Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bone Density Results: 2 good, 1 bad.


Opa3

Recommended Posts

Opa3 Apprentice

 

Based on the information below, can anyone explain a 2.8% loss of bone density at the Fermoral Neck and 6.6% gain at the Lumber Spine after 2 years? I have Celiac and I'm stunned by the opposite!

Treatment:

Alendronate, 70 mg/week  between April 25, 2013 to May 3, 2014. Ended due to stomach pain.

Project Healthy Bones Class: Feb. 24, 2014 to April 20, 2015. We focus on posture, balance, strength and flexibility.

Supplements: Calcium and Vit. D, daily.

                                          

                                      Bone Density Results

                                             T- Values

     Site                               March, 2013                          April, 2015

Lumber Spine                           -2.7                                        -2.2                            

L1-L4, Dx                         osteoporosis                              osteopenia

Density, g/cm2                         0.797                                      0.850

Change, %                           ------------                                    +6.6

------------------------------------------------------------------------------------------------

Left Hip                                 -1.7                                          -1.7

Dx                                    osteopenia                                osteopenia

Density, g/cm2                      0.773                                       0.776

Change, %                         ----------                                      +0.4

------------------------------------------------------------------------------------------------

Femoral Neck                        -2.3                                           -2.5

Dx                                   osteopenia                               osteoporosis                  

Density, g/cm2                     0.612                                           0.595

Change, %                        -----------                                        -2.8

--------------------------------------------------------------------------------------------

Thanks!

                


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I can not explain it but just wondered if you were tested on the same machine.  Is your doctor concerned? 

RMJ Mentor

I can't explain it either.  It is the opposite of my results - my hips got better and my spine worse.  I'm guessing that my exercises affect the hips more than the spine.

Richard Rosen Newbie

I normally go to a radiology group for bone density testing. However, one year I went to my local hospital; closer. Wow! Significant loss compared to steadily increasing density over several years. I suspected it might be in inaccurate test, and sure enough, two years later returning to my usual radiology service the results showed an increase from my last test there four years previous.

Two years later I did another test and there was an increase of 8% and 13% in the two areas and other than a mild ostopenia I had regained by bone density after a ten year effort. This I attribute to being truly gluten free for several years (finally figured how to order at restaurants), and exercise regimen focused on bone strengthening exercises, and taking 750 mg strontium for four years. It may be the strontium wasn't needed, but added it after researching.

One last thing: I am focused on natural health remedies and optimizing health with what I eat, supplements and avoiding the direction of the traditional medical establishment as much as I can.

Opa3 Apprentice

I normally go to a radiology group for bone density testing. However, one year I went to my local hospital; closer. Wow! Significant loss compared to steadily increasing density over several years. I suspected it might be in inaccurate test, and sure enough, two years later returning to my usual radiology service the results showed an increase from my last test there four years previous.

Two years later I did another test and there was an increase of 8% and 13% in the two areas and other than a mild ostopenia I had regained by bone density after a ten year effort. This I attribute to being truly gluten free for several years (finally figured how to order at restaurants), and exercise regimen focused on bone strengthening exercises, and taking 750 mg strontium for four years. It may be the strontium wasn't needed, but added it after researching.

One last thing: I am focused on natural health remedies and optimizing health with what I eat, supplements and avoiding the direction of the traditional medical establishment as much as I can.

I read strontium can can give a false increase the density results. I'm not happy with doctors either.

I can't explain it either.  It is the opposite of my results - my hips got better and my spine worse.  I'm guessing that my exercises affect the hips more than the spine.

I can not explain it but just wondered if you were tested on the same machine.  Is your doctor concerned? 

 For both dates,I used the same radiology service on a Hologic QDR 4500C bone denisitometer. My PCP ignored the results. I haven't hired a specialist yet.

cyclinglady Grand Master

Opa,

I  am am not a bone expert.  My recent (8/2015) scan result indicated that I am holding my own.  No big changes.  You would think I would have improved, but I did not.  I chose to get calcium from my foods, took some supplements, took Hormone Replacement Therapy (bones and to treat menopausal symptoms) and exercised (run, walk, swim, bike).    Perhaps it is just my age (54) or that I detest weights but I stopped worrying about it.  My rib and hip bone pain is gone and I have not had another fracture (T7 and T9 spinal fractures two months after my celiac disease diagnosis and I was doing nothing!). 

Perhaps age has something to do with it.   You seem to be doing your best.  I would avoid "high-risk of falling" activities (skateboarding, ice skating, etc.).  Otherwise, you seem to be doing great!  

 

Opa3 Apprentice

Opa,

I  am am not a bone expert.  My recent (8/2015) scan result indicated that I am holding my own.  No big changes.  You would think I would have improved, but I did not.  I chose to get calcium from my foods, took some supplements, took Hormone Replacement Therapy (bones and to treat menopausal symptoms) and exercised (run, walk, swim, bike).    Perhaps it is just my age (54) or that I detest weights but I stopped worrying about it.  My rib and hip bone pain is gone and I have not had another fracture (T7 and T9 spinal fractures two months after my celiac disease diagnosis and I was doing nothing!). 

Perhaps age has something to do with it.   You seem to be doing your best.  I would avoid "high-risk of falling" activities (skateboarding, ice skating, etc.).  Otherwise, you seem to be doing great!  

 

Hi Cyclinglady,

At age 70, I need lots of encouragement. Thanks. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

    3. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,600
    • Most Online (within 30 mins)
      7,748

    C RYLES
    Newest Member
    C RYLES
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.