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gilligan

Cross Reactive Coffee?

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Someone in another group mentioned that they were sure they were glutened by coffee.  Several people responded stating that coffee has protein in it, and she was probably getting ill from the cross-reactive property of the protein in the coffee acting like gluten.  What???  I laughed about this thinking that was the dumbest thing I ever heard, but...I looked it up and found that protein is in the root of the coffee plant and expresso has 0.05 gms of protein.  Of course, I quickly stated this on-line and mentioned that perhaps it was the caffeine irritating the poster,  and was shot down by the answer that it only takes as much protein as it does gluten to make one ill.  Have you been "glutened" by the protein in coffee?  

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What’s with all the talk about certain types of food causing “cross-reactivity?”

There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue.

http://www.cureceliacdisease.org/archives/faq/whats-with-all-the-talk-about-certain-types-of-food-causing-cross-reactivity

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Regular brewed coffee made by yourself is perfectly fine.   Folks need to look out for additives to their coffee or the possibility of cross contamination.   As always, read the label!  

 

4:00 pm.  Eeek!  This is my last cup of coffee cut-off time (if I want to fall asleep fast tonight).  I am making it iced though!  It is so hot!   :lol:

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If coffee were "cross reactive", I would be in the hospital by now. I drink six to eight cups of Dunkin' Donuts coffee every day. I have never had a gluten symptom from it yet.

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It is kind of a well known thing that some people drink their coffee to help them poop.  Obviously it is going to affect the GI system + more of some people, and they seem to be suffering from "Gluten Blinders" where everything is blamed on gluten and nothing else can ever be at fault.  That is why when, as a celiac, you are trying to figure out what made you sick, you have to look beyond gluten, because other things can be the culprit, and when they are, it has nothing to do with gluten.  Stomach flu?  There must be gluten in that random product I consumed this morning.  Food poisoning?  Well there must have been gluten in that meat!   Can't handle acidic foods/fatty foods/anything else in the book? Must be gluten!!  You just cannot fall into that trap.

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    Lindsay Cochrane
    Living with Celiac Disease in South Korea
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    Jefferson Adams
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  • Posts

    • Did the do the full panel? How long were you eating gluten, as you have to be eating it every day for about 8 weeks (6-12 depending on source of info) There are several blood test, and some celiac test negative on them but test positive on the biopsy via a endoscope.
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      https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/diagnosis/
      Post your results if you can, with ranges.

      Did they run scopes on both ends checking for other conditions, crohns, colitis, Ulcerative Colitis, IBD, etc? 

      Could be many things, floating is just a sign that the fats in the stool are not breaking down completely more of a intolerance issue related to enzymes not breaking down foods OR foods passing through the system too fast and not breaking down.
    • I've been  getting  gluten intolerance/celiac   symptoms    and  I was so certain  it was  from gluten and  whenever I cut out gluten   I feel better . I  had my blood tested (I was eating  gluten at the  time)  and i just got  a  call that it come back clear ,today is  a bad  day  all around as I had been incredibly careful what I ate  but have had dirrahea  today .I cant seem to  go more than  3 days in a row   having normal stools then I'm back to  where I started.  I know this sounds stupid but I was hoping with everything  it came back positive as I'm absolutely terrified that its something more serious like cancer.  I'm 35 and  am pretty healthy (or so I thought  )  I'm not bloated all the time  my stomach is flat in the  morning  but it for sure  seems food that is causing the  issue  .I don't  really eat dairy . It may be worth knowing that both my grandma and mother  suffer with occasional  "poop problems" such as dirrehea  , Could  we all have the same illness that hasn't been diagnosed? Can people suffer from loose bowels with no real cause ? My  poop sometimes floats  I've read that can be  due to an intolerance  but I just don't know what  😕 I'm not really sure why I'm posting here giving the fact my test come back negative but I'm absolutely beside myself over what else it could be  . Any advice ,suggestions or guidance will be very much appreciated 
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