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Gluten free diet, positive celiac screen...what should I eat now?

purdue1014

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purdue1014 Newbie
purdue1014
Posted
  • Author
On 2/8/2016 at 3:01 PM, frieze said:

your cousin needs to be worked up for celiac, ASAP.  i know he is not 1' degree, but he is not all that far removed.

not to be rude or nosy, were you an only d/t miscarriage?  that tends to be more common in celiac women

 

Interesting thought!  Older sibling lived about 24 hours before passing.  Mom had a tough pregnancy (as she did with me).  Medical family members have speculated it was because mom had ITP in her 20s, but that's just a guess.  Never officially dx as a celiac. 

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purdue1014 Newbie
purdue1014
Posted
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Finally got my lab results today.  Positive for DPG IgG (12.0 EU/ml), and DPG IgA (9.9 EU/ml).  TTG IgA was negative at 0.5 U/ml, and EMA IgA was negative.  Total serum IgA by Nephelometry was 173 mg/dl.  

 

Thoughts?  

Now that I have the report, I'll contact the GI MD as we discussed above.  

Thanks guys!

cyclinglady Grand Master
cyclinglady
Posted
7 hours ago, purdue1014 said:

Finally got my lab results today.  Positive for DPG IgG (12.0 EU/ml), and DPG IgA (9.9 EU/ml).  TTG IgA was negative at 0.5 U/ml, and EMA IgA was negative.  Total serum IgA by Nephelometry was 173 mg/dl.  

 

Thoughts?  

Now that I have the report, I'll contact the GI MD as we discussed above.  

Thanks guys!

Two positives?  Looks like an endoscopy is in order.  When I tested, I only had one positive on the DGP IgA and the rest were negative, yet I had a Marsh Stage IIIB which translates to moderate to severe damage.

Good luck and keep us posted! 

squirmingitch Veteran
squirmingitch
Posted

Make sure to continue eating gluten until the endoscopy is done. Push very hard for 6 biopsies! 

purdue1014 Newbie
purdue1014
Posted
  • Author

Thanks ladies!  

Reintroducing gluten (from my Whole 30) Friday.  Should be interesting.  So far, the only thing that has given me issues was dairy.  It'll be pancakes and a couple of beers on Friday for me...

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