Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice Please


Kwalsh328

Recommended Posts

Kwalsh328 Newbie

Hi everyone! I have been diagnosed for a little under a year now. To be honest I am really struggling to stay strictly gluten free even with some of my side effects worsening. I think a big issue is my boyfriend who I've lived with for awhile doesn't seem all that supportive and talks me into eating things I shouldn't, although I am partially at fault I was wondering if anyone had any advice on family support or how I can make a change to stick to it because I am so tired and tired of being sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Hi everyone! I have been diagnosed for a little under a year now. To be honest I am really struggling to stay strictly gluten free even with some of my side effects worsening. I think a big issue is my boyfriend who I've lived with for awhile doesn't seem all that supportive and talks me into eating things I shouldn't, although I am partially at fault I was wondering if anyone had any advice on family support or how I can make a change to stick to it because I am so tired and tired of being sick.

 

 

I am going to assume that this boyfriend is a good guy and wants the best for you.  

 

So.... assuming he is a good guy, does he not understand that Celaic disease is a very real and serious disease?  That the only way to treat it is with diet?  Maybe show him some info from doctors?  Like this:

 

Open Original Shared Link

 

Does he understand that untreated Celiac can lead to things like osteoporosis, infertility, malnutrition, etc?

 

Open Original Shared Link

 

Can he not see how bad you feel and how feeling sick doesn't make you much fun to live with or sleep with?   ;)

 

If he knows all of this - and still wants you to be sick, you need to re-evaluate this relationship.  

bartfull Rising Star

No, you are not partially at fault. You are completely at fault. Sorry to sound harsh, and believe me, I'm not saying your boyfriend is right. He should be ashamed of himself for trying to tempt you into ruining your health. I would dump anyone who didn't care about me enough to want me to be healthy.

 

BUT - unless he is holding you down and putting gluten foods in your mouth, you and only you can control what you eat. Take charge! Tell him to knock it off and that if he truly loves you he should HELP you, not try to harm you.

Jays911 Contributor

I am lucky. My wife went gluten-free to support me (and ended up feeling much better). But it is your life. You need to be resolute. And you can find safe food and restaurants. This ain't rocket science. God bless.

cristiana Veteran

I got really sick before I was diagnosed with celiac disease two years ago.   I never want to feel like that again!   That has made me so very resolute - unlike a friend of mine, who takes quite a lot of risks, but she was never as ill as I was.  I worry about her as I feel that she is courting danger with her lax attitude.   I do wonder if I had never been as badly affected, whether I would be the same.  

 

It sounds like you really have come to that point where you are fed up with feeling so bad you are prepared to leave gluten behind forever.   That's great!  That will empower you to take a stand.  It is important that in the house you have a good stock of gluten-free food so that if your boyfriend tries to get you to eat something, you won't feel tempted.  Hopefully once he has read the material that kareng has suggested he will understand better.

 

You can do it!

Pegleg84 Collaborator

Bartful is right, you have to take charge of your own decisions and your own health. However, if you and your man are going to be able to coexist in the long term, he has to support your need to have a safe home.

 

so: take over the kitchen. Clean it from top to bottom (make your man help out too), make a separate area for gluteny foods where they won't get in your way. Buy a new toaster, get separate pans and things, or switch to stainless steel. Make sure to label jars of stuff that could be cross-contaminated. Try to get him to eat gluten-free stuff rather than the other way around. Make gluten the "special" food, and yours just normal food. Eat more whole foods (veg, meat, etc) that don't have any flour anyway. Find a gluten-free treat you both like. Oh, and don't forget teeth-brushing before kisses.

If he can't handle that, then it ain't going to work out. Your health is more important!

fran641 Contributor

Good luck Kwalsh. It isn't easy living with a non supportive partner. Only you get sick when you eat gluten so he doesn't get it obviously. My DH is supportive and sometimes asks me if I want xy or z unsafe food. I have a history of being on again, off again since 2008 so he just asks. I am fortunate and I mean this that I have progressed to extreme pain for days when I have been accidentally glutened in the last year. Pain is a great motivator. Hope this works out so you can avoid some of the terrible side effects of gluten in your diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nikki2777 Community Regular

Give him some material to read so he understands how seriously you have to take it.  If he can't come around after reading that (and I don't mean living gluten-free at home, but just not pushing things on you, and being generally careful), then you can assume that he doesn't make your health a priority.

Zebra007 Contributor

Yup, your boyfriend is definitely uninformed regarding your illness, or it could be that he wants to pretend it's not that serious, it can also of course be an inconvenience for  some partners, that said, you have to take responsibility, you are allowing yourself to become even sicker, and I am not just talking about being glutened, I am referring to other autoimmune conditions that can all of a sudden pop up out of the blue!  

 

Sit him down and tell him!

 

Best of luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.