Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free baked goods making me sick

Rebekah3

By Rebekah3
in Coping with Celiac Disease

Recommended Posts

Rebekah3 Rookie
Rebekah3
Posted

Howdy all,

I've been gluten free since my biopsy about 2 weeks ago. The headache is subsiding to almost gone! So progress! However, whenever I eat gluten free baked goods (like my husbands birthday cake or my beloved gratify pretzels) I get horribly sick. Intense stomach pains and diarrhea. the pain from the pretzels last night is still with me this morning. The only new-to-me ingredients in these foods are the gums (cellulose gum, xanthan gum, guar gum, etc.) Can these ingredients cause this type of response? I'm literally goign to cry my eyes out if I can't have pretzels anymore D:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Sorry you are sick!  Your gut is damaged and processing many foods is going to be hard for a while.  I bet one of those gums is bothering you.  It may be all or one.  I found in the beginning that xanthan gum set me off.  It never bothered my hubby who had been gluten free for 12 years.  It was just a "me" thing (intolerance).  I switched to products with guar gum (Pamela's gluten-free flour blend) and was fine when I baked gluten-free cupcakes or cookies.   Those gums act like gluten as a binder and are needed to get a good gluten-free finished product.

Best to avoid most gluten-free processed foods for at least a month.  Like regular processed foods, they contain lots of weird chemicals and preservatives.  Best to consume whole foods that are well cooked and easy to digest.  What to do in a pinch?  Grab some fruit at the grocery store.  Plain chips (potato and oil).  Prepare food and freeze or keep in the frig (hard-boiled eggs).  I had a hard time eating peanuts but could eat Peanutbutter.  When I was glutened badly in July, I went back to eating stewed meats and veggies.  Anything I ate was so hard to digest!  But that resolved when I started to heal!  

The good news is that you should be able to eat those pretzels in a few months!  

bartfull Rising Star
bartfull
Posted

Everybody (including myself) is told to eat plain whole foods at first, and everybody (including myself) goes right out and buys gluten-free substitutes right away anyway. :rolleyes::lol:

I think it's because we feel so deprived at first and want our daily bread (or daily pretzels). Or it could be the ravenous hunger brought on by gluten withdrawal - we think if we could only have bread we won't feel like we're starving.

CyclingLady is right (as usual). You need to stick to whole foods that are easy to digest for a while. The pretzels and bread and birthday cake will be fine after your gut has had a chance to heal. :)

Rebekah3 Rookie
Rebekah3
Posted
  • Author

This makes complete sense. However, my doctor didn't say anything besides "no more gluten" I have 2 really small kids (2yrs and 9 months) so I am having a hard time making time to cook every meal :(

 

What do I eat?! I get the whole 'unprocessed and whole' bit, but what about dairy? What about bacon? things like that. And for how long? I'm a mess, I know.

cyclinglady Grand Master
cyclinglady
Posted

You can check out our "What is for dinner?" thread which contains lots of ideas.  Think simple though!  I have pork with green chiles in the crockpot.  I will shred it and serve it as tacos.  The leftovers get put into the freezer in little freezer bags.   We have tacos about once a week.  My family can prepare them when I go to orchestra practice.  I cook or grill chicken in large batches.  I serve it for dinner, with salad, veggie, potatoes or rice, etc.   The leftovers go into chicken rice soup, cold chicken salad, chicken enchiladas.  I cook ground beef in large batches and freeze, so spaghetti or chili is fast to make (taking that to the high school football game tomorrow night.)   I guess what I am trying to say is think big meals that you can make for leftovers.  My crockpot is my best friend.  It is sitting in the patio right  now (prevents heating up my house because it is still warm here!).  Then the next appliance I adore is my freezer in the garage.  It is filled with fish and meat I bought on sale, my gluten-free flour, frozen veggies,  and there is a container of pumpkin raisin cupcakes!  Perfect for my hubby to sneak each night.  Perfect for me to grab and take to a party.  Hummmm...I think I will make some chocolate mayonnaise cupcakes this afternoon.  ?

I get pretty tired in the evening because I am old,  so I prep my food early in the day.  Do this when the munchkins are napping or watching Winnie thePhooh for the 90th time!  Or cook on Saturday morning for then week when hubby or Grandma can watch the kids.  I confess I paid my 6th grade neighbor $3 or 4 dollars an hour to play with my two year old.  I would pay bills and cook.  She always was amazed when I came in to announce snacks time.  I always left the monitor on!  ? best $8 spent! 

Dairy is fine, but for some us,  we became lactose intolerant due to damaged villi.  All that came back after a year or so for me.    I eat plenty of bacon!  You just have to keep a  food and symptom journal and note as to what is bothering you.   We are all different.

Now it is time for lunch.  Tossed greens with leftover chicken and a fruit bowl for my hubby.  

Do  you have a Costco nearby?  Their rotisserie chicken is my new "fast" food.  

Hang in there!  

icelandgirl Proficient
icelandgirl
Posted

Hi...it's hard at first for sure.  The one thing I wish I'd listened to was to eat only whole foods for the first 6 months.  I didn't do the at first.  I felt awful and was convinced that I was reacting to everything.  After a bit of that I went to all whole foods for quite a while and started feeling better.  Your system needs time to heal.

I also use my crock pot a lot.  I have 3 kids, my youngest is 4, and it seems like we're always running around.  Putting something into the crock pot early in the day makes dinner time so easy and ensures that we all have something nutritious to eat.  

I had to avoid dairy completely for a while but now I can have it in small amounts.  I love having cream in my coffee again!

It will get better...hang in there!

bartfull Rising Star
bartfull
Posted

I second the crock pot idea.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MsMarginalized Rookie
MsMarginalized
Posted

Is there any way to get a LIKE button for posts? (or is there one & I'm too thick to see it??) ;)

cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, MsMarginalized said:

Is there any way to get a LIKE button for posts? (or is there one & I'm too thick to see it??) ;)

Then little green arrow located at the bottom right of the text box.  I "liked" you!  ?. It adds a little heart symbol.  

Rebekah3 Rookie
Rebekah3
Posted
  • Author

When oh when will we poor celiacs catch a break! Since posting I've eliminated all the processed stuff, and so far so good. I loooove to eat, so it's killing me. Of course I'm also trying to drop some more of this hideous baby weight....but it appears to not want to leave. Even without the processed foods :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,139
    • Most Online (within 30 mins)
      7,748
    kathleen apodaca
    Newest Member
    kathleen apodaca
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.