Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3yr old


Kkstevo

Recommended Posts

Kkstevo Newbie

Im trying to find answers for my 3 yr old boy. He was fully toilet trained for 2 weeks shortly after that he got a fungal infection on his bum and stopped doing poohs on the toilet

After Easter he began having contstant really soft to watery looking and foul smelling poohs and did about 10+ a day so I cut dairy out and he was fine for about 2 weeks then he started having his foul smelling diahrea poops again so I put him back on dairy. Then i found out he had a parasite and was on antibiotics for a week and this seemed to have worked then the day after off his antibiotics he went back to his foul smelling poops again still doing it all day long. Got another test done for parasites it was negative. Tested for celiac that was negative. He had gastro after the parasite as well. He also has low iron and low white blood cells waiting to see the results if they are still low if it is he will be referred to a specialist. 

But I am wondering about an intolernace to gluten? I have put him on gluten free diet and he is doing really well on it, his grandparents gave him a crumbed sausage and fish fingers and he seems to have had a few bouts of diahrea again and it is like there is wheat in his poop as well which he has had before starting gluten free. 

Does anyone have any ideas at all? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Exactly which celiac blood tests were given?  Kids tend to test differently than adults.  

Kkstevo Newbie

I'm not exactly sure which one was given, It was 2 weeks ago.

Kkstevo Newbie

I should also add that he gets these red lines and red raised spots under his eyes as well and he has also had a rash on his elbows a few months back, i thought he was getting eczema because I have had since I was 5 but seeing the celiac rash it looked exactly the same he just hasnt had it since. About a year ago he went through a phase where after lunch he would wake up from a sleep and scream for about an hour rolling around the floor and try to get up but couldnt like he was in a lot of pain but since then he has not had a day time sleep. 

cyclinglady Grand Master

There are over 200 symptoms of celiac disease and some people do not have any symptoms!  I would recommend getting copies of the lab tests.  You should really keep all copies of medical records for your family.   If he did not get the complete panel, then you can request it.  

By the way, in order for celiac tests to work, you must be consuming gluten daily.  So, keep eating gluten until you are satisified that all testing has ruled out celiac disease.  

Tests:

Open Original Shared Link

Tissue Transglutaminase (tTG) IgA and (tTG) IgG
-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG
-EMA IgA 
-total serum IgA and IgG (control test)
-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests
 
-endoscopic biopsy - make sure at least 6 samples are taken
 
VERY IMPORTANT:  Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.  
 
(Source: NVSMOM -- ?)
 
i hope he feels better soon!  
Kkstevo Newbie

Thank you. I have gotten a printout of my sons results and he had a Gliadin IgG and TTG IgA test done and it just says not detected.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,802
    • Most Online (within 30 mins)
      7,748

    BoroMike
    Newest Member
    BoroMike
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.