Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloods are fine but still feeling horrific!


Jae

Recommended Posts

Jae Newbie

Hi,

I was diagnosed with Coeliac a month ago, and therefore had two weeks of B12 injections every other day, which did seem to help with my lethargy, concentration, mood etc, however the last few days I have been feeling terrible, my head pounds, I am so exhausted, agitated and restless. I thought I would just go and get my B12 tested they would say its deficient earlier than expected come in for a top up and you will feel right as rain... however the bloods were normal (I am due to have top ups on a two monthly basis) so why do I feel this way, I have completely avoided gluten, as far as I am aware I haven't been glutened. Is this normal? will I always feel this rubbish? is there a usual span of time that you feel rubbish after cutting out gluten! I can not concentrate at work and it obviously has an affect on my patience and home life due to my mood and irritability... please tell me this will pass!

thank yousad.gif


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

It will pass.  Really.  You are just starting out.  It can take some people weeks, months or years to feel well.  I improved at about six months.  At one year I was back on my bike riding.  At two years I was feeling pretty normal (am old and have to take that into consideration ?).  So, give it time and hang in there!  

Jays911 Contributor

Everybody is different.  I felt tremendously better after three days.  Then after a couple of weeks, I felt worse.  That lasted for a few weeks, and now I feel great most of the time.  It just varies.  Stay the course.

nvsmom Community Regular

I agree. Hang in there and it will get better.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,057
    • Most Online (within 30 mins)
      7,748

    CanadianBren
    Newest Member
    CanadianBren
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.