Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping with others who say they're gluten-free but eat gluten


littlesista

Recommended Posts

littlesista Newbie

I know this will all seem silly:

But I work in a fairly small office (15 people) and some eat "gluten light."  I have celiac and have been gluten-free for years and I'm really strict.  A few years ago a new employee started and she said she's stricter than me (it's not a competition) because she eats grain free to avoid inflammation. After a while, it was obvious she ate grains, so now she says gluten free.

I don't know why, but it irritates me that she says she eats a strict gluten free diet when I've seen her eat gluten many times.  Twice I tried going out to lunch with her and she didn't even ask about gluten free food.  She picked the restaurant so I thought it would be okay to eat there.  No gluten free choices; they tried, but I got sick.  I've never eaten out with her again.

I think it wouldn't bother me so much but she sits near my desk and I hear her discuss it a lot... how she's strict and eats gluten free.  (I don't talk about it at work at all unless for some reason I'd have to.)

Wish I could just let it go.  I don't ever say anything, because where would it get me?

Guess I'm just venting about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SLLRunner Enthusiast

Welcome, @littlesista!

I understand, hearing people say one thing and seeing them do another thing can be pretty irritating, especially when it comes to diseases and health. I think you're smart in not eating out with her anymore because it sounds like she does not take gluten free eating seriously.  If she does not have celiac, I can understand why. 

That said, I once heard someone say she has celiac but can have gluten once in awhile as long as she takes Benadryl, and then she proceeded to eat plenty of it. I definitely said something such as, "What? You have celiac and you eat gluten?"

manasota Explorer
12 hours ago, littlesista said:

I know this will all seem silly:

But I work in a fairly small office (15 people) and some eat "gluten light."  I have celiac and have been gluten-free for years and I'm really strict.  A few years ago a new employee started and she said she's stricter than me (it's not a competition) because she eats grain free to avoid inflammation. After a while, it was obvious she ate grains, so now she says gluten free.

I don't know why, but it irritates me that she says she eats a strict gluten free diet when I've seen her eat gluten many times.  Twice I tried going out to lunch with her and she didn't even ask about gluten free food.  She picked the restaurant so I thought it would be okay to eat there.  No gluten free choices; they tried, but I got sick.  I've never eaten out with her again.

I think it wouldn't bother me so much but she sits near my desk and I hear her discuss it a lot... how she's strict and eats gluten free.  (I don't talk about it at work at all unless for some reason I'd have to.)

Wish I could just let it go.  I don't ever say anything, because where would it get me?

Guess I'm just venting about it.

littlesista,

You are NOT being silly!  The vast majority of people have not been educated about Celiac Disease.  Each time this coworker spouts incorrect info about being gluten free, it puts doubt into others's minds about how you need to be in order to REALLY be gluten free.  It makes your job (which you never asked for) that much harder when you do need to explain your gluten free requirements.  It is more than annoying.  It can negatively affect your very life.  That said, however, your only option is to maintain your position at every opportunity.

It's just one more example of the unfair stuff in life that we need to endure while maintaining our own strength and truth.  Stand tall in your truth!  Hopefully, over time, your coworkers (at least the ones you respect) will come to see your position as more "true".  I have found that if a person always stays true to themselves--no matter what--respect is always the result.  Take pride in your integrity and others will also--maybe even eventually the "offender" will come around to your quiet tenacity.

Hugs, hugs, hugs!  (I've been where you are.  You can do it.)

P.S.  Do NOT engage in a confrontation with the "offender".  When it is necessary to explain how you need to be in order to be gluten free, do it in a calm & quiet voice.  Others will listen.

cyclinglady Grand Master
2 hours ago, manasota said:

littlesista,

You are NOT being silly!  The vast majority of people have not been educated about Celiac Disease.  Each time this coworker spouts incorrect info about being gluten free, it puts doubt into others's minds about how you need to be in order to REALLY be gluten free.  It makes your job (which you never asked for) that much harder when you do need to explain your gluten free requirements.  It is more than annoying.  It can negatively affect your very life.  That said, however, your only option is to maintain your position at every opportunity.

It's just one more example of the unfair stuff in life that we need to endure while maintaining our own strength and truth.  Stand tall in your truth!  Hopefully, over time, your coworkers (at least the ones you respect) will come to see your position as more "true".  I have found that if a person always stays true to themselves--no matter what--respect is always the result.  Take pride in your integrity and others will also--maybe even eventually the "offender" will come around to your quiet tenacity.

Hugs, hugs, hugs!  (I've been where you are.  You can do it.)

P.S.  Do NOT engage in a confrontation with the "offender".  When it is necessary to explain how you need to be in order to be gluten free, do it in a calm & quiet voice.  Others will listen.

I agree with everything Manasota and SLRunner said (and it was well said too!) 

littlesista Newbie
17 hours ago, SLLRunner said:

Welcome, @littlesista!

