Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

e-mail to my daughter's girl scout troop


CeliacMommaX2

Recommended Posts

CeliacMommaX2 Enthusiast

I want to send an e-mail to my 5 year old's girl scout troop.  How does this sound?  Thanks!

 

Hi everyone!
 
I wanted to make you all aware that my daughter has celiac disease and must be strictly gluten free.  This involves avoided direct gluten (anything containing wheat, barley, or rye) and any items that may be cross-contaminated (from cutting boards, peanut butter containers, etc).  Celiac does not cause a medical emergency, but a crumb from a cracker can cause significant damage.  To avoid any risk or confusion, if you can let me know what snacks will be served then I can send her with something similar. 
 

Please let me know if you have any questions!  Thank you for helping me keep my child healthy!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am a Girl Scout and my daughter is a Senior.   I am active in the troop and attend most meetings and events.  We have one troop member since Daisys who has a severe peanut and milk allergy.  We have always done our best to accommodate this girl.    We have taken the time to educate ourselves (epi pen) and keep her safe.  When we camp or have sleepovers, our meals are prepared around her.  But for me?  I bring all my own food.   Cooking for a celiac is just asking too much!  It is much harder!  I will say our council camp is great at accommodating celiacs, but the cooks have had extensive training.  

Remember, these folks are all volunteers.  I would suggest a face-to-face meeting with the troop leaders.  I would also recommend attending the first few meetings even if you have to take off a few hours from work.  See how the troop functions.  Provide a few links to some celiac  sites that discuss the disease and that talk about safe kitchens and the dangers of Play Doh!  ?   Then the troop leader can talk to the other girls about keeping your daughter safe.  Think about giving the leader a box of gluten-free cereal bars as a back-up in case  you forget to send a snack would be wise.  

Your daughter can have a wonderful Girl Scout experience!  

mommida Enthusiast

You need to add oats to the list..

Oats (unless certified gluten free)

cyclinglady Grand Master

You need to add oats to the list..

Oats (unless certified gluten free)

?

nvsmom Community Regular

I agree. A face to face meeting can only help, and adding oats to the list is a good idea.

I tend to ask that my kids not be given any food and send food along with them.  When they go to camp, I sent them a tonne of extra food, from grahm crackers to buns to premade sandwichs to muffins) so they would be safe.

Will your daughter speak up for herself there?  I've been a leader and coach before, and I hate to admit that I forgot some health issues of some of my kids.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      4

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    2. - EndlessSummer posted a topic in Food Intolerance & Leaky Gut
      0

      Dizziness after eating green beans?

    3. - Sheila G. commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      4

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    4. - ShariW replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      My journey is it gluten or fiber?

    5. - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748

    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • EndlessSummer
      I only notice recently every time I eat green beans the roof of my mouth gets slightly itchy and I get extreme dizziness.     I get shaky and sweaty and it last for an hour or two before it goes away. I’ve been allergy tested in the past for food allergens only two came back positive (both in the tree-nut family) nothing in the legumes.   (I do have a celiac disease diagnosis, the reason I was food allergy tested was because I ate a walnut and my lips swelled up)  I decided to test this out to be sure so I ate a couple of cooked green beans last night within 15 minutes I was spinning, my shirt drenched in sweat. My heart racing.   I’m not sure what this is, I do have issues with others vegetables  as my stomach doesn’t seem to tolerate them. Even when they’re cooked I just can’t digest them but they never made me as dizzy and sweaty as the green beans.    anyone else experience this?
    • ShariW
      I have found that in addition to gluten, I am sensitive to inulin/chicory root fiber. I wondered why I had gastrointestinal symptoms after drinking a Chobani yogurt drink - much like being glutened. Happened at least twice before I figured out that it was that chicory root fiber additive. I do not react to ordinary dairy, yogurt, etc.  For the holidays, I will only be baking gluten-free treats. I got rid of all gluten-containing flours, mixes and pastas in my kitchen. Much easier to avoid cross-contamination that way!
    • Scott Adams
      It's great to hear that your gluten-free journey has been going well overall, and it's smart to be a detective when a reaction occurs. Distinguishing between a gluten cross-contamination issue and a reaction to high fiber can be tricky, as symptoms can sometimes overlap. The sudden, intense, food poisoning-like hour you experienced does sound more consistent with a specific intolerance or contamination, as a high-fiber reaction typically involves more digestive discomfort like bloating or gas that lasts longer. Since the protein bar was the only new variable, it’s a strong suspect; it's worth checking if it contains ingredients like sugar alcohols (e.g., maltitol, sorbitol) or certain fibers (inulin/chicory root) that are notorious for causing acute digestive upset, even in gluten-free products. For your holiday baking, your plan is solid: bake the gluten-free items first, use entirely separate utensils and pans (not just washed), and consider color-coding tools to avoid mix-ups. Additionally, store your gluten-free flours and ingredients well away from any airborne wheat flour, which can stay in the air for hours and settle on surfaces. Keep listening to your body and introducing new packaged foods one at a time—it’s the best way to navigate and pinpoint triggers on your journey.
    • Scott Adams
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.