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kam00096

First glutening or something else?

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Hi guys just looking for some advice (and to have a bit of a rant!). I'm feeling horrible tonight. It's just like before I went gluten free and it's really scaring me.

I've been gluten-free for two months and although I've not felt perfect (still have nausea at least once a day and still feel like I never go to the bathroom properly) a lot of my neuro symptoms like being dizzy and shaky had gone. 

Tonight after dinner I got really nauseated and now I'm completely dizzy and off-balance and can't stop shaking. And my legs are aching which is another of my old symptoms. Dinner was nothing new and I'd checked the juice I had so it shouldn't have been that. I did have a couple of bites of a quinoa bake thing and I'm wondering if it could be from that but I've had quinoa before and been ok.

This will sound weird but I'm flaking out that it's not connected to celiac at all, because my pattern for the last few years has been that when I start getting symptoms like this they go on for months and I basically can't do anything. Also I'm completely phobic about throwing up so am panicking that it might be a stomach virus.

I know it sounds stupid hoping its from gluten but it's the better of the options for me. At least if it's that it'll pass. This is my biggest issue with having celiac... I already struggled badly with not knowing 100% what was causing my symptoms without adding another possible but unprovable reason into the mix.

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What's a "quinoa bake thing"?  Is that a manufactured/processed cereal bar?  Was it certified gluten free?  What was on the label?  Quinoa itself should be fine, if you washed it like rice before using it.  

I am sorry you are ill.  Try to look at all your foods for the day.  Sometimes, it takes a while for symptoms to hit.  I hope  you figure it out!  

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6 minutes ago, cyclinglady said:

What's a "quinoa bake thing"?  Is that a manufactured/processed cereal bar?  Was it certified gluten free?  What was on the label?  Quinoa itself should be fine, if you washed it like rice before using it.  

I am sorry you are ill.  Try to look at all your foods for the day.  Sometimes, it takes a while for symptoms to hit.  I hope  you figure it out!  

Thanks for the reply. It was a homemade bake I made with plain quinoa. And I did wash it thoroughly before using it. The only other thing I had today that was different was proper filter coffee but I checked it too. I have work tomorrow and it's gone 1am but I feeling too ill to sleep. Going to be a long day! 

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Hi Kam,

I'm sorry that you are feeling awful.  (((((HUGS)))))

For me it takes about 24 hours for gluten symptoms to hit.  I've found that it really helps to keep a food diary...I have about 2 years worth now.  Lol.  I write down everything I eat each meal and I've been able to use that to figure out other things that bother me.

Just for reference, my gut still can't handle quinoa, oatmeal, broccoli, cauliflower, cabbage and brussel sprouts unless I want to be in some serious pain.

If you can look at everything you've eaten in the last day or 2, you may find your issue.  Maybe it's gluten, maybe it's another intolerance...sometimes it's hard to know.

Do what you can to get some rest, drink fluids...I've found that ginger tea is very soothing to my tummy.  I really hope you start to feel better.

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I'm guessing maybe it's the quinoa. I got really sick from it a couple months ago- even though I had small amounts of it in the past without problems. Now I avoid it like the plague. I can relate to what you're saying- I also have times where I get really ill and it would be easier just to track it to gluten and not go crazy trying to figure out what other foods could be causing a gluten type reaction. Healing can be a slow process- it's been more than six months for me and it's pretty up and down for me. I do have good days too- so don't give up. Better health is possible:)

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Ugh! Quinoa! I LOVE it (and it's a useful food in general) so just kept trying and found that every single time it destroyed my guts.
Incidentally, there's one coffee brand (definitely gluten-free) that does as well, for me.

I suppose trial and error will make things clearer for you and it's not a superfun method (particularly because suspects have to be eaten again to know more!) but it does work.  I'm currently trying to figure out if dairy is doable or not (basically it's not but I'm determined to make it work. Ha. Testing it alllll out to see if there's a difference between the A1 low fat stuff that gives me migraines and stomach cramps without fail even if it's yoghurt, and A2 dairy, dairy without casein (aka butter and cream), etc. etc.). I'm also trying to work out if it's coincidence that I was migraine free since diagnosis (after getting them constantly) until I started eating a bit of meat again for the first time in decades.
It's all pretty tricky because we start reading correlations into everything but patterns do emerge!
I hope you're feeling better now :) .

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SOunds like the quinoa.  My partner can't process it while I can - in a limited amount.  It's difficult to digest.  Drop it from you diet for a couple of months then go back and try it again.,  Give that gut time to heal!

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Thanks for all of the replies. Still not sure if it was the quinoa or not but I think I probably need to strip my diet right back to basics again and cut out the extras. Thought I'd get away with gluten-free products and alternatives but am going to take the advice I've seen on here and go back to just whole foods. I also reckon dairy is probably an issue. And I had a close call tonight with a conditioner that had two wheat based ingredients (lucky I checked). And Ive spoken to the doctors today about Addisons as some of my symptoms seem to correspond with that. 

Whatever's causinng it I'm still feeling awful and all of my old symptoms are back including aching legs and night sweats. Feeling pretty overwhelmed to be honest. 

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