Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr NYC who takes HealthFirst

Elli-

By Elli-
in Doctors

Recommended Posts

Elli- Apprentice
Elli-
Posted

Hey guys!

I'ec long used these forums for info over the years.  First post ever!

I know this has probably been covered but for some reason the search is not working for me on this device.  I am looking for a dr who is more open minded abt celiac in NYC who takes HealthFirst.

 

My story is I've been sick for years and in like 2006 a chiropractor suggested I might have a gluten issue.  I thought he was totally full of it but my car was broken and I was bored so I tried the diet...lo and behold I stopped getting sick 3-4 time a week!  I stayed gluten free from that time to today and I guess that is 10-11 yrs now!

Over the years I've mainly been on the heavier side with occassional situations where I have rapid weight loss and cannot stop losing weight.  Then I'm all "oh thank god I was fat!"  Hahahahahha!  Although I don't get sick as often as I used to, I do ocassionally still get sick.  I always thought it was cause of cross contamination or something.  But I feel like something has changed.  

I just got this awesome health ins through the ACA and I can totally see a dr now.  I saw a Gastroenterologist today but he was less than thrilled with the idea I might have celiac.  He ordered a colonoscopy.  He told me celiac is "trendy" and that it was "very hard to have a gluten free diet".  I told him I have had one for 7 years (I had not done the math for a while until a few minutes ago).  I really liked the guy - he was super sweet and awesome!  But I felt like he was close minded.  I mean, maybe it IS trendy to be gluten-free but still that doens't stop the fact that some ppl will have celiac/GS et alias.  

I know I've been gluten-free for a long enough time that maybe the gut has healed, but I did want to talk to a dr that is not ready to exclude the Gluten Diseases out of hand.  Like maybe a specialist.  I have only this health insurance Healthfirst Managed Medicaid.  Does anyone have any advice as far as doctors in the area?  I am a musician so Im a little tight on funds and it would be better if it could be in my plan.  

Thanks you guys!  <3. Ellie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
3 hours ago, Ellie!!!!!!!!!!!!!!!! said:

Hey guys!

I'ec long used these forums for info over the years.  First post ever!

I know this has probably been covered but for some reason the search is not working for me on this device.  I am looking for a dr who is more open minded abt celiac in NYC who takes HealthFirst.

 

My story is I've been sick for years and in like 2006 a chiropractor suggested I might have a gluten issue.  I thought he was totally full of it but my car was broken and I was bored so I tried the diet...lo and behold I stopped getting sick 3-4 time a week!  I stayed gluten free from that time to today and I guess that is 10-11 yrs now!

Over the years I've mainly been on the heavier side with occassional situations where I have rapid weight loss and cannot stop losing weight.  Then I'm all "oh thank god I was fat!"  Hahahahahha!  Although I don't get sick as often as I used to, I do ocassionally still get sick.  I always thought it was cause of cross contamination or something.  But I feel like something has changed.  

I just got this awesome health ins through the ACA and I can totally see a dr now.  I saw a Gastroenterologist today but he was less than thrilled with the idea I might have celiac.  He ordered a colonoscopy.  He told me celiac is "trendy" and that it was "very hard to have a gluten free diet".  I told him I have had one for 7 years (I had not done the math for a while until a few minutes ago).  I really liked the guy - he was super sweet and awesome!  But I felt like he was close minded.  I mean, maybe it IS trendy to be gluten-free but still that doens't stop the fact that some ppl will have celiac/GS et alias.  

I know I've been gluten-free for a long enough time that maybe the gut has healed, but I did want to talk to a dr that is not ready to exclude the Gluten Diseases out of hand.  Like maybe a specialist.  I have only this health insurance Healthfirst Managed Medicaid.  Does anyone have any advice as far as doctors in the area?  I am a musician so Im a little tight on funds and it would be better if it could be in my plan.  

Thanks you guys!  <3. Ellie

You are like my hubby.  He has been gluten-free for 15 years per the poor advice of his GP and my allergist (I was formally diagnosed 3 years ago).  Does hubby have celiac disease?  We will NEVER know because he refuses to do a gluten challenge.  I can not blame him.  Eating three months of gluten for the blood tests would make him very sick and he is the breadwinner of the family.

 

caretothepeople Newbie
caretothepeople
Posted

Hi Ellie! Maybe the Celiac Disease Foundation can point you in the direction of a doctor in NYC. Take a look at their site - they have a doctor finder tool. Many of the major medical centers here have centers that specialized in Celiac Disease, so those could be a potential resource.

Also, I think using ZocDoc you can enter what insurance you have and it'll bring up specialists who take your insurance (call to confirm). You can read reviews from other patients which can be helpful.

There's a meetup group in NYC called New York City Celiac Disease Meetup which could be another place to connect with others in the community.

Hope this helps and maybe others have specific referrals!

  • 1 year later...
Elli- Apprentice
Elli-
Posted
  • Author

Hey guys!  Thanks for the answers!  Still looking - hahahahha, I know it’s been a year and a half by now.  Things have changed for me a bit.  I did see a doctor I got through Zocdoc who was supposed to be a celiac expert (although he takes all kinds of GI issues) and he told me to like eat a donut a few days ahead of a stomach biopsy and then he could tell if I had celiac.  [eyeroll].  I’ve been gluten-free for 11 yrs so.  These guys just do NOT ant to even talk about celiac.  It is so weird.  Ima hit that meetup maybe!  Thanks so much for you guys’ helpl. Sorry it took so long - I forgot my credentials! 

  • 3 weeks later...
squirmingitch Veteran
squirmingitch
Posted

Ellie!!!!!!!!!! has found a great doc in NYC. His name is  Dr. Andrew Blank in NYC.

You can see her post in this thread:

 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.