Changing Symptoms?

[wmramsel]

My daughter is 4.5yo and has had celiac disease since birth.  We have been gluten free since she was 2.  Her typical symptoms of being glutened were primarily and initially a skin rash.  The rash, which is very specific and easy to spot, was always the symptom we saw when she got glutened due to cross contamination as well.  Anything more than CC and she had symptoms which include diarrhea, vomiting, constipating, fever, bloating, incontinence, mood swings, extreme fatigue, etc.

 

However, recently (past month or so) she has started having a lot of unexplained tummy aches.  Probably a couple times a week, with no known cause or other symptoms (sometimes fatigue).

 

Could her symptom 'patterns' be changing as she gets older?  Has anyone had any experience with this?  

 

TIA!

[cyclinglady]

Well, I am not a kid, but celiac disease symptoms seem to evolve. Anemia was my primary symptom at the time of my diagnosis but tummy troubles occur when I get accidentally glutened. When were her antibodies for celiac disease last checked? Could she be getting gluten?

[defeatwheat]

Have you noticed any link to dairy consumption with the symptoms? I was very slow to go dairy free but after I had switched gastro doctors and he said sorry there is nothing more I can do than what you are doing and the meds you are using and then said a lot of times dairy is a problem for people with Celiac. I tried dairy free and have had good results. Not that I don't have other issues from time to time because I have IBS as well but certainly improvement has taken place. I wouldn't do anything too drastic right away because it takes me longer than a month to feel right after even a drop of gluten accidentally or cross contamination. Good luck. It's a journey and people on this site can provide assistance better than most doctors. Yes I'm jaded, it took the doctors way too long to find Celiac and they didn]t find it till I told them to check for it.

[Akealey]

Have her blood sugar levels checked!! Often celiac and diabetes go hand in hand. Tummy aches in small children are often the first noticable symptom. Good luck to you and your daughter!!