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Loved ones with Celiac in nursing home


HeatherRJSoleil

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HeatherRJSoleil Rookie

Hi there,

I'm writing an article for Gluten-Free Living about the quality of nutritional care that nursing homes are providing (or not!) Celiac residents. I was so moved by Curtiss Ann Matlock's story a few months ago, I thought I'd do a little digging and pitch the topic to a broader audience. That's what I do!

Does anyone out there have a parent or loved one with Celiac Disease that is currently living in a nursing home (or assisted living facility)? If so, would you be willing to talk about whether or not your loved one is receiving gluten-free meals, the challenges in finding a facility that could accommodate a gluten-free diet, etc.?

If you fit this description, send me a note at heatherrjohnson@sbcglobal.net. 

Note that I'm not talking about short hospital stays or short-term rehab facilities. Need to limit this to nursing homes and assisted living.

Thanks so much,

Best,

Heather J

heatherraejohnson.com


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squirmingitch Veteran

Bravo for you shining more light on this situation! 

HeatherRJSoleil Rookie

Thank you! Squirmingitch -- omigosh what a name!

Heather J

squirmingitch Veteran

I have dermatitis herpetiformis aka the celiac rash. The rash makes my skin a squirming itch then I become one great big squirming itch. I thought it appropriate.:D

  • 3 weeks later...
HeatherRJSoleil Rookie

Hi everyone, I'm still looking for people to talk with for this story. If you or anyone you know has had to place a loved one with Celiac into a nursing home or assisted living, please get in touch. Fortunately, I spoke with one woman who had a very positive outcome when her family had to find a place for her grandmother. They found a small facility that took very good care of her, and even made special gluten-free meals for the whole family when they came to visit for special occasions (Thanksgiving, etc.)

SLLRunner Enthusiast

Heather, I don't have any experience to share, but I would love to read the article when it comes out. What magazine will it be in? Will you let us know when it comes out? 

SLLRunner Enthusiast

Heather, I don't have any experience to share, but I would love to read the article when it comes out. What magazine will it be in? Will you let us know when it comes out? 


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SLLRunner Enthusiast

Heather, I don't have any experience to share, but I would love to read the article when it comes out. What magazine will it be in? Will you let us know when it comes out? 

HeatherRJSoleil Rookie

It will be in Gluten-Free Living later this year, October I think

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