Potatoes?

[Maddi]

I've been gluten free for 2 weeks (with the exception of going to Starbucks and having a mocha frappuccino on Saturday... idk how careful they are about CC and I didn't tell them I have an intolerance to gluten bc I haven't gotten my test results back) anyways yesterday I had ground beef and potatoes... and I then started having intense pain in my body and a tummyache... I think it was the potatoes. I had chicken with potatoes the other day and I woke up the next day with body pain. Could I now be reacting to potatoes too? Would they cause body aches? And tummyaches? My headaches had disappeared and now they're back. My hand is hurting a lot. I love fruits and veggies and especially since I'm skinny I really want to get my nutrients somehow. So... I should avoid ALL nightshades? Red peppers included? ):

[cyclinglady]

Could be the potatoes (nightshades). Fill up on sweet potatoes (not a nightshade plant) and winter squash instead.

I order just plain coffee at Starbucks. We have had baristas post about cross contamination issues. At least postpone until you have healed and have the gluten-free diet under control. Hope you get your test results soon!

[Maddi]

I think you're right and I definitely will skip eating out and the nightshades for now. Thank you! The office said 7-10 business days!

[Lisa]

I am certainly not knowledgeable about night shades.  I have no experience, nor issues.  But I will say, that being gluten free for two weeks (assuming you do have Celiac, as your tests are not in yet) is a relatively short period of time to be symptom free.  It takes time for the gluten to do damage, as well as heal. With most people, it will take a few weeks and in some severe cases a couple of years to healing. Mastering eating 100% gluten free is quite a task and the learning curve is steep.  It all takes time.

 

Until you intestines heal, all foods, gluten or not, will cause discomfort.

 

Hope you feel better soon.

[kareng]

I agree with Lisa. It's just 2 weeks. You haven't healed, even if you have been completely gluten-free. You haven't had anytime to get the fiber, fat, etc, of the new diet regulated. And..... I know it's not a popular idea but..... Not everything is related to gluten. Maybe you have body aches for another reason? Maybe you have more problems than gluten? Maybe it's just an odd one time virus? Girly hormones? ( males don't look, lol). You really need months or a year to heal.

[Lisa]

As  Karen said, it took me six months of healing before I recognized a gluten experience.

[cyclinglady]

I am certainly not knowledgeable about night shades.  I have no experience, nor issues.  But I will say, that being gluten free for two weeks (assuming you do have Celiac, as your tests are not in yet) is a relatively short period of time to be symptom free.  It takes time for the gluten to do damage, as well as heal. With most people, it will take a few weeks and in some severe cases a couple of years to healing. Mastering eating 100% gluten free is quite a task and the learning curve is steep.  It all takes time.

 

Until you intestines heal, all foods, gluten or not, will cause discomfort.

 

Hope you feel better soon.

Well said and so true!

[Maddi]

Thanks for the responses you guys. I guess when we're sick for a while we just want to get better really quickly. I guess I should just be thankful that my anxiety and my fatigue is gone. I'm going to try my best to keep a whole foods diet for now and hopefully little by little all of my symptoms will disappear. I say that my muscle aches and my joint pain is related to gluten bc it came along with the anxiety a couple months ago and bc I'm pretty young to have so much pain (26).

Another question. It's really hard to only eat whole foods so I did buy cereal to have with rice milk that I've been making. Well.... it's Van's cereal.... it says gluten free in the front...... however... in the ingredients it lists oats....... is it safe? Maybe I'm over analyzing but my stools this morning were on the looser end and they were a lot..... (so sry for the tmi) I know my body is still healing so maybe I shouldn't chalk it up to the cereal? I know I should stay away from processed foods but idk what else I can have for breakfast I'm tired of eating lunch food for breakfast. ): I also know I have to just suck it up... I'm just tired I suppose.

[Maddi]

Patience and discipline is something I'm just going to have to learn. Keeping a gluten-free diet isn't hard. It's everything else we have to avoid in the beginning that's so so hard when we're accustomed to eating so many processed foods. Even eliminating processed foods would be easier if I could have milk and eggs!!! All my life the only things I'd drink were water, milk, and orange juice. Ever since I tasted soda for the first time when I was 3, I hated it. So right now I can't have milk bc I developed a casein intolerance and also I can't have orange juice bc it's too acidic for my insides. I used to drink milk up 2-4 times a day! I guess there's no point in even reminiscing about that. /: I just hope I can have milk again one day.

[squirmingitch]

On the Van's website it says gluten free oats and it says they are certified by the GFCO.

[Bajansun]

Gluten intolerance and lactose intolerance often go hand in hand. I am drinking only lactose free milk as I need something to have with my cereal (gluten-free of course). I have got used to the LF milk.
Being celiac means that we are always undernourished and struggle to gain or maintain weight. In all my life I have never been over 165lbs and now, I am older 70+, I am just touching 160.
Recently I have been dealing with (mild) depression and/or lack of energy and initiative. Stomach problems, loose stool, constipation, you name it plus flatulence ..... not easy.
You seem to be in the early stages and after 2 weeks are still not really gluten-free, it takes time and any 'slip' puts you back so be careful.
Good luck and keep reading these posts, they are very helpful.

