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I Want To Get Tested

cherries

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cherries Newbie
cherries
Posted

I have problems with:

Anxiety

Depression

Low Iron

Anger

Low platelets

Inflammation

My blood sugar can sometimes bottom out.

 

I have had  depression since I was a teenager. My Iron the last time I was tested it was 32. 

 

I want to get tested since when I tried gluten-free before most of these symptoms at least improved. I know I need blood work but have no clue as to what test I need.  Can you help me figure out what ones to ask my doctor to run? I am supplementing my Iron my Dr wants to see if the iron improves.

 

My blood sugar can be fine one minute and like 39 the next. This happens mostly after I eat pasta I have told my doctors about that and they did nothing.

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cyclinglady Grand Master
cyclinglady
Posted

Hi Cherries!

Here is the list of celiac tests but you have to be consuming gluten in order for the tests to work. Like 1 to 2 slices of bread a day for 8 to 12 weeks!

-Tissue Transglutaminase (tTG) IgA and (tTG) IgG

-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

The University of Chicago's celiac website is a great site for information including a gluten challenge. You would think that being gluten-free would resolve you low iron levels. Mine went back to normal within a few months of being on the diet (at least within the range! ).

Welcome to the forum and let us know how it goes!

cherries Newbie
cherries
Posted
  • Author

Thanks for the info! I also think it'd be a good idea to write down what I'm eating for the day and when they happen.

squirmingitch Veteran
squirmingitch
Posted

cherries, it's imperative that you eat gluten (1 to 2 slices of bread per day) for the 8 to 12 weeks or else you will have a false negative on your blood tests. We really can't stress that enough.

nvsmom Community Regular
nvsmom
Posted

Be aware that food sensitivity reactions can happen within minutes to 3 days after consuming the offending food. Especially the types of symptoms that you describe.

 

best wishes.

  • 3 weeks later...
cherries Newbie
cherries
Posted
  • Author

Be aware that food sensitivity reactions can happen within minutes to 3 days after consuming the offending food. Especially the types of symptoms that you describe.

 

best wishes.

Thanks I went to the Dr and of course they tried to dismiss me again. I had my mother with me this time and she told them they listened and said it was reactive hypoglycemia. They then told me to try a gluten free diet. 

nvsmom Community Regular
nvsmom
Posted

No tests ordered?  :(

My reactive hypoglycemia symptoms were mostly eliminated after I started a low carb diet to address prediabetes and inflammation.  I no longer get large blood glucose swings.  Adding proteins to your carbs will help stop the swings somewhat too.

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cherries Newbie
cherries
Posted
  • Author

No tests ordered?  :(

My reactive hypoglycemia symptoms were mostly eliminated after I started a low carb diet to address prediabetes and inflammation.  I no longer get large blood glucose swings.  Adding proteins to your carbs will help stop the swings somewhat too.

No they were more than willing to yell at me for not taking my multi vitamin because my vitamin d is low. They gave me a 50,000 unit weekly dose calling it a low dose.

nvsmom Community Regular
nvsmom
Posted

:(

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      By Wends · Posted

      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
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