Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Been glutened and need some help with a few answers

Momfor2bs

By Momfor2bs
in Coping with Celiac Disease

Recommended Posts

Momfor2bs Rookie
Momfor2bs
Posted

I have been trying really hard to watch everything I eat.  I was told due to Celiac about two months ago to eat gluten free.  I must have ate something over last weekend that had gluten in it because on Monday, I was so very tired and could hardly stay awake plus my stomach was not feeling good.  I started exercising at my local Curves for Woman gym about a month ago and have been feel pretty good up until last weekend.  Is there any thing I can do to get this gluten stuff out of my body asap?  Also, when I am feeling tired should I still try and exercise or should I just take it easy and rest.  Any words of wisdom would be very helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Getting glutened can happen to the best of us!  There is no quick fix.  Everyone heals at a different pace.  Remember, Celiac disease is not an allergy but an autoimmune response that is triggered by gluten.  It sets off a "flare-up" of symptoms.  It can last a few days, weeks or even months! 

I was glutened at the beginning of July (unknown source) and then most likely glutened while on vacation, despite my best efforts!  Took me about two months to feel better.  Even went back to my GI to get my antibodies tested.  Results confirmed that I did get glutened.  Ugh!

I drank lots of water, rested,  ate simple easy-to-digest foods. I also became lactose intolerant again!  :(  Those dairy enzymes seemed to help along with other digestive enzymes when I was really feeling bad. 

Things are looking up after a solid three months.  I am back to consuming dairy.   Did I figure what glutened me?  Nope.  I suspect two items that my husband never eats.  But I am not willing to test those items.  A few months of being ill is not worth it! 

Exercise?  Take it easy.  Gentle exercises for now.  Put all your healing into your gut.  I got off my bike for a few weeks.  Started walking, then running and then got back on my bike. 

Hang in there! 

 

BarryC Collaborator
BarryC
Posted

I was mostly symptom free after three months no gluten. I believe it takes that long for the gluten anti-bodies to leave your system? I have been reglutened twice since then, and all the symptoms returned with a vengeance, but after a few days they resolved. I am no expert, but I think the longer you are off gluten, if you are reglutened it hits you harder because you have less antibodies. If someone could set me straight it would be appreciated.

Momfor2bs Rookie
Momfor2bs
Posted
  • Author

Thank you for the feedback.  I am actually starting to feel a bit better today and not as tired.  My muscles and joints still feel tired and a bit stiff, but at least my eyes don't feel as tired today.  I work a full time secretary job and felt like I just wanted to curl up under my desk and take a long nap.  I really wanted to reach for a strong cup of coffee or tea because I was so tired and still needed to function at work, but after doing some reading on this site, I decided to just drink water and try and push through my day.

 I take a product call Digest All ( probiotic digestive enzyme) (recommended by a local health food store) one tablet before every meal and a probiotic daily plus CeliAct.  I hope all this is helping my body in some way.  I actually go see my GI doctor next week for a follow up (it's been about two months) since I was diagnosed via a small intestine biopsy.  Should my doctor run a vitamin panel to make sure my levels are ok?

Also, I work in a school so I come across a lot of colds/flu children/adults, should I get the flu shot?  What about taking Echinacea on a daily basis or when I feel something coming on?

This gluten/Celiac thing is new to me so I am still trying to figure things out.  Thank you for any and all words of wisdom :rolleyes:

 

cyclinglady Grand Master
cyclinglady
Posted

Glad things are improving!  Rest as much as you can this weekend.  Go ahead and have some coffee or tea -- just do not overdo it.  I can not give advice about the flu shot.  Last year's batch was a dud and was not effective.  Hopefully, they'll get it right this year!  They select three strands when they are many strands of the flu virus.  So, it's a crap shoot, but effective for many, especially those really ill people.  I must note that we work from home and not in a high risk environment like a school!  ;)

I think recent studies do not show any effectiveness of Echinacea.  You might want to research further.  I use those cold tablets that you dissolve in water.  I think it makes me feel better, I doubt that the contents actually work, but the brain is such a powerful healer!  My 14 year old gets colds, but hubby and I rarely do.  I think we have had all strains of cold virus and have missed the new ones!  Washing our hands and disinfecting door knobs while my germy kid is sick helps.  I guess that is one good thing about celiac disease, I have been very careful about not touching my face unless I wash my hands!  

 In any case, MAKE SURE ALL SUPPLEMENTS AND MEDICATIONS ARE GLUTEN FREE!

Ask your doctor to check you for vitamin and mineral deficiencies which are so common in celiacs.  I was severely deficient in iron (ferritin level was a 2).  Check for b-12, folate, and vitamin D for sure! 

 

JR Newbie
JR
Posted

When I get glutened, I vomit, get a massive migraine, have to go to the ER and get fluids and pain meds. I am in bed for at least 2-3 days. Going out to eat is a major, stressful event. I grill wait staff and it still happens sometimes. The last time, I wrote a letter to the restaurant, where I had eaten safely before. A trip to the ER is $3000!!!!

BarryC Collaborator
BarryC
Posted

I am so glad I dont have full blown celiac and have to suffer what you people do.  Being glutened sucks, but I get over it fairly quickly. Positive things I have noticed in the last few weeks:

* Better mental attitude and no more fuzzy thinking

* No more sore joints

* No more cravings

*No more digestive problems

*Best thing is am loosing weight!

God Bless you all, its so good to have friends!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I am so glad I dont have full blown celiac and have to suffer what you people do.  Being glutened sucks, but I get over it fairly quickly. Positive things I have noticed in the last few weeks:

* Better mental attitude and no more fuzzy thinking

* No more sore joints

* No more cravings

*No more digestive problems

*Best thing is am loosing weight!

God Bless you all, its so good to have friends!

Glad you are feeling better! 

cyclinglady Grand Master
cyclinglady
Posted

When I get glutened, I vomit, get a massive migraine, have to go to the ER and get fluids and pain meds. I am in bed for at least 2-3 days. Going out to eat is a major, stressful event. I grill wait staff and it still happens sometimes. The last time, I wrote a letter to the restaurant, where I had eaten safely before. A trip to the ER is $3000!!!!

After my last glutening in July, I have not even gone out to dinner.  My husband will go, but I am still too afraid.  It is just not worth being ill for two months and longer!  I felt like I started all over (my GI said I did with such elevated DGP results!)  Even the best of restaurants will make mistakes.  It is just a chance that I am not willing to risk again.  How long did it take for me to forget childbirth?  And to top it off,  I became lactose intolerant again and developed some hives due to new food intolerances!

I do think that I was getting glutened by one of two products, but I will never test them.  They were products that my husband never used.  I also went on vacation after that first glutening.  I am sure I was glutened a few more times or at least it felt like it!  Someday.....I will figure it out! 

BarryC Collaborator
BarryC
Posted

I have just gone from an awesome week, to feeling crappy. Its like I have a hangover or even the flu, but a voracious appetite. Have I caught the gluten flu-or am having withdrawel symptoms? After four months it seems late to be happenings, but I did have a couple minor accidental glutenings,  so  have really only been 100% glten free foe a couple weeks now.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,018
    • Most Online (within 30 mins)
      7,748
    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.