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Urinary Leakage

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New Community Member Explorer
New Community Member
Posted

Hey ya'll,

 

I'm in my early 20's and diagnosed with celiac in 2011. In 2013, I noticed I was having some urinary leakage. I was deceived into thinking it was normal and think that when I was more healed with my celiac the leakage would go away. I still have symptoms of celiac even with gluten free diet. (mainly urgency after eating, irritable bowel gas). Finally, I decided to get the urinary symptom checked out by a doctor. It seems to just be getting worse. I don't always know when I have leakage, but if I don't wear a pad/change it out, then I notice it when using the restroom. Doctor put me on two medications but they don't seem to be helping. Next time I go to the doctor, next month, she'll probably recommend botox injections or surgery. 

 

Anybody have any ideas? Similar experiences? Suggestions? Is this even celiac related? 

 

 

 

 

 

 

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ravenwoodglass Mentor
ravenwoodglass
Posted

Has your doctor suggested physical therapy? You may want to check into that before agreeing to surgery or botox. There are PTs who specialize in incontinance issues and they can be quite helpful.

GF Lover Rising Star
GF Lover
Posted

This is what Doctors told us to do (at your age) before there was a pill for everything.

 

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My personal belief is it is not Celiac related.

 

Colleen

New Community Member Explorer
New Community Member
Posted
  • Author

No, she hasn't mentioned physical therapy. Worth checking in to. I have been closed off to the idea of Botox injection and surgery...

I'll have to try the Kegel exercises. Again, that too is not so much emphasized by the doctors. Apparently, medicine is supposed to cure all ails.

Thanks for your input.

LauraTX Rising Star
LauraTX
Posted

The physical therapy they do for that is a little more advanced than just Kegels, definitely worth a try.  I have heard some good things about it from my interstitial cystitis group.

New Community Member Explorer
New Community Member
Posted
  • Author

Good to know, Laura. I'll ask about it next time I see the doctor. Thanks.

Bajansun Newbie
Bajansun
Posted

Hi. I am 73 and have been diagnosed Celiac for about 12 years but probably had it very much longer without knowing it. I have noticed in recent months that I have urinary leakage but assumed it was age and/or prostate related and never considered it could be Celiac.
I can't offer any advice or further information but will pursue this with my MD and post any info I get.

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ravenwoodglass Mentor
ravenwoodglass
Posted

I think the only way this would be celiac related would be if someone had significant neurological impact from celiac. If that was the case the problem would be present at diagnosis.

If someone has been diagnosed for some time and is compliant with the diet IMHO it is unlikely to be celiac related.

avwalters Newbie
avwalters
Posted

Celiac related perhaps--I'd try a Vitamin B12 serum level test. Some celiacs have intestinal damage that interferes with nutrient uptake. Sphincter leakage can be a result of low B12 levels. If oral supplementation doesn't work (as can be the case) you can raise B12 levels to normal with regular injections.

Gemini Experienced
Gemini
Posted

If a person has long undiagnosed Celiac, then maybe, just maybe, the problem could be caused by weak muscles.  But the bladder is a muscle and will respond to exercise well.

 

I have been doing core and strength training for 5 years now.  Was diagnosed Celiac 10 years ago.  I am now 56 years old and that type of issue generally starts to happen to women of my age group or slightly older.  I never really had the problem yet but noticed I would pee a lot if I drank a lot and I couldn't hold it for very long.

That all changed once I started exercise classes.  I can hold my pee like a camel can hold water now!  :lol:   Do the exercises and it should help....... ;)

wildchild-nan Newbie
wildchild-nan
Posted

Cut out the nightshade food group and there is a homeopathic remedy for incontinence

Beverage Proficient
Beverage
Posted

Did you get tested for yeast overgrowth?  I was diagnosed first with celiac's, saw a slight improvement with the gluten-free diet.  However, with eliminating the gluten, I had added in a lot more fruits, which actually aggrevated some of my symptoms.  Then the candida albacans results came in as high.  Not until I cut out all sugars, including fruits and hidden sugars, then I started seeing improvement in the urinary and bowel symptoms.  I've only been following the the candida diet for a little over a week, and seeing much more improvement than just with a gluten-free diet, and the urgency to urinate and all that is starting to subside.  The candida albacans can be tested various ways, and the stricter candida diet is not a forever thing, just until it all clears up.  Good luck, keep us posted!

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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