Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

HELP! Potenal gluten sensitivities or intolerance

Blueyedblond88

Recommended Posts

Blueyedblond88 Newbie
Blueyedblond88
Posted

I'm a woman in Saskatoon Saskatchewan Canada. I suspect I have gluten sensitivities and/or intolerance but my general doctor won't believe me so before I go bring the issue up with my doctor yet again I am hoping to gather a food diary and track symptoms that I can show to my doctor so he will hopefully believe me. Any help and/or support is more then welcome and greatly appreciated. Also if anyone knows of any FREE android apps that might help with the tracking of food and symptoms.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SLLRunner Enthusiast
SLLRunner
Posted

It's a good idea to keep a food diary and track how you feel after eating certain foods. I use the Sparkpeople tacking app, and used to use My Fitness Pal, but neither have an option to include notes with the foods you eat to track symptoms. 

However, your doctor not believing you means that he's already closed his mind to looking into why you feel badly. I suggest looking for another doctor, specifically one who has some knowledge in GI issues and food sensitivity.

Here's a free one I just downloaded to track my food and correlating symptoms.

Open Original Shared LinkOpen Original Shared Link

 

 

Blueyedblond88 Newbie
Blueyedblond88
Posted
  • Author

Thanks  I have tried to  talk to my doctor about the potential gluten sensitivities or intolerance but he just disregards  me and pass it off as lbs  because ibs can treated "masked" with meds. i My doctor is a pill pusher though and  I mostly have go in tell him what is wrong and he confirms it or not and I get given meds. He will not recognize that I might even potentially have gluten sensitivities or intolerance because he can't fix it with meds. my situation is a bit more complicated then just getting my doctor to believe me. I know my doctor will believe things if the "care home" I live in gets involved. I can't doing an elimination diet. Do the fact that I live in a " care home" that claims it is "resident derected care" when in fact the resident derected part is very minimal to nothing. the care home used to be a good fit for me. Before things changed for the worse. The care home provids basic food and will not let me or anyone do a different diet without a doctor saying it medically necessary. The care home will not even help me approach my doctor about the issue without me doing a food and symptom diary first so that there is   "proof" that my symptoms are  real and to see if the care home management desides there is a potential issues with my body and gluten. Even though by the care home management own admission they know nothing about gluten sensitivities. But that I have to follow protocol and have written record of my food consumption and symptoms before they will consider helping me at all. Even though I have symptoms 24/7 and have had For years. Even if I am diagnosed with gluten sensitivities I would most likely have to use what is left of my 315.00 dollars a month disability living benefit. After my cellphone, bus pass and personal care products are paid for to buy gluten free foods. If I was under the community living service delivery(clsd) mandate(laws and regulations regarding the treatment of people whose iq is 70 or less based on a standardized government issued test) that the government of Saskatchewan has and regulates this would get dealt with right a way with out me having to jump through hoops to get help.

SLLRunner Enthusiast
SLLRunner
Posted

Do you have a advocate from the group home staff, or a family member or friend who can help advocate for you? 

I would start keeping your food diary for sure, if that is what it takes to get further medical consultation.

Blueyedblond88 Newbie
Blueyedblond88
Posted
  • Author

Sadly no support at this point in time.being very independent means that i got to jump through the hoops first.seeing as the care home  management and the doctor  are buddy buddy and the doctor basically doses what the care home management wants it could be awhile. ButI am working towards getting the blood test  it could take awhile though. I am also working on learning to live independently with minimal supports so that hopefully in about a year from now I can move out of the care home

kareng Grand Master
kareng
Posted

You live in a group home because of some health issue?  Maybe the health issue is tied to gluten?  I think there is a lot more to this basic question than it first appears.

Blueyedblond88 Newbie
Blueyedblond88
Posted
  • Author

No I live in a group home because when I moved in 7 years ago it was and still is at this point in time a the only place I could go that is a safer and better place. then the toxic environment that is living with my mother. I only get minimum care other then what I am not permitted to do by the group home policies and provincial laws.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,848
    • Most Online (within 30 mins)
      7,748
    L.Garcia24
    Newest Member
    L.Garcia24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.