Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Want To Get Tested


cherries

Recommended Posts

cherries Newbie

I have problems with:

Anxiety

Depression

Low Iron

Anger

Low platelets

Inflammation

My blood sugar can sometimes bottom out.

 

I have had  depression since I was a teenager. My Iron the last time I was tested it was 32. 

 

I want to get tested since when I tried gluten-free before most of these symptoms at least improved. I know I need blood work but have no clue as to what test I need.  Can you help me figure out what ones to ask my doctor to run? I am supplementing my Iron my Dr wants to see if the iron improves.

 

My blood sugar can be fine one minute and like 39 the next. This happens mostly after I eat pasta I have told my doctors about that and they did nothing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Hi Cherries!

Here is the list of celiac tests but you have to be consuming gluten in order for the tests to work. Like 1 to 2 slices of bread a day for 8 to 12 weeks!

-Tissue Transglutaminase (tTG) IgA and (tTG) IgG

-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

The University of Chicago's celiac website is a great site for information including a gluten challenge. You would think that being gluten-free would resolve you low iron levels. Mine went back to normal within a few months of being on the diet (at least within the range! ).

Welcome to the forum and let us know how it goes!

cherries Newbie

Thanks for the info! I also think it'd be a good idea to write down what I'm eating for the day and when they happen.

squirmingitch Veteran

cherries, it's imperative that you eat gluten (1 to 2 slices of bread per day) for the 8 to 12 weeks or else you will have a false negative on your blood tests. We really can't stress that enough.

nvsmom Community Regular

Be aware that food sensitivity reactions can happen within minutes to 3 days after consuming the offending food. Especially the types of symptoms that you describe.

 

best wishes.

  • 3 weeks later...
cherries Newbie

Be aware that food sensitivity reactions can happen within minutes to 3 days after consuming the offending food. Especially the types of symptoms that you describe.

 

best wishes.

Thanks I went to the Dr and of course they tried to dismiss me again. I had my mother with me this time and she told them they listened and said it was reactive hypoglycemia. They then told me to try a gluten free diet. 

nvsmom Community Regular

No tests ordered?  :(

My reactive hypoglycemia symptoms were mostly eliminated after I started a low carb diet to address prediabetes and inflammation.  I no longer get large blood glucose swings.  Adding proteins to your carbs will help stop the swings somewhat too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cherries Newbie

No tests ordered?  :(

My reactive hypoglycemia symptoms were mostly eliminated after I started a low carb diet to address prediabetes and inflammation.  I no longer get large blood glucose swings.  Adding proteins to your carbs will help stop the swings somewhat too.

No they were more than willing to yell at me for not taking my multi vitamin because my vitamin d is low. They gave me a 50,000 unit weekly dose calling it a low dose.

nvsmom Community Regular

:(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748

    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.