Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fibromyalgia and Sleep problems caused by Gluten Intolerance


Mitch694

Recommended Posts

Mitch694 Newbie

Hi, I recently was diagnosed as being gluten intolerant. I didn't go through with the biopsy to confirm as having Celiac Disease and the ttg-IgA test came up negative as well. Due to having classic neurological and digestive issues associated to gluten and being suggested by a doctor, I decided to go off gluten and began to see a massive difference. One of my major issues were terrible fatigue, an oversleeping problem were my cycle would 'magically' shift to morning hours disrupting daily activities. Apart from these, I have constant nausea, joint pain, nerve pain tending mostly to the right side of my body, severe memory and thinking problems ( brain fog - this has not improved yet being on a gluten free diet for about 2 months now) , anxiety attacks and chronic mild migraine headache. Exactly 2 weeks ago, I glutened myself accidently and within 2 days all my health concerns came back full swing.   I want to know whether it takes this long for the symptoms to reside and whether there is any treatment available for the sleep condition as it severely affects my daily life and my career. 

My sister who is 14 ( I am 22 ) has similar issues and her doctor just diagnosed her with fibromyalgia. Could I be having fibromyalgia too induced by gluten..or could this be Non-celiac gluten sensitivity?  Is there a solidified connection between the two? 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ccrew99 Apprentice

This seems to sound like your adrenals have been affected.  There is a significant correlatiom between gluten intolerance and adrenal burn out.  I was sick the last 2 years and was diagnosed with adrenal exhaustion caused by untreated celiac disease. I had and still have the exact symptoms that you describe. I strongly urge you to research adrenal exhaustion and have your adrenals tested.

 

cyclinglady Grand Master

Well....you could still have celiac disease.  Sounds like your doctor only ordered the TTG.  Did you get copies of the lab results?  Did he/she run an IgA deficiency test to insure that the TTG test result is valid?  Many celiacs are IgA deficient.   I say this because I test negative (even on follow-up testing) to the TTG even though it is a good test for celiac disease screening.    I only tested positive on the DGP IgA test yet my biopsies revealed moderate to severe intestinal damage when I was diagnosed.  Your doctor should have recommended a full celiac panel (if not the biopsies) before assigning a gluten intolerance diagnosis just to completely rule out celiac disease (standard GI protocol that you can google), but I am not a doctor.  

So, you are gluten free.  Probably too late to test now.  So, I would advise you to assume you have celiac disease.  That means for most of us it takes six months or years to have symptoms resolve.  Neurological symptoms are typically the last to resolve (if they resolve).  But you are young.  You should heal.  

Your glutening?  I was recently glutened in July (confirmed by my GI via blood panel.    It took me three months to heal.  Two months to be able to eat most foods that were not cooked to death.  Another month to get back dairy (became lactose intolerant again).  Lactose intolerance could be an issue too.  But here is some news -- everyone reacts to a glutening differently.  Everyone heals at a different rate too.   Read our Newbie 101 section.  It will help you navigate the the gluten free world.  It might help speed up your healing too!

Has your sister been tested for celiac disease?  Maybe she should get a complete panel.

Take care! 

Mitch694 Newbie

I got my IgA checked as well along with the TTG. It was normal. I am pushing my family to get my sister tested. I hope to know better answers from her.  I guess 2 months off gluten is too short for my symptoms to go away especially when i got glutened by small amounts between that period. :P

Thanks for pointing me towards the Newbie section. I will surely check it out. 

 

Take care! 

Mitch694 Newbie
8 hours ago, ccrew99 said:

This seems to sound like your adrenals have been affected.  There is a significant correlatiom between gluten intolerance and adrenal burn out.  I was sick the last 2 years and was diagnosed with adrenal exhaustion caused by untreated celiac disease. I had and still have the exact symptoms that you describe. I strongly urge you to research adrenal exhaustion and have your adrenals tested.

 

I did get my cortisol tested. It came up within normal limits though the value was on the border of low.  

ccrew99 Apprentice

 It is very important that you test your cortisol levels 4 times a day bc it fluctuates significantly throughout the day. Also aldosterone levels need to be checked. But yes it definitely sounds like you are affected by gluten and untreated can cause other parts of your body to be effected.   my sister in law had undiagnosed celiac as well and it started affecting her immune system. So you really need to find a good dr that can properly diaganose gluten intolerance so that further testing can be done to see if any other systems are being targeted.  Look up correlations btwn gluten intolerance and other autoimmune diseases.  You will be surprised.

