Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dia. . . . For 5 Days


JaneWhoLovesRain

Recommended Posts

JaneWhoLovesRain Enthusiast

UGH!!  I am now on day 5 of diarrhea and am getting worried.  Having dermatitris herpetiformis my GI symptoms with celiac have always been minimal.  I accidentally got glutened earlier this year (didn't realize baking spray had wheat and was eating muffins in which the tin had been sprayed with this for about 3 weeks) and my rash which had been gone for 3 years came back, my tum-tum was okay though, no problems there.  So I doubt this has anything to do with being gluttened but I wanted to ask if anyone has any insight or idea what this could be.

 

Six weeks ago I started going to a chiropractor for something unrelated and he put me on this new diet, basically no carbs or grains, no sugar, no dairy, no nightshades, no chocolate and lots of fruits and veggies.  Meat and chicken are allowed as are nuts and eggs.  So for the last six weeks I've been eating a big salad of raw kale, spinach, carrots, cucumbers every day and in general have upped my fruits and other veggies.  If the diarrhea started right after the diet I would say aha, but for the first 5 weeks I ate this diet with no problem at all.  It wasn't until six weeks that this all started.  I have  no fever and my appetite is okay but I feel exhausted and achy, no energy at all.  And I'm very worried, afraid I will never be well or that it is something serious.

 

I have to say I'm not real happy with this diet and the last 2 days I have been eating foods that are on the no list (granola, tomatos, potatos but not a lot of these).  This doesn't have any connection with the diarrhea cause that started several days before I strayed.  I was on the thin side to start with and have now lost about 10 pounds and am seeing bones stick out that I never saw before - I don't like this at all.  Do you think there could be any connection between the diet and the lousy intestines after having no problems for 5 weeks?

 

Oh, one more thing.  My magnesium was on the low side in January so I've been taking supplements for that.  A couple weeks ago I had my blood retested and my levels are back up so I stopped taking the supplements last week, and it was a couple days after that the diarrhea started.  I only mention this because it is kind of unusual.  Usually people get di when they start magnesium, but not me!  I get it when I stop.

 

Jane


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Sorry, you are sick!

Maybe a parasite or bacteria from all those raw veggies? A virus?

I can perhaps see why you have lost weight. Are you getting enough fat? I am on a lower carb diet (get my carbs from veggies), but eat lots of fat. I choose the fattest meats, eat skin, lots of coconut oil, olive oil, avocado, and butter. Keeps my blood sugar in check.

I eat kale and spinich cooked due many food recalls on some of the raw products. I consume them raw from just my garden.

I hope this helps. I am kind of at a loss.

nvsmom Community Regular

I hope you feel better soon.

 

Cooked veggies might be easier on your gut - it can take some time to be able to handle raw veggies in large amounts.

 

Nuts tend to get things moving for me.  If you greatly increased your nut intake, that could contribute.

 

darn gluten.... 

JaneWhoLovesRain Enthusiast

Now day 6 :(  I thought I was better, I felt better and did  lot of gardening this morning, then came in to eat lunch and suddenly felt sick and the di came back. Very distressed over this.

 

The thought of some food carrying germ has come to my mind many times but I am super ocd about washing my fruits and veggies before eating, always worrying about getting listeria or e-coli or any of those things.  I even wash pre-washed stuff, I even wash oranges!!  And I won't nibble on a grape in the store to see how sweet or sour it is because I know they aren't washed.  So I've  kind of put the idea of of anything along this line aside, not to mention I haven't heard of any recent food borne illnesses.

 

I know my diet can be rough on the intestines but for 5 weeks I had no problem at all, it wasn't until week 6 that I started to feel unwell.  That is what is so confusing about it.  If there was even the possibility of having cross contamination I would consider that but with a diet consisting mostly of veggies and fruits I don't know where the problem could be.  I have a gluten test kit and tested my pumpkin seeds and Planter's mixed nuts and they both turned up negative.  I have one more test left and I'd try it on something but I have no idea what to try it on.  Orange juice??

 

I think I'll head over to the emergent care, hopefully they won't just brush my symptoms aside.

 

JaneWhoLovesRain Enthusiast

As i figured they would tell me at emergent care, it's a "virus."  grrrrrr  It seems that is the standard medical answer for everything.  This just doesn't feel like a "virus." So I'll wait a few more days and if not better, I'll go back.

nvsmom Community Regular

I hope it is just a virus and you are better soon. Hang in there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,702
    • Most Online (within 30 mins)
      7,748

    Coach Chris
    Newest Member
    Coach Chris
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.