Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Results

cbcc1997

Recommended Posts

cbcc1997 Newbie
cbcc1997
Posted

Good morning. I received a call on Friday that my biopsy was consistent with Celiac Disease. I received the report today and I am confused with results. This is what it said...

Patchy mild increase in the numbers of intra-epithelial lymphocytes.  The finding of intraepithelial lymphocytosis with preserved villous architecture is a non specific immunological phenomenon that has a large number of possible causes. A mild histological manifestation of gluten sensitivity is one of these causes. 

It then goes on to say that Serology for tissue transglutaminase/deaminated gliadin peptide antibodies is recommended. I believe that is the blood test which I have and is negative. There could by many causes that would increase the numbers. 

Has anyone experienced any report like this? Since my blood test was negative and there could be other causes, do I actually have Celiac Disease?

Thank you. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

The TTG and the DGP tests are pretty specific for celiac disease.  You need to take a serious look at exactly what celiac blood tests were given.  Did you have the IGA deficiency test as well (it is a control test)?  Were you consuming gluten daily for 8 to 12 weeks prior to the blood draw?  This is the complete panel:

 
-Tissue Transglutaminase (tTG) IgA and (tTG) IgG
-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG
-EMA IgA 
-total serum IgA and IgG (control test)
 
 
-endoscopic biopsy - make sure at least 6 samples are taken
 
(Source: NVSMOM -- ?)
 
How many biopsies were taken?  At what locations? I personally tested positive on ONLY the DGP IGA and the rest of the celiac blood panel was negative, yet I had severe damage.  They diagnosed you with a Marsh Stage I but there could be more damage.  The small intestine is the size of a tennis court if spread out.  Finding damagd  areas is easy to miss.  
 
I recommend that you follow the advice of the pathologist and have the COMPLETE celiac panel done.  Be sure to keep eating gluten.  And finally, do some more research on celiac disease.  We are talking about your health.  Untreated celiac disease leads to CANCER! ?

 

Welcome to the forum and let us know how it goes! 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Cecile
      - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time.
    2. Jmartes71
      - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I get the shakes...
    4. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY
    5. RMJ
      - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,185
    • Most Online (within 30 mins)
      7,748
    JudahS
    Newest Member
    JudahS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Cecile
      Symptoms

      By Cecile · Posted

      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      Not validated

      By Jmartes71 · Posted

      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      New issue

      By Jmartes71 · Posted

      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      Do Gluten Enzymes actually work?

      By RMJ · Posted

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.