Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Long Term Iron Supplementation for Women?


cristiana

Recommended Posts

cristiana Veteran

I hope you all had a good Christmas.

For the girls.

A couple of months ago I had to have blood test to see if I was anemic.  My blood iron which was just over 40 in April 2014 has now halved.  

About six months before my DX in 2013 I was put onto some pretty heavy-duty iron tablets for at that stage unexplained anemia.  This supplementation caused diarrhea and I bled (fissures, nothing more sinister) so was moved onto a much reduced dosage.  I found it was then causing me constipation so only took it now and again.  As I was so half-hearted taking it I concluded that it was probably going up because I was healing, thus stopped taking it all together.

My last blood test was requested by my doctor following a terrible period which was more like a haemorrhage.  Sorry for TMI.  

Ladies, could one incident of terrible blood loss cause my levels to drop?   Thankfully it seems to have been a one off, and nothing untoward was found in the scans.

 

 

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

My ferritin level went down from the high I had achieved after months from 26 (I think it was) down to 16 after one extremely heavy 2 week cycle.  I do think that one cycle can throw the iron off a lot.  My doctors have been watching my levels closely every 2 months recently.  I have dealt with some kind of hormonal imbalance.  I am considering with my doctors whether H-pylori may be playing a part in this.  I know my magnesium, vitamin B, and iron levels are high need.  I had already been checked for issues relating to uterus and female issues and found to have fibroids.  I hope this helps.

cyclinglady Grand Master

Yes!  Iron levels can drop fast in just a month per my doctor.  The key is how fast your body is able to recover. Amazingly, it can but some things like intestinal damage from celiac disease or heavy-long periods from hypothyroidism or other fluctuating hormones can prevent recovery (iron absorption).    Personally, I dealt with 30 day periods, undiagnosed celiac disease and thalassemia all at the same time.  I was an anemic mess.  But after going gluten-free, my thyroid calming down (Hashi's) and going through the menopause window, solved my anemia.  I still have Thals, but I have had that all my life and my body has adjusted.  My ferritin has been documented as low as a 2 but is now a healthy 50. I no longer take any iron supplements (stopped six months after my celiac disease diagnosis).  

cristiana Veteran

Thanks so much - v. informative.   I guess it would have been easier to know if malabsorption of iron was the principal problem behind my lower levels if I hadn't had these 'womens issues'.  I am taking some gluten-free Floradix every day now until my next blood test in about 25 days.  It will be interesting to see if it is a bit better by then.  

My aunt who has had colon cancer said her tumor made her anemic which worried me as pain was her only symptom - typical of me to think the worst and apply her story to mine.  She is fine now, glad to say.   However I started to wonder if the bad time I had a couple of months ago could cause a sudden drop or if it was something more sinister.  I must admit I felt terribly dizzy and weak for several days after that episode. 

 

Gemini Experienced

Floradix is a really good supplement for anemia and it doesn't cause constipation, which is such a problem for many when supplementing with iron.

  • 7 months later...
1desperateladysaved Proficient

Vitamin B12 injections seemed to help with my ferritin levels.  The finally popped up to 58!  I worked with a physician to get the shots.  I believe I had been suffering from mal-absorbption and the shots helped me over the HUMP!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,763
    • Most Online (within 30 mins)
      7,748

    Lisvancarmic
    Newest Member
    Lisvancarmic
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      The genetic testing results you provided indicate that your child carries two copies of the HLA-DQ2.5 beta chain (DQ Beta 1 *02:01, *02:01), which is a high-risk genetic marker for celiac disease. However, the alpha chain (DQ Alpha 1 *05:01, *05) is only partially present, as HLA-DQ2.5 typically requires the alpha chain *05:01 paired with the beta chain 02:01. Since your child has two copies of the beta chain (02:01) but only one full *05:01 alpha allele (the other appears truncated as *05), this suggests they are heterozygous for HLA-DQ2.5 rather than homozygous. The term "permissive for celiac disease" means your child has genetic susceptibility but not necessarily the highest-risk genotype (homozygous DQ2.5). Since celiac disease development also depends on environmental triggers and other factors, further testing (such as antibody screening or biopsy) may be needed to confirm a diagnosis. Consulting a genetic counselor or gastroenterologist can help clarify these results and next steps.
    • Jenny (AZ via TX)
    • DebJ14
      As my doctor said, you don't have to eat breakfast food for breakfast.  I may have a leftover piece of chicken and left over squash or eggs or I am actually more likely to skip breakfast as I do intermittent fasting.  In that case I eat lunch around 11:30 and have some guacamole and a salad with chicken or tuna.  For dinner I have pork, shrimp, chicken, lamb, or turkey with half a baked sweet potato and some broccoli, green beans, beets, carrots or cauliflower.  I do not eat any grains on the advice of my doctor.  I do not eat commercially processed products, even if they say they are gluten-free.  I make Warrior Bread every few weeks.  It has no yeast and contains almond flour and dried sweet potato.  Very tasty too.  A good book to help in this regard is No Grain, No Pain by Peter Osborne.  Thankfully, I can eat coconut and nuts and use those flours in baking and also use nut milks in cooking.  Since I am allergic to chocolate and vanilla, lemon is my go to flavor for something sweet.  My migraines totally disappeared once I went gluten and casein free.  I can occasionally eat certain high fat cheeses that are low in casein, as well as grass fed butter.  I use lots of Organic Olive and Avocado oil. The problems I thought I had with nightshades went away when I went fully organic.  And, the rest of my issues went away by avoiding the foods I tested positive to as well as avoiding all grains. I will be the first one to say that it is a very expensive way of eating, but thankfully we can afford to eat that way.  The good news is that I take no prescription meds at age 72.  At 54 before diagnosis, I was a mess and on a boatload of pharmaceuticals.  
    • lmemsm
      With that many foods removed from your diet, what do you eat?  I also have histamine issues and migraines so that takes out certain trigger foods and high histamine vegetables.  Have allergies to coconut and issues with nuts so those are out.  I'm beginning to think I may have to remove dairy and some of the grains beyond wheat to get allergies under control.  Just having so many issues figuring out what to make at meal times.  What's a typical breakfast look like for you?  Thanks.
    • knitty kitty
      @Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide).  They are available over the counter.   Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.  
×
×
  • Create New...