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I Want To Get Tested


cherries

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cherries Newbie

I have problems with:

Anxiety

Depression

Low Iron

Anger

Low platelets

Inflammation

My blood sugar can sometimes bottom out.

 

I have had  depression since I was a teenager. My Iron the last time I was tested it was 32. 

 

I want to get tested since when I tried gluten-free before most of these symptoms at least improved. I know I need blood work but have no clue as to what test I need.  Can you help me figure out what ones to ask my doctor to run? I am supplementing my Iron my Dr wants to see if the iron improves.

 

My blood sugar can be fine one minute and like 39 the next. This happens mostly after I eat pasta I have told my doctors about that and they did nothing.


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cyclinglady Grand Master

Hi Cherries!

Here is the list of celiac tests but you have to be consuming gluten in order for the tests to work. Like 1 to 2 slices of bread a day for 8 to 12 weeks!

-Tissue Transglutaminase (tTG) IgA and (tTG) IgG

-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

The University of Chicago's celiac website is a great site for information including a gluten challenge. You would think that being gluten-free would resolve you low iron levels. Mine went back to normal within a few months of being on the diet (at least within the range! ).

Welcome to the forum and let us know how it goes!

cherries Newbie

Thanks for the info! I also think it'd be a good idea to write down what I'm eating for the day and when they happen.

squirmingitch Veteran

cherries, it's imperative that you eat gluten (1 to 2 slices of bread per day) for the 8 to 12 weeks or else you will have a false negative on your blood tests. We really can't stress that enough.

nvsmom Community Regular

Be aware that food sensitivity reactions can happen within minutes to 3 days after consuming the offending food. Especially the types of symptoms that you describe.

 

best wishes.

  • 3 weeks later...
cherries Newbie

Be aware that food sensitivity reactions can happen within minutes to 3 days after consuming the offending food. Especially the types of symptoms that you describe.

 

best wishes.

Thanks I went to the Dr and of course they tried to dismiss me again. I had my mother with me this time and she told them they listened and said it was reactive hypoglycemia. They then told me to try a gluten free diet. 

nvsmom Community Regular

No tests ordered?  :(

My reactive hypoglycemia symptoms were mostly eliminated after I started a low carb diet to address prediabetes and inflammation.  I no longer get large blood glucose swings.  Adding proteins to your carbs will help stop the swings somewhat too.


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cherries Newbie

No tests ordered?  :(

My reactive hypoglycemia symptoms were mostly eliminated after I started a low carb diet to address prediabetes and inflammation.  I no longer get large blood glucose swings.  Adding proteins to your carbs will help stop the swings somewhat too.

No they were more than willing to yell at me for not taking my multi vitamin because my vitamin d is low. They gave me a 50,000 unit weekly dose calling it a low dose.

nvsmom Community Regular

:(

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    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
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