Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Similarities In Celiac And Ncgs Symptoms?

Maddi

Recommended Posts

Maddi Community Regular
Maddi
Posted

I'm still waiting for my test results. It's been a week!! And I'm not the most patient person so I'm trying to stop myself from calling the office. Well in the meantime I was wondering how similar are celiac symptoms and ncgs symptoms? I know I have a problem with wheat. I've stopped consuming it and I don't have all day fatigue anymore, my insomnia and hot flashes are gone, also my heart palpitations, and my anxiety. However, I'm still tired after meals (as if my body is working extra hard to digest my food) I just started taking enzymes and it's getting a bit better but I'm still tired. Anyways my biggest concern is my weightloss. If my results come back negative for Celiac...can I assume that I just have NCGS? I thought NCGS doesn't damage the intestines so weight loss wouldn't be a symptom... or am I wrong? I still have symptoms which if it's just NCGS I'd think that they would be gone by now (I've been gluten-free for 2weeks). Or am I wrong about that too? I did have a mocha Frappuccino this weekend... bc I was craving one so badly but idk if that has gluten... or if CC would be a big deal for NCGS? THANKS.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

I'm not familiar with your story (sorry). Did they do the full panel? I think you should still be eating gluten so in case they want to do a biopsy you'll be ready.

 

I also would go ahead and call the doctor. Sometimes if results are negative they don't call you at all, or they take their time about it. If you call that will also remind them that you're anxious so they're more likely to call right away when the results do come in.

 

From what I hear the symptoms of NCGS can be WORSE than those of celiac. I'm not saying that is your problem. It might be something else entirely like thyroid. If your results do come back negative talk to your doctor about other possible causes.

Maddi Community Regular
Maddi
Posted
  • Author

From my understanding the doctor ordered LabCorp's celiac panel. Honestly I had been gluten free for about a week with some issues with CC or eating things I didn't know weren't gluten-free. And a little gluten light for about a month. I've had my thyroid tested and everything is normal. (Thyroid disease runs in my family but I don't know if anyone with Celiac). I'm underweight (93lbs) and I have a lotttttttt of Celiac symptoms. Of course it could just be NCGS but idk if that would cause so much weightloss... /:

Maddi Community Regular
Maddi
Posted
  • Author

Just called the office... the results aren't back yet. They said bc they were extensive they would take 7-10days... they're testing wheat allergy, celiac, h pylori, and hormones. Hopefully they find something. I've had 2 thyroid panels done in the last 6 months so I know it's not my thyroid.

cyclinglady Grand Master
cyclinglady
Posted

About your weight loss....are you eating enough "safe" foods (not sure if you have any intolerances)? I took a gluten hit six weeks ago. Weight started dropping. So, I started eating lots of stewed meat and fish, fat (even adding coconut oil to my coffee, drenching olive oil on my cooked veggies, eating chicken skin, consuming the fat from the stewed meat, and avocados) to offset my weight loss. I am eating easy-to-digest foods until I feel better.

Just something to consider.

Maddi Community Regular
Maddi
Posted
  • Author

Yesterday I had 2100 calories. I'm trying to add a tablespoon of olive oil every time I have rice (which is 4times a day). I'm mostly eating chicken (boneless chicken breast, drumstick, and thighs with bones). I'm having salmon also and ground beef or beef stew. For the most part I eat 4 times a day with one snack. I'm trying to keep my meals smaller but it's hard bc I have an insatiable hunger. I'm also eating peanut butter when I have my apple. I try to eat spinach at least once a day and green beans, avocado, or cucumbers. So I don't think I'm eating anything very irritating.(my tummy is hurting today) I'm also taking digestive enzymes now (started yesterday). And I've just decided that I'm going to give up eating out on the weekends... it's so hard though! (I go to a juice bar on Sundays... they also have amazing gluten free wraps...but idk how careful they are about CC or if anything has gluten ingredients... I started drinking their organic cold pressed juices bc I thought it was a good way of getting vitamins and minerals!) I'm also going to male bone broth this weekend. It just seems like I'm having ups and downs.... I do see an improvement but I still don't feel normal...and my digestion is still sucky. I guess it's also hard to not know if this is actually going to be the answer to my long list of symptoms. The only processed food I'm having is peanut butter. I did have gluten-free organic cereal today with rice milk that I made myself but I'm going to cut that out for now... even though the ingredients don't look too complicated (Kashi Indigo Morning).. but it does have corn. /: I'm willing to do the work if it means I get my energy back but this is very very hard work... especially now that I'm cutting out all processed foods.

Maddi Community Regular
Maddi
Posted
  • Author

Oh and I've already cut out dairy. (I've been casein intolerant since last year)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,442
    • Most Online (within 30 mins)
      7,748
    Nony
    Newest Member
    Nony
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.