Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr NYC who takes HealthFirst


Elli-

Recommended Posts

Elli- Apprentice

Hey guys!

I'ec long used these forums for info over the years.  First post ever!

I know this has probably been covered but for some reason the search is not working for me on this device.  I am looking for a dr who is more open minded abt celiac in NYC who takes HealthFirst.

 

My story is I've been sick for years and in like 2006 a chiropractor suggested I might have a gluten issue.  I thought he was totally full of it but my car was broken and I was bored so I tried the diet...lo and behold I stopped getting sick 3-4 time a week!  I stayed gluten free from that time to today and I guess that is 10-11 yrs now!

Over the years I've mainly been on the heavier side with occassional situations where I have rapid weight loss and cannot stop losing weight.  Then I'm all "oh thank god I was fat!"  Hahahahahha!  Although I don't get sick as often as I used to, I do ocassionally still get sick.  I always thought it was cause of cross contamination or something.  But I feel like something has changed.  

I just got this awesome health ins through the ACA and I can totally see a dr now.  I saw a Gastroenterologist today but he was less than thrilled with the idea I might have celiac.  He ordered a colonoscopy.  He told me celiac is "trendy" and that it was "very hard to have a gluten free diet".  I told him I have had one for 7 years (I had not done the math for a while until a few minutes ago).  I really liked the guy - he was super sweet and awesome!  But I felt like he was close minded.  I mean, maybe it IS trendy to be gluten-free but still that doens't stop the fact that some ppl will have celiac/GS et alias.  

I know I've been gluten-free for a long enough time that maybe the gut has healed, but I did want to talk to a dr that is not ready to exclude the Gluten Diseases out of hand.  Like maybe a specialist.  I have only this health insurance Healthfirst Managed Medicaid.  Does anyone have any advice as far as doctors in the area?  I am a musician so Im a little tight on funds and it would be better if it could be in my plan.  

Thanks you guys!  <3. Ellie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
3 hours ago, Ellie!!!!!!!!!!!!!!!! said:

Hey guys!

I'ec long used these forums for info over the years.  First post ever!

I know this has probably been covered but for some reason the search is not working for me on this device.  I am looking for a dr who is more open minded abt celiac in NYC who takes HealthFirst.

 

My story is I've been sick for years and in like 2006 a chiropractor suggested I might have a gluten issue.  I thought he was totally full of it but my car was broken and I was bored so I tried the diet...lo and behold I stopped getting sick 3-4 time a week!  I stayed gluten free from that time to today and I guess that is 10-11 yrs now!

Over the years I've mainly been on the heavier side with occassional situations where I have rapid weight loss and cannot stop losing weight.  Then I'm all "oh thank god I was fat!"  Hahahahahha!  Although I don't get sick as often as I used to, I do ocassionally still get sick.  I always thought it was cause of cross contamination or something.  But I feel like something has changed.  

I just got this awesome health ins through the ACA and I can totally see a dr now.  I saw a Gastroenterologist today but he was less than thrilled with the idea I might have celiac.  He ordered a colonoscopy.  He told me celiac is "trendy" and that it was "very hard to have a gluten free diet".  I told him I have had one for 7 years (I had not done the math for a while until a few minutes ago).  I really liked the guy - he was super sweet and awesome!  But I felt like he was close minded.  I mean, maybe it IS trendy to be gluten-free but still that doens't stop the fact that some ppl will have celiac/GS et alias.  

I know I've been gluten-free for a long enough time that maybe the gut has healed, but I did want to talk to a dr that is not ready to exclude the Gluten Diseases out of hand.  Like maybe a specialist.  I have only this health insurance Healthfirst Managed Medicaid.  Does anyone have any advice as far as doctors in the area?  I am a musician so Im a little tight on funds and it would be better if it could be in my plan.  

Thanks you guys!  <3. Ellie

You are like my hubby.  He has been gluten-free for 15 years per the poor advice of his GP and my allergist (I was formally diagnosed 3 years ago).  Does hubby have celiac disease?  We will NEVER know because he refuses to do a gluten challenge.  I can not blame him.  Eating three months of gluten for the blood tests would make him very sick and he is the breadwinner of the family.

 

caretothepeople Newbie

Hi Ellie! Maybe the Celiac Disease Foundation can point you in the direction of a doctor in NYC. Take a look at their site - they have a doctor finder tool. Many of the major medical centers here have centers that specialized in Celiac Disease, so those could be a potential resource.

Also, I think using ZocDoc you can enter what insurance you have and it'll bring up specialists who take your insurance (call to confirm). You can read reviews from other patients which can be helpful.

There's a meetup group in NYC called New York City Celiac Disease Meetup which could be another place to connect with others in the community.

Hope this helps and maybe others have specific referrals!

  • 1 year later...
Elli- Apprentice

Hey guys!  Thanks for the answers!  Still looking - hahahahha, I know it’s been a year and a half by now.  Things have changed for me a bit.  I did see a doctor I got through Zocdoc who was supposed to be a celiac expert (although he takes all kinds of GI issues) and he told me to like eat a donut a few days ahead of a stomach biopsy and then he could tell if I had celiac.  [eyeroll].  I’ve been gluten-free for 11 yrs so.  These guys just do NOT ant to even talk about celiac.  It is so weird.  Ima hit that meetup maybe!  Thanks so much for you guys’ helpl. Sorry it took so long - I forgot my credentials! 

  • 3 weeks later...
squirmingitch Veteran

Ellie!!!!!!!!!! has found a great doc in NYC. His name is  Dr. Andrew Blank in NYC.

You can see her post in this thread:

 

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.