 

Mitch694 Newbie

What kind of a doctor can i go to at best? I live in India especially in an area where doctors are not aware of all the symptoms and the potential effects of gluten. I had a difficult time over the past three years with this illness and honestly i feel like i am lost in it now - with the brain fog and everything. There is no facility with doctors in functional medicine either. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,028
    • Most Online (within 30 mins)
      7,748

    Ellen Bergeron
    Newest Member
    Ellen Bergeron
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • KimMS
      Thanks for sharing that site! Do you know if that site has any information about manufacturing/possible cross contact on it? I can't find it. When I have called manufacturers, most of them say they can't guarantee no cross contact in manufacturing (except Lannett, Mylan and possible Amneal, which aren't available near me).
    • Diana Swales
      After years of living with Celiac Disease, learning through every bump and breakthrough, and guiding others through the gluten-free maze — I've officially qualified as a **Nutrition Coach** with Precision Nutrition. Now I’m ready to take this journey deeper… but I need your help. To complete my final certification hours, I’m offering **a limited number of FREE spots** (yes, completely free!) to work with me over the next few weeks. I’m looking for **5 people** who: Are newly diagnosed with Celiac Disease or gluten-intolerant Feel overwhelmed, confused, or frustrated with food Want support from someone who truly understands Are ready to build confidence and calm in their daily eating We’ll work together on what matters to *you*: Your food choices Your mindset Your kitchen habits Your ability to speak up for your needs This isn’t just about avoiding gluten — it’s about reclaiming ease, joy, and nourishment. If you're interested, comment below or DM me the word **"Ready"** and I’ll send you the info to get started. Let’s make food feel safe again. With care, **Diana**
    • Dora77
      Hi everyone, I have celiac disease and I’m asymptomatic, which makes things more stressful because I don’t know when I’ve been glutened. That’s why I try to be really careful with cross-contamination. For almost a year, I’ve been having yellow/orange floating stools consistently. I’m not sure if it’s related to gluten exposure or something else going on. I’ve been trying to identify any possible mistakes in my routine. Today, I made myself some gluten-free bread with cheese. Normally, I’m very careful: I use one hand to handle the cheese packaging (which could be contaminated, since it’s from the supermarket and was probably sitting on a checkout belt that had flour residue), and the other hand to touch my gluten-free bread and plate. But today I accidentally touched the bread with the same hand I used to grab the cheese pack from the fridge. The fridge handle might also have traces of gluten since I live in a shared household where gluten is used. I’m worried this mistake could have contaminated my bread. There were no visible crumbs or flour, but I know even trace amounts can be a problem. Has anyone had similar experiences or symptoms from this level of contact? Could this kind of exposure be enough to trigger symptoms or cause intestinal damage? Thanks for reading.
    • Mswena
      So eight days in a row of gluten on top of gluten on top of gluten, I just had to resort to the EpiPen. I wish I could post a picture because you wouldn’t believe how enormous my gut is! It makes my head look like a pinhead.Ahhhgggsahhhhh!!!! I have discovered that I have to read the ingredients when I use a product up that I’ve been able to use without getting a reaction, because they can change the ingredients and bam my toothpaste now has gluten!!! my doctor told me gluten free means it has 20 ppm which someone with a severe a celiac as I’ve got that thing there kills me. I try to find certified gluten-free in everything. I can’t eat any oats unless it’s Bob’s red mill certified gluten-free. Good luck everybody this autoimmune disease is wicked wicked
    • Mswena
      I have been using a little bit of Lubriderm when I wash my hands because it’s the lotion offered at a place I frequent once a week. Assuming it was gluten-free I bought a bottle. I couldn’t figure out why I was getting gluten EVERY night. I use a little of the lotion in the morning on my neck, with no reaction, but at night, I use it on my arms and legs and face and get gluten gut pretty bad. After eight nights of having to have diphenhydramine injections for severe gluten, I googled “is Lubriderm gluten-free” and it led me to this forum. I am going to go back to olive oil as I have been gut sick sooooooo bad with a huge gut and pain eight days in a row now. Sick of feeling sick.
×
×
  • Create New...