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HELP! Potenal gluten sensitivities or intolerance

Blueyedblond88

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Blueyedblond88 Newbie
Blueyedblond88
Posted

I'm a woman in Saskatoon Saskatchewan Canada. I suspect I have gluten sensitivities and/or intolerance but my general doctor won't believe me so before I go bring the issue up with my doctor yet again I am hoping to gather a food diary and track symptoms that I can show to my doctor so he will hopefully believe me. Any help and/or support is more then welcome and greatly appreciated. Also if anyone knows of any FREE android apps that might help with the tracking of food and symptoms.

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SLLRunner Enthusiast
SLLRunner
Posted

It's a good idea to keep a food diary and track how you feel after eating certain foods. I use the Sparkpeople tacking app, and used to use My Fitness Pal, but neither have an option to include notes with the foods you eat to track symptoms. 

However, your doctor not believing you means that he's already closed his mind to looking into why you feel badly. I suggest looking for another doctor, specifically one who has some knowledge in GI issues and food sensitivity.

Here's a free one I just downloaded to track my food and correlating symptoms.

Open Original Shared LinkOpen Original Shared Link

 

 

Blueyedblond88 Newbie
Blueyedblond88
Posted
  • Author

Thanks  I have tried to  talk to my doctor about the potential gluten sensitivities or intolerance but he just disregards  me and pass it off as lbs  because ibs can treated "masked" with meds. i My doctor is a pill pusher though and  I mostly have go in tell him what is wrong and he confirms it or not and I get given meds. He will not recognize that I might even potentially have gluten sensitivities or intolerance because he can't fix it with meds. my situation is a bit more complicated then just getting my doctor to believe me. I know my doctor will believe things if the "care home" I live in gets involved. I can't doing an elimination diet. Do the fact that I live in a " care home" that claims it is "resident derected care" when in fact the resident derected part is very minimal to nothing. the care home used to be a good fit for me. Before things changed for the worse. The care home provids basic food and will not let me or anyone do a different diet without a doctor saying it medically necessary. The care home will not even help me approach my doctor about the issue without me doing a food and symptom diary first so that there is   "proof" that my symptoms are  real and to see if the care home management desides there is a potential issues with my body and gluten. Even though by the care home management own admission they know nothing about gluten sensitivities. But that I have to follow protocol and have written record of my food consumption and symptoms before they will consider helping me at all. Even though I have symptoms 24/7 and have had For years. Even if I am diagnosed with gluten sensitivities I would most likely have to use what is left of my 315.00 dollars a month disability living benefit. After my cellphone, bus pass and personal care products are paid for to buy gluten free foods. If I was under the community living service delivery(clsd) mandate(laws and regulations regarding the treatment of people whose iq is 70 or less based on a standardized government issued test) that the government of Saskatchewan has and regulates this would get dealt with right a way with out me having to jump through hoops to get help.

SLLRunner Enthusiast
SLLRunner
Posted

Do you have a advocate from the group home staff, or a family member or friend who can help advocate for you? 

I would start keeping your food diary for sure, if that is what it takes to get further medical consultation.

Blueyedblond88 Newbie
Blueyedblond88
Posted
  • Author

Sadly no support at this point in time.being very independent means that i got to jump through the hoops first.seeing as the care home  management and the doctor  are buddy buddy and the doctor basically doses what the care home management wants it could be awhile. ButI am working towards getting the blood test  it could take awhile though. I am also working on learning to live independently with minimal supports so that hopefully in about a year from now I can move out of the care home

kareng Grand Master
kareng
Posted

You live in a group home because of some health issue?  Maybe the health issue is tied to gluten?  I think there is a lot more to this basic question than it first appears.

Blueyedblond88 Newbie
Blueyedblond88
Posted
  • Author

No I live in a group home because when I moved in 7 years ago it was and still is at this point in time a the only place I could go that is a safer and better place. then the toxic environment that is living with my mother. I only get minimum care other then what I am not permitted to do by the group home policies and provincial laws.

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    • StuartJ
      Gluten Sensitivity

      By StuartJ · Posted

      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      Could this be a new intolerance

      By trents · Posted

      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      Could this be a new intolerance

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