Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Bread is Baking

SLLRunner

Recommended Posts

SLLRunner Enthusiast
SLLRunner
Posted

I had a doctor's appointment today and spoke frankly with her about my gluten intolerance. I am on a four week gluten challenge prior to the blood tests for celiac, which means I may be miserable until April 16, or longer to an endoscope date (I don't want another one, but they took only one biopsy of my small intestine last time). 

Regular bread is baking in the bread maker. 

I bought Bob Mill's creamy wheat cereal for my breakfasts. 

I bought wheat tortillas for my sandwich wraps for lunches. 

I am not looking forward to this, but my mistake was finding out for the last three weeks how good I was beginning to feel without obvious gluten in my diet. 

I keep a food diary anyway, but I also track symptoms.

Today, the heartburn has already started...and my throat has that awful old feeling again.  

Let my lesson be yours:  if you suspect your might have a gluten problem, don't stop eating gluten but talk to your doctor and ask for celiac testing.  It's always better to talk frankly with your doctor and be proactive when it comes to your healthcare. 

Since I have discovered that I am at least intolerant to gluten, I want to know one way or another if I have any disease process going on. 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Hang in there!  Please eat some sourdough bread for me spread with a generous chuck of sweet butter!  

squirmingitch Veteran
squirmingitch
Posted

Don't eat anything for me cause I don't miss it. But ENJOY what you can, while you can!

Oh you poor baby. The next 4 weeks are going to get rough. {{{{{{{{{{{{{SLLRunner}}}}}}}}}}}}}}}}}}}}

cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, squirmingitch said:

Don't eat anything for me cause I don't miss it. But ENJOY what you can, while you can!

Oh you poor baby. The next 4 weeks are going to get rough. {{{{{{{{{{{{{SLLRunner}}}}}}}}}}}}}}}}}}}}

You know, I honestly do not miss anything with gluten.  I just miss being able to eat out with ease.  

SLLRunner Enthusiast
SLLRunner
Posted
  • Author
7 hours ago, cyclinglady said:

Hang in there!  Please eat some sourdough bread for me spread with a generous chuck of sweet butter!  

Thanks, Cyclinglady. I will admit, I did enjoy a piece of my homemade French bread with my breakfast this morning....but my body is yelling at me right now.  Hello heartburn (which was all gone when I was not eating gluten), and hello again to the heart flutters (nothing wrong with my actual heart, that was checked out). 

SLLRunner Enthusiast
SLLRunner
Posted
  • Author
3 hours ago, squirmingitch said:

Don't eat anything for me cause I don't miss it. But ENJOY what you can, while you can!

Oh you poor baby. The next 4 weeks are going to get rough. {{{{{{{{{{{{{SLLRunner}}}}}}}}}}}}}}}}}}}}

I know....it's already getting tough. Today my boss asked if I was okay, was I getting enough sleep, etc. I explained to him what was going on. I am having a difficult time concentrating.

squirmingitch Veteran
squirmingitch
Posted
2 hours ago, cyclinglady said:

You know, I honestly do not miss anything with gluten.  I just miss being able to eat out with ease.  

Amen to that cyclinglady! I miss the convenience of gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted
58 minutes ago, SLLRunner said:

I know....it's already getting tough. Today my boss asked if I was okay, was I getting enough sleep, etc. I explained to him what was going on. I am having a difficult time concentrating.

I'm glad you explained to your boss. I'm curious what kind of reaction you got to that? Care to share?

SLLRunner Enthusiast
SLLRunner
Posted
  • Author
1 hour ago, squirmingitch said:

I'm glad you explained to your boss. I'm curious what kind of reaction you got to that? Care to share?

My boss is great. He listened to what I had to say and said he understood. We've been working together for 12 years, so we know each other pretty well. 

squirmingitch Veteran
squirmingitch
Posted
9 hours ago, SLLRunner said:

My boss is great. He listened to what I had to say and said he understood. We've been working together for 12 years, so we know each other pretty well. 

This is wonderful! Hooray!

SLLRunner Enthusiast
SLLRunner
Posted
  • Author
1 hour ago, squirmingitch said:

This is wonderful! Hooray!

I think it is too. The only person who is having a difficult time accepting that it could be celiac is my partner, who first thought I had h-pylori (negative). His second cousin was diagnosed with celiac at about 11,and her intestines were pretty damaged, so he originally thought you have to have malnutrition and be underweight, and that it's generally diagnosed when you're young. I'm sure these are common misconceptions.

Today are the itches, and the eczema on the back of my neck has taken a nasty flare for the first time in ages.

By the way, my mother has been deceased since 1985, but I'm convinced she had celiac and didn't know it--horrible digestion, visibly bloated, depressed, never felt well, itching, and eczema on the back of her neck just like me, and the doctors could never find out what was wrong with her. Unfortunately, she was diagnosed with lung and liver cancer from smoking at 42, and died nine months later.  So, she never really got the opportunity to feel better. 

squirmingitch Veteran
squirmingitch
Posted

Oh that's so sad about your mom. 

At least your partner has a relative with celiac so knows it's a "real" thing. Lot's of times we get people whose spouse/s.o. doesn't believe celiac is really a real disease &/or doesn't think it's something you seriously need to be strict about the diet.

SLLRunner Enthusiast
SLLRunner
Posted
  • Author
4 hours ago, squirmingitch said:

Oh that's so sad about your mom. 

At least your partner has a relative with celiac so knows it's a "real" thing. Lot's of times we get people whose spouse/s.o. doesn't believe celiac is really a real disease &/or doesn't think it's something you seriously need to be strict about the diet.

Squirmingitch, you're right, he does know Celiac is very serious-thank goodness.  I think it's more his heart that is getting in the way rather than not believing I could have it.  Whether or not I do have it, once the testing is done I will not be consuming gluten because I truly do not feel well when I do.  I am already lactose intolerant and have a sensitivity to soy (small amounts as an ingredients do not bother me, but I can't eat tofu, soya beans, or drink soy milk, because it makes my stomach hurt like crazy). Oatmeal gives my heartburn, even though it has no gluten. 

SLLRunner Enthusiast
SLLRunner
Posted
  • Author

Update:

I am in week two of the gluten challenge, and I'm eating lots of it: many of my digestive problems have returned full force, but the acid reflux has calmed down.  Also, I'm fatigued, foggy head and grumpy.  A part of me wants to quit, but I know better. 

On Monday, I have a phone appointment with a specialist in food allergies.  His nurse told me he does the phone appointment then usually orders blood tests with a follow up appointment. I have to let him know I can't do a celiac panel yet.

That's the current scoop. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,719
    • Most Online (within 30 mins)
      7,748
    storeopinionpc
    Newest Member
    storeopinionpc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.