Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Peds Celiac Training

jams

Recommended Posts

jams Explorer
jams
Posted

I am not sure if I am posting this in the right area. :rolleyes: Here I go though...

I took my daughter to the dr for her 5yr check today. I also have a 9yr old son. I said that I wanted to test them again for celiacs as it has been 2yrs since they were tested. Much to my surprise... He said, "I am on board with that!". :blink: I was a little startled as that is NOT the normal response from a dr about celiacs!!

He then told me that he was just at a celiac conference!!! He said the dr that did the speaking said that by the end of the seminar he wanted all of the doctors there testing every patient that picked their nose!!! :unsure: My dr said that he only tested those that had "classic" symptoms or those that have diabetes. He drew an iceberg with the very tip being "classic celiacs". I was SO excited when I left!! :D

He is going home tonight to review the notes he took. He is then going to do the HLA test on my kids to see if they even have the genes to be concerned with. We are also going to do the IGA since they are drawing blood. The kids aren't too happy about that but life is filled with unpleasureable things that we HAVE to do!! :D

So... I am SO excited that the word is out there! I sure do hope that more doctors learn about celiacs and that it is not all about GI problems!! OOHHH... He also said that 1 in 4K short stature kids test positive for thyroid. The numbers are 10 in 100 test positive for celiacs!!! THAT IS HUGE!!!!

I just wanted to share my excitement! My kids have not tested positive. I have. I am hoping that they can lead a normal life but if not, I'd rather it be this then diabetes!! ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

That is SO COOL!!! What a great experience.

:D

Nancy

Guest CD_Surviver
Guest CD_Surviver
Posted
He said, "I am on board with that!". 

<{POST_SNAPBACK}>

do you think you could give me this doctors contact info so that i can contact him. i am doing a research paper on celiac and i have to have aleast one contact so it would be nice to some how get a hlod of him or the doctor who did the confrence or even both.

Lauren

jams Explorer
jams
Posted
  • Author
do you think you could give me this doctors contact info so that i can contact him. i am doing a research paper on celiac and i have to have aleast one contact so it would be nice to some how get a hlod of him or the doctor who did the confrence or even both.

Lauren

<{POST_SNAPBACK}>

I will be seeing him tomorrow. I will ask if that is okay. Or I will ask him who did the speaking. I don't just want to give the info out without permission. I will either pm you tomorrow or pm me in case I forget. Our appt is at 10:30cst. I am VERY forgetful! I like to blame celiacs for that, I just don't know if that is the right thing to blame!! :rolleyes:

Canadian Karen Community Regular
Canadian Karen
Posted

The conferences must really be going around because when I was at my GP a couple of weeks ago, she had one of those dr.'s who are interning and shadowing her to learn. He came in before my GP did and introduced himself and started asking questions. As soon as I heard he was learning to be a dr., I made sure I started talking about celiac disease non-stop and rhyming off numbers of people effected, etc. etc. By the time my doctor came in, I had talked the poor guy's ear off about celiac disease. My dr. chuckled when I told her I was drilling celiac disease into this guy's brain and she said she had just returned from a celiac conference and started telling this guy all about it. It was really cool!

I can tell you one thing, this guy will be testing everyone who walks through his door when he becomes a doctor!!!!

Hugs.

Karen

Guest CD_Surviver
Guest CD_Surviver
Posted
I will be seeing him tomorrow.  I will ask if that is okay.  Or I will ask him who did the speaking.  I don't just want to give the info out without permission.  I will either pm you tomorrow or pm me in case I forget.  Our appt is at 10:30cst.  I am VERY forgetful!  I like to blame celiacs for that, I just don't know if that is the right thing to blame!! :rolleyes:

<{POST_SNAPBACK}>

thank you for checking with him.

Lauren

taweavmo3 Enthusiast
taweavmo3
Posted

What great news! I hope more and more doctors become informed, what a blessing that would be.

I was also recently surprised by my ped.....I made an appt. to have my other child tested, and he was also completely on board with it. I was all ready to defend my reasons for requesting the test, but he readily agreed, w/out a fight! I think he too is pretty up to date on the current celiac info, which is a refreshing change.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

That's great to hear Angi...hope the buzz continues to spread. ....That's why we all need to keep "running our mouths." :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.