Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

6 Years

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I've been gluten free for 6 years this month from the day after I got my diagnosis. It is hard to believe that it has been that long. I knew I needed to go gluten free immediately or I would keep putting it off. I've learned so much. I'm so glad that I am feeling better. I am still emotionally coping with having to give up dairy about  2 months ago but I know I will come to terms with that too after I figure that all out.  I am doing so much better after going gluten free. All of the symptoms that had been developing since I was a child and had never been seen as connected to one condition (and some which I didn't even know were not normal as they had been around for so long,) have gone away and pretty much only come up when I get glutened again. Along with this I finally found a GI doc who I like. I was talking with colleagues today about our teenage years and so many things seemed to start about then. The relief from my depression that came with going gluten free which was just getting worse as I got over is like nothing I ever remember experiencing before going gluten free. It was such a relief today thinking back to that time and how much better than that it is now. I can't imagine what it would have gotten to had I not gotten diagnosed then. (And I know that people here have experienced that). The best thing from the diagnosis for me was the relief from my severe depression which had lasted for 12 years without relief. 

 

What was the best improvement in symptoms that you had when you went gluten free? Which one are you most happy to have gone? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I am sitting in my gluten-free front porch on a late summer evening with my faithful black lab at my feet pondering about how I will respond to your posting. Life is good. It is not easy and it never has been, but now I feel like my old self. I can handle so much more physically and emotionally.

I have been gluten free for over two years. Most of my symptoms are gone. I do not miss being anemic. It was so severe that I took breaks constantly because I was exhausted. I could hardly breathe. Just by sheer grit I was able to ride my bike for any great distance. How I manged to run a 1/2 marathon in my condition is beyond me! My anxiety is gone. I thought the anxiety was just attributed to that final year of menopause, but it was my celiac disease and unstable thyroid. My allergies are practically gone. I used to live on allergy meds. Food intolerances and allergic reactions (that would land me in ER) occurred often and are now resolved (I think!). Even my cold uterica is gone and I had that since is was a toddler. Now, I am just hoping for bone improvement.

I used to think that anemia was my only symptom. But that was not really true. Celiac disease was probably the root cause of so many of my past health issues that would come and go. I am thankful that my diagnosis will help others in my family for future generations and not one will have to hear that, "It's all in your head!"

Whew! I have got to get going! I have a teen to pick up from a party. I need to put

final touches on the picnic I prepared for tomorrow's water polo tournament (I miss the ease of eating out). And there's that "last" load of laundry to get done (I just hate to fold and put clothes away!)

Glad you are feeling better, Googles!

Jays911 Contributor
Jays911
Posted

The depression. I can only imagine what my wife and family endured. All I know is how much better I feel now.

Judy3 Contributor
Judy3
Posted

I've been gluten free almost 5 yrs now and just this week I was re-tested for all my food allergies Shrimp and seafood, fish, tree nuts and flax and they are ALL GONE!   I was able to eat some almonds last night with no reaction and a tuna sandwich for lunch today!!   I had anaphylactic shock from Shrimp 23 yrs ago so they won't let me eat that on my own yet.  Having a food challenge in July at the allergists office where I will spend the day eating shrimp from small pieces to a full meals worth and he's going to check my vitals along the way and hopefully take that off my list as well.    I'm so excited I've been so limited in the food department for so many years and they believe (no way to prove it really) that my undiagnosed Celiac disease was triggering the severe food allergies.   They did 50 blood tests - all negative and 30 skin tests a month later - all negative. and 20 yrs ago they were positive!!!     I went grocery shopping last night and purchased fish for the first time in 23 years  lol     I ran into an old friend at the store today and she said that I have my 'sparkle' back!!   I've known her for 25 yrs and seen her on and off the last 10 and she said that I looked sick for years and now I look wonderful... made my day.   I feel so much better since going gluten free, I have energy and have my life back!!  Now I get to eat new foods that have been off limits for sooo many years.   New rule though is one new food at a time to re-introduce them so IF I get a reaction I know what's it's from.   It's so hard because there are so many things I wanted to through in my cart!!   I will be patient though.  I did realize that while the tuna sandwich tasted ok at first I probably won't be looking for one again soon I hated the taste  LOL   amazing how 23 yrs of no fish taste makes it nasty.   Hope the tilapia I bought for later in the week is a better experience   :D   My 26 yr old son is a little freaked out by all of this as most of his life fish and nuts were a no no and were never in the house and now he said to watch me eat it is a little nerve wracking for him... Traumatized at 3 yrs old watching his mama get hauled away in a rescue squad.. and he's never taken a bite of fish since then.     Hopefully, we can both get over that!!!  

 

A life time of stomach aches and now it's time for the second lifetime without them   :P

bartfull Rising Star
bartfull
Posted

I had a lot of different symptoms but the one that made my life Hell was the insomnia. The D and the psoriasis weren't pleasant but getting a good night's sleep is one of the greatest blessings I could imagine.

Googles Community Regular
Googles
Posted
  • Author

Judy: Smoke salmon. yummy! It is my favorite fish ever. You should try it. 

 

CyclingLady: Energy is so awesome. 

 

Bartfull: Yes. Sleep is so wonderful!

Judy3 Contributor
Judy3
Posted

Judy: Smoke salmon. yummy! It is my favorite fish ever. You should try it. 

 

CyclingLady: Energy is so awesome. 

 

Bartfull: Yes. Sleep is so wonderful!

I do plan to try them ALL eventually   lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StClair Apprentice
StClair
Posted

Love reading these gluten free retrospectives! I'm pushing three months post diagnosis now and am in the delightful discovery phase of perceiving just how much has been wrong and is now starting to come right. Who knew my dust mite allergy could have anything to do with Celiac, yet it is improving. To answer the question about favorite improvement, the migraine and acid reflux/gastritis improvement are right up there, along with the anxiety. It's hard to pick!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,862
    • Most Online (within 30 mins)
      7,748
    ZoesDad
    Newest Member
    ZoesDad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.