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Scope And Biopsy Done Today

KBart

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KBart Apprentice
KBart
Posted

My 4 year old had the scope and biopsy today. I'm so glad that's behind us. I'm terrified of a negative biopsy when I'm so sure she's reaction to gluten and has a positive blood test. It doesn't help that the doctor keeps saying things like, " If it isn't celiac disease we will keep searching for the cause" and "you can start cutting back on gluten if you want to". Anyways, about a week I guess we will know. I appreciate everyone's help so far. I've cleared my kitchen of most all gluten and wiped the pantry. I am thinking of waiting until the biopsy results to purge some tools and utensils such as cutting boards, wood spoons, etc.

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nvsmom Community Regular
nvsmom
Posted
  On 7/15/2015 at 7:05 PM, KBart said:

My 4 year old had the scope and biopsy today. I'm so glad that's behind us. I'm terrified of a negative biopsy when I'm so sure she's reaction to gluten and has a positive blood test. It doesn't help that the doctor keeps saying things like, " If it isn't celiac disease we will keep searching for the cause" and "you can start cutting back on gluten if you want to". Anyways, about a week I guess we will know. I appreciate everyone's help so far. I've cleared my kitchen of most all gluten and wiped the pantry. I am thinking of waiting until the biopsy results to purge some tools and utensils such as cutting boards, wood spoons, etc.

 If she had a positive blood test, then even if she has a negative biopsy she still most likely has celiac disease.  The biopsy can miss up to 20% of all celiacs.  That's 1 in every 5.  Considering the intestines have the surface area of a tennis court, and that damage is often patchy, it's almost surprising that it doesn't miss more celiacs.

 

A negative biopsy does not mean she does not have celiac disease.  It just means that the biopsy does not support the diagnosis of celiac disease.  It doesn't discount it.  

 

It is sort of like if you had a positive pregnancy test but another brand gave you a negative result.  It still means you can probably expect a new arrival in 9 months.  KWIM?

 

Good luck with the biopsy results.  If you wish you can share the results here.  We have a few board members who are quite knowledgeable when it comes to the biopsy.

KBart Apprentice
KBart
Posted
  • Author

Thank you. Yes I will share here when I get results.

I think what is bothering me more than a negative test is her doctor saying if it's negative it can't be celiac. If we get a negative biopsy I will probably switch doctors and try and find one who would be willing to give us a diagnosis with the blood test and alleviation of symptoms once on the diet.

squirmingitch Veteran
squirmingitch
Posted
  On 7/15/2015 at 7:45 PM, KBart said:

Thank you. Yes I will share here when I get results.

I think what is bothering me more than a negative test is her doctor saying if it's negative it can't be celiac. If we get a negative biopsy I will probably switch doctors and try and find one who would be willing to give us a diagnosis with the blood test and alleviation of symptoms once on the diet.

If the biopsy is negative I think you would be very smart to switch doctors for one who would be willing to give a diagnosis with the blood test and alleviation of symptoms once on the diet.

nvsmom Community Regular
nvsmom
Posted

Agreed.  Good luck!!

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