[Maddi]

Thank you thank you! I guess I can't tolerate potatoes... maybe they're too acidic for my body right now. And I'm now sticking to only whole foods. Well I have my good days and bad. I'm not fatigued anymore but I do get tired or sleepy especially in the mornings and early afternoon.... by night time I'm awake but I'm able to fall asleep fairly quickly. (: My tummy is still hurting on and off though. I just hope to feel better little by little.

[rbparshan]

I've been gluten free for 2 weeks (with the exception of going to Starbucks and having a mocha frappuccino on Saturday... idk how careful they are about CC and I didn't tell them I have an intolerance to gluten bc I haven't gotten my test results back) anyways yesterday I had ground beef and potatoes... and I then started having intense pain in my body and a tummyache... I think it was the potatoes. I had chicken with potatoes the other day and I woke up the next day with body pain. Could I now be reacting to potatoes too? Would they cause body aches? And tummyaches? My headaches had disappeared and now they're back. My hand is hurting a lot. I love fruits and veggies and especially since I'm skinny I really want to get my nutrients somehow. So... I should avoid ALL nightshades? Red peppers included? ):

yes you are reacting to the potatoes and your probably sensitive to starchy food, which includes corn and white rice. If you find your self sensitive to nightshades then take it out of your diet but just bc your intolerant to potatoes doesn't mean you can't have nightshades. Ppl with skin disorders Can't tolerate with nightshades. Hope this is helpful I've been through this a few years ago.

[Geeky]

I reacted in the most horrific way to potatoes (think bathroom all night, needing the hospital for dehydration) before I knew I have celiac.

It is my understanding now that some people (myself included) are sensitive to many things with prolamin seed storage proteins and that varies from plant to plant. So wheat has gliadin, oats have avenin, etc. which is why some people can tolerate oats, some can't. Also, there are two types of quinoa cultivars documented in medical studies that trigger gluten-like responses. The body recognizes the plan protein and goes "oh, that looks too much like gluten, let's destroy it."

Potatoes, corn, quinoa, amaranth, sorghum & oats are not okay for me. That's in addition to eggs & dairy, but those seem to be separate allergies.

I seem to tolerate soy when it's fermented (tofu, gluten-free teriyaki sauce) and I still do okay with white rice. I haven't tested millet enough and buckwheat seems fine in small amounts.

What people react to varies from person to person.

[Geeky]

There is also this -

"A subgroup of coeliac disease patients continues to experience symptoms even on a gluten-free diet (GFD). We attempted to determine whether these symptoms could be due to either cross-contamination with gluten-containing foods or cross-reactivity between α-gliadin and non-gluten foods consumed on a GFD. We measured the reactivity of affinity-purified polyclonal and monoclonal α-gliadin 33-mer peptide antibodies against gliadin and additional food antigens commonly consumed by patients on a GFD using ELISA and dot-blot. We also examined the immune reactivity of these antibodies with various tissue antigens. We observed significant immune reactivity when these antibodies were applied to cow’s milk, milk chocolate, milk butyrophilin, whey protein, casein, yeast, oats, corn, millet, instant coffee and rice. To investigate whether there was cross-reactivity between α-gliadin antibody and different tissue antigens, we measured the degree to which this antibody bound to these antigens. The most significant binding occurred with asialoganglioside, hepatocyte, glutamic acid decarboxylase 65, adrenal 21-hydroxylase, and various neural antigens. The specificity of anti-α-gliadin binding to different food and tissue antigens was demonstrated by absorption and inhibition studies. We also observed significant cross-reactivity between α-gliadin 33-mer and various food antigens, but some of these reactions were associated with the contamination of non-gluten foods with traces of gluten. The consumption of cross-reactive foods as well as gluten-contaminated foods may be responsible for the continuing symptoms presented by a subgroup of patients with coeliac disease. The lack of response of some celiac disease patients may also be due to antibody cross-reactivity with non-gliadin foods. These should then be treated as gluten-like peptides and should also be excluded from the diet when the GFD seems to fail."

NOTE: When you get to the web page linked blow, look for the "Download as PDF" link. The PDF has great detail.

Open Original Shared Link

CAUTION: While you could be cross-reactive to multiple foods, there is also potential cross-contamination with gluten somewhere in the food chain. It's very hard to pinpoint which it is.

For me, I find that when I get "glutened" that I have to take everything packaged out and literally add it one by one. The last time it happened to me I lived on fresh carrots, salad w/o dressing, vegetable broth, and roasted squash as my base diet adding each new food item day by day. Coconut water was day two, coconut yogurt day three, cooked black eyed peas day four, etc. all while staying on the base diet.

It's tedious but necessary for me because I am one of those people with "refractory celiac disease" even after eight years of gluten avoidance, so I had to find every single culprit because I had become so anemic they were talking about hospitalizing me and giving me iron infusions. I was good for the last two years (my last hospitalization from a food reaction, which was dairy) until just last week... that's when I learned quinoa was an issue. *sigh*

So I am on my base diet right now, adding things one by one to be certain it was the quinoa. On the plus side, I am losing some weight I had gained back lol.