Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Really This Horrible? Does It Get Better?


ThisIsMyUserName

Recommended Posts

ThisIsMyUserName Explorer

So I've read a ton about how awful it is to get glutened, but the experience is pretty unbelievable. I'm months gluten-free and feeling generally better, but I got glutened Friday (still not sure what it was, so it must have been something small); Saturday was awful: nauseau, lethargy, general discomfort; Sunday was worse: bad mood, generally feeling crappy; Monday I felt better, but had a huge migraine; Tuesday was almost normal, but a medium migraine. Today I'm feeling so-so, no migraine yet. So some tiny glutening, and five days of misery? Is this how it's always going to be?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

Keeping in mind that everyone is different, I will add that when the rare glutening happens to me, I no longer suffer for days.  In fact, having been gluten-free for 10 years now, my gut is the lesser of the reaction now and that is a huge change because I used to have extreme gut reactions.  Neuro symptoms like anxiety come into play and more minor, manageable gut reactions.  I think it is because I have healed well and now my gut doesn't go into a week long frenzy when it happens.  So......I would say that things do change and the longer you are gluten-free and heal, the reactions may be much lower in severity or you suffer for a couple of days only.  That was my experience so keep the faith it will not always be this way for you!

kareng Grand Master

It could be that bad. If you don't have a definite OMG moment - "what? You thought my gluten-free pancake mix was too runny so you added a little regular Bisquick?" It can be hard to know if it's really gluten you are reacting to. It could be a stomach virus, food poisioning ( not what yours sounds like), a reaction to another food, a combo of different things that you are unlucky enough to have hit at once ( virus, pollen allergies and hormone swing). Just some examples.

Welcome to the club. We need to work on a secret handshake or something.

nvsmom Community Regular

It could be that bad. If you don't have a definite OMG moment - "what? You thought my gluten-free pancake mix was too runny so you added a little regular Bisquick?" 

 

LOL Oh no, did someone do that to you once?  If not, great example.   :lol:

 

Yeah,  being glutened varies a lot between people, and symptoms can change over time so this may not be the way it always is.

 

I also have a theory that getting glutened symptoms become more obvious as we start to recover.  When you aren't sick all the time it is easier to notice when you do feel worse.  LOL

 

Hope you are better by the weekend.

kareng Grand Master

LOL Oh no, did someone do that to you once?  If not, great example.   :lol:

 

Yeah,  being glutened varies a lot between people, and symptoms can change over time so this may not be the way it always is.

 

I also have a theory that getting glutened symptoms become more obvious as we start to recover.  When you aren't sick all the time it is easier to notice when you do feel worse.  LOL

 

Hope you are better by the weekend.

 

 

No.  But i have heard about stuff like this - Someone saying that Bisquick isn't flour!

nvsmom Community Regular

No.  But i have heard about stuff like this - Someone saying that Bisquick isn't flour!

Oh wow... Okaaaay.  :huh: We need a head shaking emoticon.

GF Lover Rising Star

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

colleen, I love  your  emoticons.......hope  you are  feeling better

nvsmom Community Regular

:D  :lol:  Thank you!!

GF Lover Rising Star

Mamaw, I'm still racking up specialists...lol.  But doing  ok  :)

 

Nicole, I aim to please  :D

mamaw Community Regular

Glad to hear  you are hanging in there... I hope  you are at  100% soon...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,493
    • Most Online (within 30 mins)
      7,748

    JJC01
    Newest Member
    JJC01
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.