Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


Rate this topic

Recommended Posts

Hey ya'll,

 

I'm in my early 20's and diagnosed with celiac in 2011. In 2013, I noticed I was having some urinary leakage. I was deceived into thinking it was normal and think that when I was more healed with my celiac the leakage would go away. I still have symptoms of celiac even with gluten free diet. (mainly urgency after eating, irritable bowel gas). Finally, I decided to get the urinary symptom checked out by a doctor. It seems to just be getting worse. I don't always know when I have leakage, but if I don't wear a pad/change it out, then I notice it when using the restroom. Doctor put me on two medications but they don't seem to be helping. Next time I go to the doctor, next month, she'll probably recommend botox injections or surgery. 

 

Anybody have any ideas? Similar experiences? Suggestions? Is this even celiac related? 

 

 

 

 

 

 

Share this post


Link to post
Share on other sites

Join eNewsletter


Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Has your doctor suggested physical therapy? You may want to check into that before agreeing to surgery or botox. There are PTs who specialize in incontinance issues and they can be quite helpful.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

Join eNewsletter

This is what Doctors told us to do (at your age) before there was a pill for everything.

 

http://www.wikihow.com/Do-Kegel-Exercises

 

My personal belief is it is not Celiac related.

 

Colleen


HAVE A SUPER SHINY DAY

 

LTES gem 2014


*Multiple AI Diseases

*General Insanity


"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

smiley-face-making-cocktail.gif

Share this post


Link to post
Share on other sites

Join eNewsletter

No, she hasn't mentioned physical therapy. Worth checking in to. I have been closed off to the idea of Botox injection and surgery...

I'll have to try the Kegel exercises. Again, that too is not so much emphasized by the doctors. Apparently, medicine is supposed to cure all ails.

Thanks for your input.

Share this post


Link to post
Share on other sites

Join eNewsletter

The physical therapy they do for that is a little more advanced than just Kegels, definitely worth a try.  I have heard some good things about it from my interstitial cystitis group.


I am my husband's "Silly Yak Girl" :)

I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

Share this post


Link to post
Share on other sites

Join eNewsletter

Hi. I am 73 and have been diagnosed Celiac for about 12 years but probably had it very much longer without knowing it. I have noticed in recent months that I have urinary leakage but assumed it was age and/or prostate related and never considered it could be Celiac.
I can't offer any advice or further information but will pursue this with my MD and post any info I get.

Share this post


Link to post
Share on other sites

Join eNewsletter

I think the only way this would be celiac related would be if someone had significant neurological impact from celiac. If that was the case the problem would be present at diagnosis.

If someone has been diagnosed for some time and is compliant with the diet IMHO it is unlikely to be celiac related.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

Share this post


Link to post
Share on other sites

Join eNewsletter

Celiac related perhaps--I'd try a Vitamin B12 serum level test. Some celiacs have intestinal damage that interferes with nutrient uptake. Sphincter leakage can be a result of low B12 levels. If oral supplementation doesn't work (as can be the case) you can raise B12 levels to normal with regular injections.

Share this post


Link to post
Share on other sites

Join eNewsletter

If a person has long undiagnosed Celiac, then maybe, just maybe, the problem could be caused by weak muscles.  But the bladder is a muscle and will respond to exercise well.

 

I have been doing core and strength training for 5 years now.  Was diagnosed Celiac 10 years ago.  I am now 56 years old and that type of issue generally starts to happen to women of my age group or slightly older.  I never really had the problem yet but noticed I would pee a lot if I drank a lot and I couldn't hold it for very long.

That all changed once I started exercise classes.  I can hold my pee like a camel can hold water now!  :lol:   Do the exercises and it should help....... ;)

Share this post


Link to post
Share on other sites

Join eNewsletter

Did you get tested for yeast overgrowth?  I was diagnosed first with celiac's, saw a slight improvement with the gluten-free diet.  However, with eliminating the gluten, I had added in a lot more fruits, which actually aggrevated some of my symptoms.  Then the candida albacans results came in as high.  Not until I cut out all sugars, including fruits and hidden sugars, then I started seeing improvement in the urinary and bowel symptoms.  I've only been following the the candida diet for a little over a week, and seeing much more improvement than just with a gluten-free diet, and the urgency to urinate and all that is starting to subside.  The candida albacans can be tested various ways, and the stricter candida diet is not a forever thing, just until it all clears up.  Good luck, keep us posted!

Share this post


Link to post
Share on other sites

Join eNewsletter

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

0


Join eNewsletter