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News: Celiac.com: 10 Everyday Ingredients with Hidden Gluten

Scott Adams

By Scott Adams
in Publications & Publicity

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Scott Adams Grand Master
Scott Adams
Posted

Oats in its natural form are gluten free but almost all oats are processed in a wheat processing unit. If you have Celiac Disease, all oats should be ...

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Gemini Experienced
Gemini
Posted

Where do you get these articles?  There is some very wrong info in here.

1)  All oats should be avoided if you have Celiac Disease.  :blink:  Certified gluten-free oats are very safe for some with Celiac Disease and I think that has been firmly established in Celiac world.

3) Here we go again with the distilled vinegar issue.  :rolleyes:  It is safe and the only vinegar that isn't is malt vinegar or any vinegar that may have added flavorings after distillation that could contain gluten, of which I have never seen before in 11 1/2 years.  But read the label just in case.

5)  The baking powder issue is just another one where you have to read those labels.  I have to admit, I have never, ever seen baking powder with flour mixed in for smoothness but they may exist.

7) Corn starch. I think it ridiculous that they say you should stay away from it. This is a basic cooking item for Celiacs so again, read the label because if there is wheat added, it has to be labeled. Never, ever have gotten sick from corn starch.

10)  Sausages have gluten in the casings?  On what planet?  :lol:  There are plenty of sausages out there which are gluten free and marked accordingly on the package....the frozen ones like Jones and Applegate Farms.  I have had fresh sausage that did not contain breadcrumbs (which some do) and were perfectly fine and I never got sick.  I am really sensitive so if there were gluten in sausage casings, I would have paid dearly for eating them. You have to ask/investigate where you buy them but they can be found.  I would be more worried about what went into the sausage or them being cc'd by stuffing them before you think there is gluten in all sausages from the casings.

No wonder people are confused.......

Irene Joanne Explorer
Irene Joanne
Posted

That's a really unhelpful article!! 

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      Confused about HLA-DQ Celiac gene test result

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    • knitty kitty
      Dried Chickpeas

      By knitty kitty · Posted

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thank you, that is helpful! 
    • Scott Adams
      Confused about HLA-DQ Celiac gene test result

      By Scott Adams · Posted

      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      Dried Chickpeas

      By Aretaeus Cappadocia · Posted

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
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