Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

HELP! Potenal gluten sensitivities or intolerance


Blueyedblond88

Recommended Posts

Blueyedblond88 Newbie

I'm a woman in Saskatoon Saskatchewan Canada. I suspect I have gluten sensitivities and/or intolerance but my general doctor won't believe me so before I go bring the issue up with my doctor yet again I am hoping to gather a food diary and track symptoms that I can show to my doctor so he will hopefully believe me. Any help and/or support is more then welcome and greatly appreciated. Also if anyone knows of any FREE android apps that might help with the tracking of food and symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SLLRunner Enthusiast

It's a good idea to keep a food diary and track how you feel after eating certain foods. I use the Sparkpeople tacking app, and used to use My Fitness Pal, but neither have an option to include notes with the foods you eat to track symptoms. 

However, your doctor not believing you means that he's already closed his mind to looking into why you feel badly. I suggest looking for another doctor, specifically one who has some knowledge in GI issues and food sensitivity.

Here's a free one I just downloaded to track my food and correlating symptoms.

Open Original Shared LinkOpen Original Shared Link

 

 

Blueyedblond88 Newbie

Thanks  I have tried to  talk to my doctor about the potential gluten sensitivities or intolerance but he just disregards  me and pass it off as lbs  because ibs can treated "masked" with meds. i My doctor is a pill pusher though and  I mostly have go in tell him what is wrong and he confirms it or not and I get given meds. He will not recognize that I might even potentially have gluten sensitivities or intolerance because he can't fix it with meds. my situation is a bit more complicated then just getting my doctor to believe me. I know my doctor will believe things if the "care home" I live in gets involved. I can't doing an elimination diet. Do the fact that I live in a " care home" that claims it is "resident derected care" when in fact the resident derected part is very minimal to nothing. the care home used to be a good fit for me. Before things changed for the worse. The care home provids basic food and will not let me or anyone do a different diet without a doctor saying it medically necessary. The care home will not even help me approach my doctor about the issue without me doing a food and symptom diary first so that there is   "proof" that my symptoms are  real and to see if the care home management desides there is a potential issues with my body and gluten. Even though by the care home management own admission they know nothing about gluten sensitivities. But that I have to follow protocol and have written record of my food consumption and symptoms before they will consider helping me at all. Even though I have symptoms 24/7 and have had For years. Even if I am diagnosed with gluten sensitivities I would most likely have to use what is left of my 315.00 dollars a month disability living benefit. After my cellphone, bus pass and personal care products are paid for to buy gluten free foods. If I was under the community living service delivery(clsd) mandate(laws and regulations regarding the treatment of people whose iq is 70 or less based on a standardized government issued test) that the government of Saskatchewan has and regulates this would get dealt with right a way with out me having to jump through hoops to get help.

SLLRunner Enthusiast

Do you have a advocate from the group home staff, or a family member or friend who can help advocate for you? 

I would start keeping your food diary for sure, if that is what it takes to get further medical consultation.

Blueyedblond88 Newbie

Sadly no support at this point in time.being very independent means that i got to jump through the hoops first.seeing as the care home  management and the doctor  are buddy buddy and the doctor basically doses what the care home management wants it could be awhile. ButI am working towards getting the blood test  it could take awhile though. I am also working on learning to live independently with minimal supports so that hopefully in about a year from now I can move out of the care home

kareng Grand Master

You live in a group home because of some health issue?  Maybe the health issue is tied to gluten?  I think there is a lot more to this basic question than it first appears.

Blueyedblond88 Newbie

No I live in a group home because when I moved in 7 years ago it was and still is at this point in time a the only place I could go that is a safer and better place. then the toxic environment that is living with my mother. I only get minimum care other then what I am not permitted to do by the group home policies and provincial laws.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    5. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,361
    • Most Online (within 30 mins)
      7,748

    Julie Mitchell
    Newest Member
    Julie Mitchell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.