resistance/metabolic syndrome. Lot of fatigue, with muscle pain due to fibro, but increasing joint pains. Hair loss, bloating when eating certain foods, constipation, used to have huge problem of heartburn and refulx, occuring several times a day and couple times during the night. reflux so bad I inhaled it a few times and could not breath. None since ging vegan and trying to cut out gluten.

kareng Grand Master
kareng
Posted

Let's see what your iron and ferritin are. Sometimes, if we are anemic, we actually make extra red blood cells to try to compensate.

ravenwoodglass Mentor
ravenwoodglass
Posted

Please be aware that if you are gluten free or gluten light that can give you a false negative on celiac testing. 

tammyinwv Rookie
tammyinwv
Posted
  • Author

Please be aware that if you are gluten free or gluten light that can give you a false negative on celiac testing. 

At most only gluten free (which I know in past week I hadnt) since late feb

ravenwoodglass Mentor
ravenwoodglass
Posted

At most only gluten free (which I know in past week I hadnt) since late feb

That is long enough to impact your tests. If your celiac tests come back negative do a gluten challenge for 6 to 8 weeks and then retest. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Raven is right about the celiac testing!

tammyinwv Rookie
tammyinwv
Posted
  • Author

Raven is right about the celiac testing!

I thought I read on a link someone posted here that gluten-free up to  6 mo  would be OK. I may be wrong. My memory isnt very good. I truly doubt I have been gluten-free for more than a few days at a time. Because as I was learning more and reading more labels and checking restaurant foods more (after the fact) I am finding I made quite a few mistakes. Sometimes I knew by the time I finished.other times not.  I guess I will have to wait till the celiac test come in. I have read today that some people develop  elevated RBC etc after removing gluten. Just too confusing.

nvsmom Community Regular
nvsmom
Posted

Most celiacs appear to have normal test results after 6 months gluten-free.  Some take a year or so, but they are the minority.

jennp1313 Newbie
jennp1313
Posted

That is long enough to impact your tests. If your celiac tests come back negative do a gluten challenge for 6 to 8 weeks and then retest. 

Hi there. How much gluten must a person consume per day for the gluten challenge? I am hoping to get my test done in about a month, but have been gluten-light for several months. I'll be paying out-of-pocket, so I want to make sure I properly prepare my body for the test. Thank you so much for any info you can offer :-) 

 

BTW, I also have been "diagnosed" with Fibromyalgia, IBS, Anxiety, etc. for many years. Seems many potential Celiacs aren't offered the proper tests. I wish I'd known to ask for a test sooner!

cyclinglady Grand Master
cyclinglady
Posted

Hi there. How much gluten must a person consume per day for the gluten challenge? I am hoping to get my test done in about a month, but have been gluten-light for several months. I'll be paying out-of-pocket, so I want to make sure I properly prepare my body for the test. Thank you so much for any info you can offer :-) 

 

BTW, I also have been "diagnosed" with Fibromyalgia, IBS, Anxiety, etc. for many years. Seems many potential Celiacs aren't offered the proper tests. I wish I'd known to ask for a test sooner!

Welcome!

Here is a link to the University of Chicago's celiac website. I recommend reading all their posted information to bring you up to speed and to insure your doctor knows what he/she is doing!

Open Original Shared Link

jennp1313 Newbie
jennp1313
Posted

Welcome!

Here is a link to the University of Chicago's celiac website. I recommend reading all their posted information to bring you up to speed and to insure your doctor knows what he/she is doing!

Open Original Shared Link

Thank you, @cyclinglady! That was very helpful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,705
    • Most Online (within 30 mins)
      7,748
    Lyana Chahine
    Newest Member
    Lyana Chahine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Blood results

      By Wends · Posted

      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.