I understand, hearing people say one thing and seeing them do another thing can be pretty irritating, especially when it comes to diseases and health. I think you're smart in not eating out with her anymore because it sounds like she does not take gluten free eating seriously.  If she does not have celiac, I can understand why. 

That said, I once heard someone say she has celiac but can have gluten once in awhile as long as she takes Benadryl, and then she proceeded to eat plenty of it. I definitely said something such as, "What? You have celiac and you eat gluten?"

Thank you for the response, SSLRunner.  Yeah, I've seen that too.  I have relatives who say they probably have celiac disease and eat gluten free, but cheat all the time.  I just can do that!  

littlesista Newbie
7 hours ago, manasota said:

littlesista,

You are NOT being silly!  The vast majority of people have not been educated about Celiac Disease.  Each time this coworker spouts incorrect info about being gluten free, it puts doubt into others's minds about how you need to be in order to REALLY be gluten free.  It makes your job (which you never asked for) that much harder when you do need to explain your gluten free requirements.  It is more than annoying.  It can negatively affect your very life.  That said, however, your only option is to maintain your position at every opportunity.

It's just one more example of the unfair stuff in life that we need to endure while maintaining our own strength and truth.  Stand tall in your truth!  Hopefully, over time, your coworkers (at least the ones you respect) will come to see your position as more "true".  I have found that if a person always stays true to themselves--no matter what--respect is always the result.  Take pride in your integrity and others will also--maybe even eventually the "offender" will come around to your quiet tenacity.

Hugs, hugs, hugs!  (I've been where you are.  You can do it.)

P.S.  Do NOT engage in a confrontation with the "offender".  When it is necessary to explain how you need to be in order to be gluten free, do it in a calm & quiet voice.  Others will listen.

Thank you!  You're right, I just need to take the higher ground and stay true to myself.  Also, I will continue to fight the urge to confront her.  Thanks for the support!

 

Gemini Experienced
On 4/9/2016 at 4:19 PM, littlesista said:

Thank you!  You're right, I just need to take the higher ground and stay true to myself.  Also, I will continue to fight the urge to confront her.  Thanks for the support!

 

I have another person in my group at work who has Celiac, although she was never tested.  Her mother has it as bad as I do so she assumed when she developed symptoms that was it and went gluten free.......or so she thinks!  ;)

She is the one who will eat frosting off of a gluten cake so when that happened at a group birthday party at work, one of the secretaries in our office came to me privately afterwards and asked me why it was OK for this other woman to do that when I could not.  After all, we have the same disease.  I looked her in the eye and said....."Because so and so is an idiot."  Well....the secretary got wide eyed and then she laughed and said that she got that impression anyway.  She knows how hard I work to be absolutely gluten-free and how this other woman cheats.  I just couldn't resist saying that!

It is hard to listen to nonsense coming from someone else's mouth but if an opportunity arises where I can "correct" them with a fake smile on my face, I do it.  Those opportunities are so few and far between.  My sister also eats gluten-free and hasn't been tested but I think she really does have a problem.  Severe symptoms when she eats gluten but she still continues to cheat.  A couple of times when I was forced to eat out at a family gathering with her, she ordered something she should not eat as a Celiac and when asked if I wanted to try some, I just look at her and decline, telling her I can't because it is not gluten free.  That shuts her up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



littlesista Newbie

That's funny... I have a sister who says she's gluten free but wasn't tested and also isn't very strict!  We've gone out to eat with other family members and she finally picked up on my drill "can I have a gluten free menu please?"  "can you please be sure to tell the chef it HAS to be gluten free."  And yet, she orders items I would never order.

We just have to be true to ourselves and try to not let others get to us.  Some days it's easier than others! 

  • 2 weeks later...
luvs2eat Collaborator

What irritates me about this scenario is that people who say they have celiac disease and then eat gluten make the people who REALLY have celiac disease and have to be a MILLION percent complaint seem like worry warts and obsessive. I don't care if that's what I look like, but it's hard not to call them out!

My daughter sent me a cartoon from The New Yorker... two women having lunch and talking about another friend... "Oh, she thinks she's SO cool cause she has REAL celiac disease."  Ha ha ha!!

Oceane Newbie

I agree it's really irritating. There is a bakery in our village (I live in France) who make 'low gluten' bread. It's mainly made with buckwheat but it does contain some wheat flour. When I asked her about it, she said that a lady in the village orders loads of this bread to put in her freezer and she's celiac. When I said, well if she has celiac disease she wouldn't be able to eat it, she started arguing with me. I just let it go, but it REALLY annoyed me....

jrlaird Rookie

What REALLY irritates me is when someone tells me "I have a friend who used to have Celiacs..." One - because they call it Celiacs, and two - because there is no cure for this disease. If your friend had Celiac, then she STILL has it! Ugh.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    2. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    4. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    5. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748

    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.