Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bone Density Results: 2 good, 1 bad.


Opa3

Recommended Posts

Opa3 Apprentice

 

Based on the information below, can anyone explain a 2.8% loss of bone density at the Fermoral Neck and 6.6% gain at the Lumber Spine after 2 years? I have Celiac and I'm stunned by the opposite!

Treatment:

Alendronate, 70 mg/week  between April 25, 2013 to May 3, 2014. Ended due to stomach pain.

Project Healthy Bones Class: Feb. 24, 2014 to April 20, 2015. We focus on posture, balance, strength and flexibility.

Supplements: Calcium and Vit. D, daily.

                                          

                                      Bone Density Results

                                             T- Values

     Site                               March, 2013                          April, 2015

Lumber Spine                           -2.7                                        -2.2                            

L1-L4, Dx                         osteoporosis                              osteopenia

Density, g/cm2                         0.797                                      0.850

Change, %                           ------------                                    +6.6

------------------------------------------------------------------------------------------------

Left Hip                                 -1.7                                          -1.7

Dx                                    osteopenia                                osteopenia

Density, g/cm2                      0.773                                       0.776

Change, %                         ----------                                      +0.4

------------------------------------------------------------------------------------------------

Femoral Neck                        -2.3                                           -2.5

Dx                                   osteopenia                               osteoporosis                  

Density, g/cm2                     0.612                                           0.595

Change, %                        -----------                                        -2.8

--------------------------------------------------------------------------------------------

Thanks!

                


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I can not explain it but just wondered if you were tested on the same machine.  Is your doctor concerned? 

RMJ Mentor

I can't explain it either.  It is the opposite of my results - my hips got better and my spine worse.  I'm guessing that my exercises affect the hips more than the spine.

Richard Rosen Newbie

I normally go to a radiology group for bone density testing. However, one year I went to my local hospital; closer. Wow! Significant loss compared to steadily increasing density over several years. I suspected it might be in inaccurate test, and sure enough, two years later returning to my usual radiology service the results showed an increase from my last test there four years previous.

Two years later I did another test and there was an increase of 8% and 13% in the two areas and other than a mild ostopenia I had regained by bone density after a ten year effort. This I attribute to being truly gluten free for several years (finally figured how to order at restaurants), and exercise regimen focused on bone strengthening exercises, and taking 750 mg strontium for four years. It may be the strontium wasn't needed, but added it after researching.

One last thing: I am focused on natural health remedies and optimizing health with what I eat, supplements and avoiding the direction of the traditional medical establishment as much as I can.

Opa3 Apprentice

I normally go to a radiology group for bone density testing. However, one year I went to my local hospital; closer. Wow! Significant loss compared to steadily increasing density over several years. I suspected it might be in inaccurate test, and sure enough, two years later returning to my usual radiology service the results showed an increase from my last test there four years previous.

Two years later I did another test and there was an increase of 8% and 13% in the two areas and other than a mild ostopenia I had regained by bone density after a ten year effort. This I attribute to being truly gluten free for several years (finally figured how to order at restaurants), and exercise regimen focused on bone strengthening exercises, and taking 750 mg strontium for four years. It may be the strontium wasn't needed, but added it after researching.

One last thing: I am focused on natural health remedies and optimizing health with what I eat, supplements and avoiding the direction of the traditional medical establishment as much as I can.

I read strontium can can give a false increase the density results. I'm not happy with doctors either.

I can't explain it either.  It is the opposite of my results - my hips got better and my spine worse.  I'm guessing that my exercises affect the hips more than the spine.

I can not explain it but just wondered if you were tested on the same machine.  Is your doctor concerned? 

 For both dates,I used the same radiology service on a Hologic QDR 4500C bone denisitometer. My PCP ignored the results. I haven't hired a specialist yet.

cyclinglady Grand Master

Opa,

I  am am not a bone expert.  My recent (8/2015) scan result indicated that I am holding my own.  No big changes.  You would think I would have improved, but I did not.  I chose to get calcium from my foods, took some supplements, took Hormone Replacement Therapy (bones and to treat menopausal symptoms) and exercised (run, walk, swim, bike).    Perhaps it is just my age (54) or that I detest weights but I stopped worrying about it.  My rib and hip bone pain is gone and I have not had another fracture (T7 and T9 spinal fractures two months after my celiac disease diagnosis and I was doing nothing!). 

Perhaps age has something to do with it.   You seem to be doing your best.  I would avoid "high-risk of falling" activities (skateboarding, ice skating, etc.).  Otherwise, you seem to be doing great!  

 

Opa3 Apprentice

Opa,

I  am am not a bone expert.  My recent (8/2015) scan result indicated that I am holding my own.  No big changes.  You would think I would have improved, but I did not.  I chose to get calcium from my foods, took some supplements, took Hormone Replacement Therapy (bones and to treat menopausal symptoms) and exercised (run, walk, swim, bike).    Perhaps it is just my age (54) or that I detest weights but I stopped worrying about it.  My rib and hip bone pain is gone and I have not had another fracture (T7 and T9 spinal fractures two months after my celiac disease diagnosis and I was doing nothing!). 

Perhaps age has something to do with it.   You seem to be doing your best.  I would avoid "high-risk of falling" activities (skateboarding, ice skating, etc.).  Otherwise, you seem to be doing great!  

 

Hi Cyclinglady,

At age 70, I need lots of encouragement. Thanks. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kit Kellison commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      6

      Oreo Debuts New Gluten-Free Mint Oreo Cookies

    2. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    3. 1
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,618
    • Most Online (within 30 mins)
      7,748

    R Johnson
    Newest Member
    R Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
    • Scott Adams
      By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.