Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help with Severe C Difficile related Chronic Diarrhea and Food Malabsorption


91e970d0

Recommended Posts

91e970d0 Newbie

I'm trying to get my Mom help. She has been suffering with chronic diarrhea for several years. She contracted lymes disease and thus was prescribed antibiotics for treatment. Because of this treatment she contracted C Difficile for which she was treated I believe with antibiotics and other medications.

Ever since she contracted C Difficile, she is completely intolerant to even the smallest amount of dairy, fruits, and most vegetables. This is on top of the very rigid diet she was following for more than 20 years due to the fact that she has Celiacs Disease. 

It seems that she is only able to reasonably tolerate meat but even that does not go very well sometimes. It is terrible because she literally can't eat more than a couple of berries or she will have have painful cramps and diarrhea. I feel terrible because this is a daily struggle for her and I am worried about the long term health effects of her nutrient malabsoption.

She has gone to many doctors, nutritionists, and specialists but none of them have been able to help her. The most frustrating thing about it is that several of them, including specialists at the Mayo Clinic, have basically disregarded her symptoms and told her that "everyone has a sensitivity to fruit". While that may be true if you overindulge in them, my Mom cannot tolerate even the smallest amounts of pretty much all food now whereas she was fine before the C Difficile.

This has made everyday life very uncomfortable and difficult for her. Any help from people who have experienced similar situations or intolerances would be greatly appreciated.
 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Irene Joanne Explorer

Could this be a Salicylate sensitivity or allergy? That's something I'm dealing with now and most fruits are high in this. 

91e970d0 Newbie

Thanks for the reply. She has been tested for so many allergies but I do know that Salicylate was one of them. I will let her know. 

This is just so frustrating because she was fine before the incident with antibiotics and c diff. It is like her whole digestive system got destroyed in that process. 

  • 2 weeks later...
nutritionguy Rookie

Have any of the doctors talked with her or you about a fecal (stool) transplant?  This basically repopulates the gastrointestinal tract with normal (noninflammatory) bacteria.  For c. difficile, fecal transplant has a very high success rate of putting the infection into remission.  I think that at Johns Hopkins, they may be doing this--as well as some other major medical centers.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.