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Anxiety/recovery

Check12344

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Check12344 Newbie
Check12344
Posted

I have been living in a state of panic for the last year. I am 23 and formerly extremely ambitious and social. I am now hermit like and my sole ambition is to get better.

My IgA (gliadin)test was high, as was my IgM (Lyme) test although all western blot (more accurate) Lyme tests were completely negative.

I have been Gluten free for 1.5 months. My dizziness, overly emotional reactions have subsided with this diet, yet I continue to have extreme anxiety. How long did it take your anxiety to subside?

I am 100% gluten free, on a variety of supplements and just can't kick it. Any advice is appreciated.

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across Contributor
across
Posted

I'm so sorry you're going through this! For me, the anxiety went away quickly  -- but not all of it. I found that like many celiacs, dairy also gives me problems. When I cut out gluten and ALL dairy, I went from being extremely anxious and self-condemning to having a calm and peaceful mind. For this, I thank God!

Mrlkandee Newbie
Mrlkandee
Posted

Hey all,

 

I have the same reaction as the original poster. 

I'm 23, was diagnosed this past winter, have been gluten-free since March. 

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them. 

 

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

Check12344 Newbie
Check12344
Posted
  • Author

Hey all,

I have the same reaction as the original poster.

I'm 23, was diagnosed this past winter, have been gluten-free since March.

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them.

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

After 3-6 months it's time to look for answers. If you truly have gotten rid of all gluten maybe check other food sensitivities/vitamin deficiencies. Also, maybe you have an ongoing gut infection that needs to be repaired by antibiotics. Many people on here wait a year, but I'm more of an act first, and seeing a GI or naturopath may help you progress

cyclinglady Grand Master
cyclinglady
Posted

Hey all,

 

I have the same reaction as the original poster. 

I'm 23, was diagnosed this past winter, have been gluten-free since March. 

The first 6 weeks I was on that high that everyone talks about after they finally have answers.

But as of late, the physical problems are back with no gluten, and my anxiety is through the roof. My GP gave me klonipin and wants me to take Buspar (has anyone ever been on it?), my OBGYN wants me on a new BC pill, and my therapist isn't sure I need any of these things. Friends talk about acupuncture helping them. 

 

Has the combo of any of these things helped you guys as you healed? i have no idea what normal is any more. If I'm not hungry I worry, if I'm very hungry I worry, if I go to the bathroom too many times or not enough I worry. I am on absolute high alert about myself and It's killed my social life and self esteem. Someone please help.

I answered in another post, but I think you need to really make sure you are gluten free.  Check meds, stop eating out for now, look at your kitchen (do you live with gluten eaters?).  

Finallyglutenfree Newbie
Finallyglutenfree
Posted

Check if you might be sensitive to all grains. I am and have the same problem. Wheats the worst, obviously, but rice gives me anxiety!

MsMarginalized Rookie
MsMarginalized
Posted

Wow, y'all!  I'm fortunate that I've not had the panic attacks you describe, but then again, I've had major depressive disorder for over 20 years.

 

I just finished Jennifers Way by Jennifer Esposito. She describes her panic attacks and other issues that went hand-in-hand with her un-diagnosed (& then newly diagnosed) Celiac. 

 

I realize how Celiac is a RANGE (maybe like Autism?) my Celiac can be bad when I get gluttened but not to the degree that some folks have. 

 

Maybe some of the things Jennifer does & has found can help? (if we are allowed to put in links, I would put in one over to amazon.com....that's where I got a kindle version of her book)  some forums I've been on don't allow that & I'm too new here to rock any boats.....

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    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
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      By deanna1ynne · Posted

      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
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      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
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