Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Sure If This Is Truly Celiac Related, But...


BethM55

Recommended Posts

BethM55 Enthusiast

A friend asked me the following, and I'm not sure what to tell her.  I did suggest she look in to leaky gut syndrome.  Other than that, any suggestions?  (Yes, I know... I'm puzzled also about her use of  the term 'regular bread products', as opposed to whole grains.)  Thank you in advance!

 

"Nutrition question:  do you know of anything in the outer coating (the rough parts) of grains like wheat that would be an irritant or allergen?  Sean has never been good with whole grains, but he has no trouble with regular bread products.  It finally became obvious when we shared a whole-grain muffin that was very soft and finely-ground, but still made his stomach upset.  It has me baffled."

 

Thanks, 

-Beth.

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Is this person Celiac.  It sounds like he does not know what to avoid to be gluten-free.  If he is a silent Celiac he may be starting to get reactions as it sounds like he had eaten gluten regularly and continuing to incur damage.  If she has allergies to a food, that is complete different.  If she is NCGI then I would question if a problem exists.

 

At any rate, it is hard to be sure of what she is actually talking about.

 

Colleen

BethM55 Enthusiast

gluten-free Lover, he is not celiac that I'm aware of, although he's not been tested.  I've suggested in the past that the entire family try being gluten free because of multiple health problems, but they're not amenable to this.  NCGI is a possibility too.  If he is NCGI, why do you question if a problem exists?

GF Lover Rising Star

do you know of anything in the outer coating (the rough parts) of grains like wheat that would be an irritant or allergen

Wheat Grass?  My opinion is that you should not eat it due to possible contamination.  What other rough parts would you eat...I don't know of any.

 

he has no trouble with regular bread products

What regular bread products is eating?  Does he have any other intolerances?  Is he eating gluten free bread?

 

 we shared a whole-grain muffin that was very soft and finely-ground, but still made his stomach upset.

A whole grain muffin?  Was is gluten free?  What was in the muffin?  the grinding of grains should make no difference.

 

It seems unclear exactly what he is eating...rough parts?  The comparison of bread products to a finely ground product?  I'm not sure they understand exactly what they need to do to be gluten free.  I emphasize 'understand'.  Is only the one person eating gluten-free with the rest of the family kind of gluten-free?  That will make a difference right there.  There really is not enough information to figure out what exactly is going on.  Basically, It is unclear to me if the person in question is eating gluten-free  or just does not like 'whole grains'.

 

Colleen

cyclinglady Grand Master

I would never recommend for someone to go gluten free without first getting tested for celiac disease. If the tests are negative and the person wants to try the gluten-free diet to see if it eliminates their symptoms, then fine. The gluten-free diet is a huge commitment not only to food changes but lifestyle changes as well. I can see why your friends would resist.

There is no way that I would have gone gluten free to resolve my life-long anemia. Heck, it took me over a year of being on the diet to see results. I personally needed proof that gluten-free was the cure for my illness. There was also no way that I would have given up so many carbs after my celiac disease diagnosis without proof that I had diabetes either. It is hard to disregard lab results!

BethM55 Enthusiast

Thank you all for your responses.  I will have to talk more with my friend to get more specific information.  Her son may be gluten intolerant, or there may be other issues to address.  Hard to tell.  Again, thanks!

RMJ Mentor

I think the outer coating would be the wheat bran?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.