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New to this gluten-free life

Calmjm

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Calmjm Newbie
Calmjm
Posted

So I just got diagnosed with celiacs and I felt like after all the testing and stuff I would finally get the information my fiancé and I so badly needed about what is wrong with me, but the doctor came in the room at our appt and spent about 15 minutes with us talking a little bit about cross contamination, then said I need to avoid gluten like i would arsenic then sent us on our way! So I guess I am looking for some good tips and information about what is really wrong with me! I know own it's an auto immune disease. I just feel scares because I am so uneducated about it and it's such a big change. I just want to know what to do and do it right so I feel better! 

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kareng Grand Master
kareng
Posted

This site has a lot of good info.  And you can get a free " care package"  which is fun.

Open Original Shared Link

 

this thread has some useful info - 

 

 

 

Jays911 Contributor
Jays911
Posted

Kareng is correct.  There are also a number of good reference books on celiacs and gluten free issues.  Also several magazines.  The main thing is to find out the hidden and unusual sources of gluten, and also to be very careful when eating at restaurants.  I got glutened quite a few times at restaurants before I learned to triple check and began to find safe places.  Good luck. 

caretothepeople Newbie
caretothepeople
Posted

Getting a diagnosis like celiac an be overwhelming because it's so complex and there's a lot to learn. If you're unhappy with your doctor, switching to a new one and/or getting a second opinion are options. It's really important to find someone you feel comfortable with who listens to your concerns. That being said, as you're preparing for your next appointment, take time to write down any questions that come up as you go about your day beginning to manage your condition and track any symptoms you're experiencing. Did your doctor discuss lifestyle changes and treatment options with you?

Here are some examples of things to ask:

  • What tests do I need?
  • What treatment options are available?
  • Should I take nutritional supplements?
  • Are there any dietary restrictions that I need to follow?
  • How will I learn which foods contain gluten? Should I see a dietitian?
  • Can you recommend nutritionists who work with celiac patients?

The Celiac Foundation is another resource. Their website has lots of information and resources. There's also the Celiac Support Association – they have local chapters, or the National Foundation for Celiac Awarenes. And check out magazines like Gluten-Free Living, Delight Gluten-Free and Living Without.

 

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      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

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