Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bone Density Results: 2 good, 1 bad.


Opa3

Recommended Posts

Opa3 Apprentice

 

Based on the information below, can anyone explain a 2.8% loss of bone density at the Fermoral Neck and 6.6% gain at the Lumber Spine after 2 years? I have Celiac and I'm stunned by the opposite!

Treatment:

Alendronate, 70 mg/week  between April 25, 2013 to May 3, 2014. Ended due to stomach pain.

Project Healthy Bones Class: Feb. 24, 2014 to April 20, 2015. We focus on posture, balance, strength and flexibility.

Supplements: Calcium and Vit. D, daily.

                                          

                                      Bone Density Results

                                             T- Values

     Site                               March, 2013                          April, 2015

Lumber Spine                           -2.7                                        -2.2                            

L1-L4, Dx                         osteoporosis                              osteopenia

Density, g/cm2                         0.797                                      0.850

Change, %                           ------------                                    +6.6

------------------------------------------------------------------------------------------------

Left Hip                                 -1.7                                          -1.7

Dx                                    osteopenia                                osteopenia

Density, g/cm2                      0.773                                       0.776

Change, %                         ----------                                      +0.4

------------------------------------------------------------------------------------------------

Femoral Neck                        -2.3                                           -2.5

Dx                                   osteopenia                               osteoporosis                  

Density, g/cm2                     0.612                                           0.595

Change, %                        -----------                                        -2.8

--------------------------------------------------------------------------------------------

Thanks!

                


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I can not explain it but just wondered if you were tested on the same machine.  Is your doctor concerned? 

RMJ Mentor

I can't explain it either.  It is the opposite of my results - my hips got better and my spine worse.  I'm guessing that my exercises affect the hips more than the spine.

Richard Rosen Newbie

I normally go to a radiology group for bone density testing. However, one year I went to my local hospital; closer. Wow! Significant loss compared to steadily increasing density over several years. I suspected it might be in inaccurate test, and sure enough, two years later returning to my usual radiology service the results showed an increase from my last test there four years previous.

Two years later I did another test and there was an increase of 8% and 13% in the two areas and other than a mild ostopenia I had regained by bone density after a ten year effort. This I attribute to being truly gluten free for several years (finally figured how to order at restaurants), and exercise regimen focused on bone strengthening exercises, and taking 750 mg strontium for four years. It may be the strontium wasn't needed, but added it after researching.

One last thing: I am focused on natural health remedies and optimizing health with what I eat, supplements and avoiding the direction of the traditional medical establishment as much as I can.

Opa3 Apprentice

I normally go to a radiology group for bone density testing. However, one year I went to my local hospital; closer. Wow! Significant loss compared to steadily increasing density over several years. I suspected it might be in inaccurate test, and sure enough, two years later returning to my usual radiology service the results showed an increase from my last test there four years previous.

Two years later I did another test and there was an increase of 8% and 13% in the two areas and other than a mild ostopenia I had regained by bone density after a ten year effort. This I attribute to being truly gluten free for several years (finally figured how to order at restaurants), and exercise regimen focused on bone strengthening exercises, and taking 750 mg strontium for four years. It may be the strontium wasn't needed, but added it after researching.

One last thing: I am focused on natural health remedies and optimizing health with what I eat, supplements and avoiding the direction of the traditional medical establishment as much as I can.

I read strontium can can give a false increase the density results. I'm not happy with doctors either.

I can't explain it either.  It is the opposite of my results - my hips got better and my spine worse.  I'm guessing that my exercises affect the hips more than the spine.

I can not explain it but just wondered if you were tested on the same machine.  Is your doctor concerned? 

 For both dates,I used the same radiology service on a Hologic QDR 4500C bone denisitometer. My PCP ignored the results. I haven't hired a specialist yet.

cyclinglady Grand Master

Opa,

I  am am not a bone expert.  My recent (8/2015) scan result indicated that I am holding my own.  No big changes.  You would think I would have improved, but I did not.  I chose to get calcium from my foods, took some supplements, took Hormone Replacement Therapy (bones and to treat menopausal symptoms) and exercised (run, walk, swim, bike).    Perhaps it is just my age (54) or that I detest weights but I stopped worrying about it.  My rib and hip bone pain is gone and I have not had another fracture (T7 and T9 spinal fractures two months after my celiac disease diagnosis and I was doing nothing!). 

Perhaps age has something to do with it.   You seem to be doing your best.  I would avoid "high-risk of falling" activities (skateboarding, ice skating, etc.).  Otherwise, you seem to be doing great!  

 

Opa3 Apprentice

Opa,

I  am am not a bone expert.  My recent (8/2015) scan result indicated that I am holding my own.  No big changes.  You would think I would have improved, but I did not.  I chose to get calcium from my foods, took some supplements, took Hormone Replacement Therapy (bones and to treat menopausal symptoms) and exercised (run, walk, swim, bike).    Perhaps it is just my age (54) or that I detest weights but I stopped worrying about it.  My rib and hip bone pain is gone and I have not had another fracture (T7 and T9 spinal fractures two months after my celiac disease diagnosis and I was doing nothing!). 

Perhaps age has something to do with it.   You seem to be doing your best.  I would avoid "high-risk of falling" activities (skateboarding, ice skating, etc.).  Otherwise, you seem to be doing great!  

 

Hi Cyclinglady,

At age 70, I need lots of encouragement. Thanks. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

    2. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    3. - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    4. - Aretaeus Cappadocia replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,437
    • Most Online (within 30 mins)
      7,748

    vahid
    Newest Member
    vahid
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.